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Guest Blogger for RSDSA

Bloggers from the CRPS/RSD community that write pieces for our blog will be featured here.

7 Things I Can Do When The Pain Is Too Much- CRPS Blog

Published on June 20, 2017 under Guest Blogger for RSDSA
By Guest Blogger Kelly Hodgkins This blog was originally posted on Moonglotexas. Click here to view the original post. This post, entitled "7 Things I Can Do When The Pain Is Too Much" was posted with permission and offers great insight into things that you can do, or try to do, when your CRPS/RSD pain feels like too much. My CRPS has a habit of flaring up on days I’ve made plans to do fun things that rejuvenate my soul. Snuggled up under my duvet, I visualize the landscape before me trotting along on my horse. I rearrange flower beds, trim branches and try out that great idea from a book. Coffee in hand, I catch up with a friend…
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Stress: A Chronic Pain (CRPS/RSD) Warrior’s Worst Enemy

Published on June 6, 2017 under Guest Blogger for RSDSA
By Guest Blogger Gabe King Gabe is back this week to blog about stress, the impact it has on CRPS/RSD and chronic pain, and how to try to manage it. While stress is an inevitable part of life, there are certainly ways to manage it. "...Chaos calls but all you really need...Is to just breathe." -Johnny Diaz, "Breathe" Stress is a normal part of everyday life. It starts as soon as you wake up: getting kids ready for school, finishing a major project for work, or preparing for a big family meal. These are normal, mostly every day, stresses of life. Often times, for the typical human being, it can be hard not to allow these stresses to get the best of…
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Understanding CRPS/RSD- As Taken from Fitness for Your Health

Published on May 30, 2017 under Guest Blogger for RSDSA
By Michael Sullivan, PT, MSPT This blog about understanding CRPS was originally featured on Fitness for Your Health. Learn about the pain and how they diagnosis it here. This week’s topic is one not many know too much about but it can be a very debilitating condition.  Those who suffer from Complex Regional Pain Syndrome (CRPS), A.K.A. Reflex Sympathetic Dystrophy (RSD), know far too well how bad this condition is.  It is a very complex condition (hence the name), so we have asked the Director of Physical Therapy here at our clinic to explain it. Michael Sullivan earned his MSPT at Duke University in 1989.  He worked in private practice for 8 years before deciding to move to help those…
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Never Let Pain Define You- CRPS Inspiration

Published on May 23, 2017 under Guest Blogger for RSDSA
By Guest Blogger Gabe King Guest blogger Gabe returns this week. After his blog entitled "A Thorn in the Flesh" was well-received, he returns to write about how CRPS pain can change you, but it doesn't need to be in a negative way. "Don't let pain define you, let it refine you." -Tim Fargo With chronic pain, it can be very easy to allow it to define who you are. You can feel like just giving up and allow it to control every inch of your life, letting it decide who you can be. In all honesty, I have found myself doing the exact same thing. Because of how extensive and unpredictable our condition is, we find it extremely difficult to…
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A Thorn In the Flesh-A Chronic Pain Journey

Published on May 9, 2017 under Guest Blogger for RSDSA
By Guest Blogger Gabe King This blog was originally featured on Gabe King's blog site Treasures on the Sand. This blog was submitted to us by Mr. King with full permission to share his chronic pain journey.   For many of us with chronic pain, we can only remember suffering. It can be very hard to think of the times that were pain-free, living our lives like normal human beings. However, this is not the path Our Heavenly Father has in store for us, for He has a greater purpose at hand. Though this is the case, it can still be a difficult journey, walking through life with what the apostle Paul referred to as a "thorn in the flesh."…
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Happy Disabiliday – A Letter from A Canadian CRPS Friend

Published on April 25, 2017 under Guest Blogger for RSDSA
This Disabiliday blog was originally featured on Pain Matter's website (Click on the word Pain Matters to see the original article). It was submitted to us by Paula to share with our wonderful #TheTuesdayBurn community. We hope this helps inspire all those living with disabilities, especially CRPS/RSD. "You may remember Paula Orecklin, the inspirational Canadian CRPS patient whom I wrote about in yesterday’s blog post: Let’s Talk To An Inspirational Young Canadian Woman, Paula Orecklin, About CRPS, Sativex, Physiotherapy and Neuroplasticity (There are additional References and Links at the end of this blog post.) This week, Paula sent me a beautiful letter to share with all of you (see below).  Paula’s letter contains a very important message for everyone, on behalf of all people living…
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SPPAN Tracking State Issues- How Can We Help CRPS/RSD?

Published on April 18, 2017 under Call to Action
This blog was originally titled "How SPPAN Went From Tracking A Few State Issues A Year, To Monitoring 1,900- And Changing the Rules in Several States." It was initially posted on Connectivity. You can click here to find it in its original form. At RSDSA's Nashville conference, pain-related legislation was a major hot topic. Some of the most frequently asked questions were about pain legislation and how to move towards change. RSDSA was offered this blog by CQ Roll Call to help explain a little bit of what SPPAN does and how one person can make a difference. How can this help people with CRPS/RSD? How can we move towards progress? The article starts below: "Here’s how one organization (for…
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The Impact of Mindfulness on RSD/CRPS

Published on April 4, 2017 under Guest Blogger for RSDSA
By Guest Blogger Emily Salser Nunez How important is mindfulness and CRPS/RSD? According to Emily, it is crucial. Read Emily's story and then see how being mindful helped her.   Eight months after fracturing my small toe in a simple misstep, I was diagnosed with Reflex Sympathetic Dystrophy (RSD).  I had never heard of this disorder when my podiatrist concluded this was what was causing my excruciating pain and inability to walk.  I knew something was seriously wrong, as over time my foot felt like it was burning and became bluish-black in color.  So, at first, I was relieved that I finally had an explanation for what was happening to me.  But then the podiatrist looked at me with deep…
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You Know You’re a Hospital Kid When… Life with CRPS

Published on March 14, 2017 under Guest Blogger for RSDSA
By Guest Blogger, Melissa Lovitz This piece about being a hospital kid, especially one with CRPS/RSD, was originally posted on The Mighty. When you’re a spoonie you spend a lot of time in the hospital. About 10 years ago, I spent more than 10 cumulative weeks of my freshman year of high school either in the hospital or at doctors’ appointments. During my middle and high school years, my experiences with reflex sympathetic dystrophy syndrome (or CRPS) landed me two six-week stays at Children’s Hospital of Philadelphia, two 10-day stays at Boston Children’s Hospital, and more doctors’ appointments than I can realistically count. When I was in high school, most of my inside jokes were with physicians who liked to dance every morning. I got…
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Chronic Pain and Family Responsiveness

Published on March 7, 2017 under Guest Blogger for RSDSA
By Guest Blogger: Laura Lustig, PhD Originally Titled: "Chronic Pain And Family Responsiveness: Stories Of Courage In The Face Of Unimagined Change." There are many types of chronic pain experienced by people all over the world, many of which have been well recognized and have treatment regimens that are prescribed regularly by doctors and allied professionals. To categorize the pain of Reflex Sympathetic Dystrophy (alternately referred to as Complex Regional Pain Syndrome) as chronic pain is almost a disservice. To begin with, people suffering from this syndrome go through indescribable pain that can strike without warning and become unmanageable. Then, there is the agony of waiting for someone to diagnose it correctly because, unlike so many other types of chronic…
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