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Twelve Things People with CRPS Want You To Know About Them During the Holiday Season

Published on December 17, 2015 under Opinion
  By Samantha Barrett, Special Events Coordinator Tis the season to be jolly! Or at least, that’s what I’ve heard. I love the holiday season. There are beautiful lights and decorations everywhere, there are people singing cheery songs, there are fun, mindless movie marathons on TV, there is delicious food- all of my favorite things wrapped into one season. Maybe that’s why I am so exhausted this year! In my years with CRPS, I’ve noticed that things are a little different than what they used to be. But, I am finding a way to be a little less “bah-humbug” and a little more “holly jolly.” While some people may not understand why I’m Scrooge one moment and good ol’ Saint…
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Fighting Back: The War Against Chronic Pain Sufferers

Published on December 11, 2015 under Call to Action
By Suzanne Stewart, author of "Tears of Truth" blog Think back to the Gun laws.  Remember how some citizens were against taking guns away from the “people”? The reason being, that the “bad guys” will always have access to them and the “good guys” who are in need of protection; get killed in the meantime because their safety net, their weapons to fight against being robbed were taken away from them! Well, my friends, the same thing is happening now, this 2016;  to “real pain patients” fighting against being “robbed” of their “safety net, their weapons” to fight against the chronic intractable pain, and nerve pain that “WE” live with day in and day out. Yes, I am one of…
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I Feel Your Pain: The Power of Witness in Support Group

Published on December 4, 2015 under Guest Blogger for RSDSA
By Elisa Friedlander, from her blog. "People have a deeply innate desire to be seen. I'm not talking about Facebook selfie type visibility, I mean really be seen. To have people, or even that one person, be tuned-in to your joy, struggle or other experience. To simply be present without trying to fix you. When somebody bears witness to a piece of my story, we've established a connection and those shared moments become a part of me. I have received a valuable gift.  To be witness to the story of another is also powerful. Even though deep down we want people to see who we are, we might be conflicted about that. It can feel vulnerable, uncomfortable or even unsafe…
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How Camp Is Changing Lives For All Ages

Published on December 1, 2015 under Guest Blogger for RSDSA
By Candice Clifford. Volunteer from the Center for Courageous Kids Pediatric Pain Camp Session. CRPS Warrior. Experiences which leave an impression on your heart are the ones that stay with you forever… I ventured to Kentucky this past July to volunteer at the Center for Courageous Kids’ (CCK) inaugural Pediatric Pain Camp.  I took a solo trip, not knowing what to expect but ready to have fun with the campers.  To many, Kentucky seemed like a random place for this east coast girl to be traveling to.  However, as I reflect back on my experience at CCK, there was nothing random about this trip, rather I’d like to believe it was serendipitous. Working with children who live with chronic pain…
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An Update on the Walk to Conquer Pain

Published on November 10, 2015 under Events
  By Samantha Barrett: The Walk to Conquer Pain kicked off this past Saturday. It grew even more over the weekend. I love seeing how much this walk grows every day. I wanted to just clarify a few things for everyone. Since this is a new website and event, I am learning as we go as well. To sign up for the walk you can go to: https://walk-to-conquer-pain.everydayhero.com/us/get-started. This will create your fundraising page that you can share online through email or social media. All you have to do is copy the web address at the top of the page. It is similar to a FirstGiving page. If you would like a template of an email/post to send to your…
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Color The World Orange™ for CRPS

Published on October 19, 2015 under Events
Join us to Color The World Orange™ for CRPS/RSD Awareness on Nov. 2 By The Color The World Orange™ Team   Color The World Orange™ is almost here and we need your support!   An annual event held the first Monday of November to spread awareness of complex regional pain syndrome (CRPS), also known as reflex sympathetic dystrophy (RSD), on Nov. 2 Color The World Orange™ supporters will be wearing orange and hosting events to spread awareness of CRPS/RSD, as well as raising funds to support research of this debilitating condition.   To have the biggest impact, we need everyone in the CRPS/RSD community to get involved.   The easiest way to participate is to wear orange – a ribbon,…
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7 Reasons to Try Qi Gong for RSD/CRPS

Published on October 7, 2015 under Guest Blogger for RSDSA
By Elizabeth Lane Ok maybe 8.  I’m adding one.  It’s FREE.  I should say that usually you must pay to have a teacher show you the form (which is often the cost of one massage or acupuncture treatment).  Then you have the tools to help yourself whenever you need it. For FREE.  For a LIFETIME.  But I do know there are podcasts on itunes as well if you want to try to go completely cost-free. It’s almost unbelievable, right? No, i am over the FREE part.  Actually, I’m not.  That still excites me.  But what I am getting at is how a form of moving meditation can alleviate pain and so many symptoms. Here are 7 benefits of qi gong…
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High four Tips To put in writing A Artistic Coursework

Published on September 16, 2015 under uncategorized
High four Tips To put in writing A Artistic Coursework Have you ever heard about creative producing coursework? If no, then you definitely might probably inquire to jot down it by your professor. Artistic composing coursework aims composing for the specified team of folks or crafting for your described reason. Although it allows producing inside of a liberal fashion, but learners must have to stick to some specific guidelines for making an item resourceful and practical. Subsequent tend to be the four totally different recommendations of writing creative coursework, so let us use a look and feel at them: A narrative design coursework will require telling a story in the perception of 1 or more people. Also, it includes a…
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My Story of Living with RSD And I’m Sticking To It

Published on September 15, 2015 under Guest Blogger for RSDSA
My Story of Living with RSD And I'm Sticking To It   After being diagnosed with RSD in 1997, my career had been forfeited and replaced with playing the roles of researcher, advocate, physician and pharmacist...as I was now a Professional Patient. The information on RSD was as abundant as it was scarce; so little was truly known about how to physiologically treat this baffling condition, yet the plethora of universal symptoms, suffering and damage was undeniable. RSD was isolating and lonely, yet I was not alone. Fortunately, by connecting and subscribing to the only two RSD organization/groups available (which, back in the day, was pre-social media and hard copy newsletters), I found others who were at a similar level…
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CCK- We Feel So Good: A Reflection of Our Experience at the Center for Courageous Kids in Scottsville, Kentucky

Published on July 21, 2015 under Pediatric Pain Camp
 By Samantha Barrett, RSDSA's Special Events Coordinator I have a confession to make- I have never been to summer camp. Or, at least I hadn’t experienced camp until this past week when I went to the Center for Courageous Kids, where there was a week for pediatric pain. This was made possible by a collaboration between The Coalition Against Pediatric Pain, RSDSA, U.S. Pain Foundation, Rock Out to Knock Out RSD, and of course The Center for Courageous Kids. It is amazing what we can do when we all work together. I was able to adventure to Kentucky to represent RSDSA at this camp and had some fun of my own! The children and their families were able to partake…
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