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Helpful Websites
CRPS
websites
A number of sites that promote awareness, education, and communication
among the community. Contains chat rooms and online support groups.
Non-CRPS websites
Various sites for the pain community.
Scholarship Resources for Students with Chronic Illness
NeuroTalk Communities: RSD and CRPS
Suicide
Survivor Support Resources
CRPS/RSD A Better Life Blog
The Definitive Link Library for Reflex Sympathetic Dystrophy (CRPS), Chronic Pain, and Similar Conditions
Brochures
You can download these publications using Adobe Acrobat
Reader.
Download
the free reader here.
Clinical
Treatment Guidelines
Helping
Children/Youth With CRPS Succeed in School
A guide for teachers, parents, and school administrators on
accommodating the special needs of children with CRPS.
Telltale
Signs of CRPS HandiCard
A two-sided card with pain scale on one side and signs of
CRPS on the other.
Recognizing,
Understanding, and Treating CRPS
Recently revised,
this brochure details the signs and symptoms of CRPS and
presents some treatment options.
Treating
Complex Regional Pain Syndrome: A Guide for Therapy
A new brochure on treating CRPS from an occupational therapist.
Hospital
Protocols for the CRPS patient: Handle With Care!
A
guide
for patients and hospital staff to manage people with CRPS
during their stay in the hospital.
El Síndrome de Dolor Regional Complejo (también llamado Distrofia Simpática Refleja)
Financial Resources
In Pain, Out of Work and Can't Pay the
Bills
This resource directory for People With CRPS covers government
assistance programs; free medicines for those who can't afford
them; clinical trials, food stamps, and other ideas for those
who suffer financially from the effects of CRPS.
To order your free copy of the In
Pain, Out of Work, and Can't Pay the Bills or any
of our brochures, please call the RSDSA office at 877.662.7737
or send your name, mailing address, and brochure requested
to RSDSA, 99 Cherry St., Milford, CT 06460.
Patient Advocate Foundation's Co-Pay Relief Program: Pain Fund
Navigating
Medicare and Medicaid: A Resource Guide for People with Disabilities,
Their Families, and Their Advocates
Discharging Student Loans Due to Disability
Books
Living With RSDS, by Peter Moskovitz, MD and Linda
Lang. To read a review, click here. To order a copy, click here.
Medifocus
Guide to Reflex Sympathetic Dystrophy
A resource guide for the person with CRPS. Each guide has
current and relevant CRPS research organized into categories
for easy reading. Free updates are provided for 1 year.
Articles
Legal Finding a Lawyer
Finding a Lawyer for a Workers' Compensation Case
Finding
a Lawyer for a Social Security Disability Case
How
to Avoid Firing Your Lawyer
Finding a Physician and Medical Treatment
FAQ on Opioids: Facts about Addiction, Pseudo-addiction, Physical Dependence, and Tolerance
Take Care Recovery Plan
The Take Care Recovery Plan is an offer of free, limited healthcare and diagnostic testing
services at Take Care Clinics throughout the remainder of 2009 for qualified individuals. Click here for details.
Wound Care Resources
Sleep Issues
From How To Cope With Pain
Finding a CRPS Specialist
By Alfie C. Burns, President,
RSDSA-CA
Finding a CRPS Specialist: Helpful Websites
Searching for a pain specialist or pain clinic in your area?
The Dannemiller Foundation has compiled for your use a list of hundreds of pain specialists and pain clinics from all over the globe.
Sacral neuromodulation for chronic
pain conditions
Source: Anesthesiol Clin N Am. 2003;21:785-795.
Talking with Subhash Jain, MD, about Pelvic Pain: Pain Medicine with Compassion
From the Summer 2006 Issue of The Pain Practitioner
CRPS Diagnosis: A review of diagnostic tools
MR Neurography
as a Useful Test in
Evaluating People
With CRPS
BY Robert L. Knobler, MD, PHD
Footwear Survey
Social Security, Workers Compensation, and Insurance
The Comorbidity of Pain and
Disability, and Tips for Pain
Practitioners (PDF)
By Jeanne Lazo
The Pain Practitioner, Spring 2009
Dear Jeanne: Social Security Medical Examination
New Ticket to Work Regulations Create Exciting New Opportunities
How Jersey Fails Injured Workers
The
Basics of Health Insurance and Appeals
Coverage for all
through education
Book Review: Persistence
is Power
From RSDSA Review. Winter 2007.
Life Care Plans
By Steve Goren, Esq.
The
Social Security Ruling on CRPS and what
it means for you
How to Lose Your Case in 12
Easy Steps
By R. Steven Shisler, Esq.
Tactics for SS Disability
By Debra Sjolseth
What do do When You Lose
Your Benefits Based on an "Independent Medical Examination" Workers' Compensation 101: An Overview
of WC for Employees With Work-related CRPS
By R. Steven Shisler, Esq. Work After Disability
By Jeffrey A. Rabin, Esq. Advocacy
For more on Advocacy, click here.
Your Pain, Your Rights: Dealing with Your Physician and Your
Hospital
The Pain Care Bill of Rights
Support for People With CRPS
Awareness Posters
For more Awareness ideas, click here.
Our awareness poster can be downloaded
and printed from your computer in two sizes: 8 1/2" x
11" or 11" x 17". For your convenience we have
formatted it in black and white and color, for those of you
who have color printers. The posters are in a pdf format.
Updated
June 15, 2009
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