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Opinion

Don’t Judge a Book By Its Cover- What CRPS Taught Me

Published on October 18, 2016 under Guest Blogger for RSDSA
By Guest Blogger Shannon Leidig Greetings everyone!  Happy Autumn! I so cannot believe we are almost to the end of October, which means the cold and snow of winter is just around the corner. I for one so am not NOT ready for that.  I truly hope everyone is doing well.  I have been meaning to write another blog for quite a while; however, this thing called LIFE just happened to get in the way – as this was not the blog I had planned to write.  That being said – there has been a situation that has happened that has totally rocked my world and that [is why] I feel I need to write this one titled: “Don’t Judge…
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The Myth of a Cure for CRPS

Published on October 11, 2016 under Guest Blogger for RSDSA
WHAT DOES REMISSION LOOK LIKE? By Dr. Katinka van der Merwe Dr. Katinka van der Merwe is a chiropractor who practices in Fayetteville, Arkansas. She treats the Central Nervous System, (specifically the Autonomic Nervous System) with the “Three Punch System”, recently revised to the “Four Punch System.” Her work is detailed on this site in an earlier blog. She has treated CRPS patients from all over the world in her clinic, and is the author of “Putting Out the Fire: New Hope for RSD/CRPS Patients,” expected to be released on Amazon in November. Her clinic number is 479-966-9766. Through the years of working with CRPS patients, I have often encountered what I refer to as “the myth of remission.” What…
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Comparing Pain- Why We Shouldn’t Do That

Published on September 20, 2016 under Opinion
By Samantha Barrett There are some things that we all do subconsciously. We judge books (and people) by their covers, we tell little white lies to spare people’s feelings, and we compare our pain to the pain of people around us. None of these actions are particularly good for us, especially when it comes to comparing pain. But why is something that comes so naturally to so many of us harmful? It is a touchy subject, so let’s dive right in. I was diagnosed ten years ago with CRPS/RSD. At the time, I was incredibly young and getting bullied for having a condition that no one could see. I needed to educate myself so I could educate others. When I…
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The Friend Who Didn’t Tell Me About Their Chronic Illness

Published on June 1, 2016 under Opinion
By Melissa Lovitz, Guest Blogger for RSDSA Dear Friend, I think you didn’t tell me about your chronic illness because I didn’t create a space for you to share with me more about your whole self. I wasn’t fully open and honest with you either – I’m sorry. Living with an invisible illness isn’t easy, and sometimes the shame and stigma that is associated with our conditions hinders our ability to be forthcoming about this important aspect of our lives. But, our silence perpetuates the invisibility of our illnesses – just saying. I think you didn’t tell me because you’re so used to, and good at, managing your condition on your own.  I am too! I wonder if you thought…
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5 Do’s and Don’ts When It Comes to People with CRPS

Published on March 8, 2016 under Guest Blogger for RSDSA
By Guest Blogger Anna Evenosky   So often we find ourselves in situations where people are trying their best to help us when in reality they very well may be hurting us. I can see how being a loved one of someone with CRPS can be challenging in more ways than one. You may find yourself not knowing what we want from you. I hope these 5 Do's and Don't give you more insight as to how you can help and comfort us.   DO: Ask us how we are doing. Our CRPS is something that is always on our mind and we appreciate knowing that somebody is thinking about us. You don't need to worry about bringing up a…
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Think Twice About Eating That- CRPS and Diet

Published on February 16, 2016 under Guest Blogger for RSDSA
By Patricia Calderon, Guest Blogger for RSDSA   Who would have ever thought that what we eat while having CRPS/RSD would cause us more pain then we already experience? I found out the hard way when my symptoms were getting worst and worst each day, then some days not so much. "There has to be a reason for this," I said to myself. So, I kept a diary of all the foods I ate and my pain scale throughout the day. Low and behold, I found out that I was making my pain increase each day with the foods I was eating. Consuming a lot of processed foods was one of them. Because I am always in pain and can’t…
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RSDSA Spotlight: When to Listen- A Day In The Life With CRPS

Published on January 5, 2016 under Guest Blogger for RSDSA
By Autumn Strand, Guest Blogger for RSDSA I, like many, had never heard of RSD/CRPS until it actually happened to me. I remember on the ride home googling it after the 3rd doctor I had been to said it is what I more than likely had. After many tests and even more treatments, I was diagnosed with this mysterious disease but I still wasn't sure what was happening to me. I have done a lot of research, and I am still learning new things every day. In my experience, most doctors do not know very much about RSD/CRPS so how can other people know? In the world of invisible illnesses it is almost impossible for people without them to know…
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Twelve Things People with CRPS Want You To Know About Them During the Holiday Season

Published on December 17, 2015 under Opinion
  By Samantha Barrett, Special Events Coordinator Tis the season to be jolly! Or at least, that’s what I’ve heard. I love the holiday season. There are beautiful lights and decorations everywhere, there are people singing cheery songs, there are fun, mindless movie marathons on TV, there is delicious food- all of my favorite things wrapped into one season. Maybe that’s why I am so exhausted this year! In my years with CRPS, I’ve noticed that things are a little different than what they used to be. But, I am finding a way to be a little less “bah-humbug” and a little more “holly jolly.” While some people may not understand why I’m Scrooge one moment and good ol’ Saint…
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Fighting Back: The War Against Chronic Pain Sufferers

Published on December 11, 2015 under Call to Action
By Suzanne Stewart, author of "Tears of Truth" blog Think back to the Gun laws.  Remember how some citizens were against taking guns away from the “people”? The reason being, that the “bad guys” will always have access to them and the “good guys” who are in need of protection; get killed in the meantime because their safety net, their weapons to fight against being robbed were taken away from them! Well, my friends, the same thing is happening now, this 2016;  to “real pain patients” fighting against being “robbed” of their “safety net, their weapons” to fight against the chronic intractable pain, and nerve pain that “WE” live with day in and day out. Yes, I am one of…
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