Members of the RSDSA Community have started support groups throughout the United States. Some meet in person at a member’s home or another local venue. Others meet online or via Zoom.

You will find the groups welcoming to new members. They understand what you are going through. The environment is generally positive and solutions-oriented. You’ll learn new coping strategies and benefit from the experience of others. You’ll also likely find that you have much to contribute the group in return.

Peruse the list of groups below, which you can access by state. You may also want to consider starting a group in your area.

If you do not find a support group that fits your needs please contact Pam Kientzler.

 

RSDSA has compiled the listing of these individuals and support groups as a public service. These individuals have not been formerly trained nor are they completely supervised by RSDSA staff or volunteers. Please let us know if there is a difficulty in the groups or if you experience challenges contacting a particular individual or group as changes often occur without our knowledge.

General and Nationwide Support Group Resources

 

Support Group Grant Program

New and existing support group facilitators often find that there are costs related to operating a support group or need startup funds for an awareness event. RSDSA has created a Support Group Grant Program to offer finial assistance with those costs. The goal of this program is to help maintain support systems for our CRPS Community.

This grant program will offer assistance to RSDSA registered in person, social media, phone and virtual support group meetings to aid in covering costs for postage, renting space for meetings, printing costs, office supplies deemed necessary, permits for events, promotional materials, refreshments for approved events and other needs.

Learn more about the purpose and use of the RSDSA Support Group Grant ahead of completing the grant application. Email your completed application to Pam Kientzler.


Support Groups By State

Gulf Coast RSD/CRPS Support Group
Mobile, Alabama
Tanya Crawford

Phone and Email Support Only

Power Over Pain
Little Rock, Arkansas

Debbie (501-240-2209) and Barbara (501-681-8970) offer phone, email, and Facebook Support

Leeza’s Care Connection Caregiver Support Group
Burbank, California
Holly Tyrer

For Grace partners on this monthly support group for those who are caregivers for someone in pain and other health issues. The group is led by a professional facilitator and is free to attend (though there is a $4 hospital parking fee.) Meetings will be held at Leeza’s Care Connection at Providence Saint Joseph Medical Center, 501 South Buena Vista St., Burbank, CA

Orange County CRPS Survivors & Caregivers Support Group
Costa Mesa, California
Kristie McCurdy, MSN, RN, CPN

Meetings are the 2nd Tuesday of the month at 11am – 1pm at the Board & Brew, 3030 Harbor Blvd., Costa Mesa, CA 92626. Please contact Kristie for registration information before attending the first meeting. This is a peer to peer support group!

RSD/CRPS California Support Community
Vacaville, California
RSDCA
Santa Rosa, California
Living with CRPS Support Group
Los Altos, California
Steffeny Termain

We are a support group that includes topics we all deal with and also education. If you just want someone to talk to, do not hesitate to call or send an email. The group will meet on the 2nd Wednesday of the month at noon. Location: 1925 Laver Court, Los Altos

USC Chronic Pain Support Circle
Los Angeles, California
Lindsey Reeves, OTD, OTR/L, Assistant Professor of Clinical Occupational Therapy

The USC Support Circle will be held the 3rd Thursday of each month from 2pm – 3pm at USC Occupation Therapy Faculty Practice, 1640 Marengo Street, Suite 500, Los Angeles, CA to provide support, exchange information, provide education, resources, and tools for people dealing with chronic pain in a safe and caring atmosphere. There will be plenty of street parking close to the facility. Please feel free to bring anything that will help you be comfortable. Refreshments will be provided. Please RSVP at least 1 day prior to each meeting via email.

LA and W. LA Support Group – Learning to Live with CRPS
Los Angeles and West Los Angeles, California
Evelyn Poplawski, MA, LMFT

Meetings are Mondays from 10:00 am to 11:30 am. Please call to RSVP if interested in attending a meeting. Location: Semel Institute Building, Westwood Plaza. Room C8-639 (between Leconte and Charles E. Young at the UCLA Medical Plaza).

HopeKeepers Chronic Pain & Illness Support Group
Pasadena, California
Suzanne & Steve Hogren

Meets bi-weekly Virtually. To join the group please contact Suzanne.

San Diego RSD/CRPS Hope 4 Cure Support Group
San Diego, California
Irina Lockwood-Devries and Rebecca Eidson

Meetings will be the 3rd Saturday of the month at 1:00pm Pacific. Most meetups are at Panera Bread, 5620 Balboa Avenue, San Diego, however we may have events and invite guest speakers at a different location. Please contact either Irina or Rebecca for meetup details.

San Fernando Valley Support Group
San Fernando Valley, California
Stephanie Shapiro

Meetings will be held in various cities in the San Fernando Valley. Please contact Stephanie directly for meeting information and time.

Ventura County CRPS/Other Chronic Pain Support Group
Simi Valley, California
Suzanne Wilkinson

Phone Support Only

RSD/CRPS Northern California Support Group
Northern California, California
RSD/CRPS Southern California Support Group
Southern California, California
CRPS/RSD Support Group
Templeton, California
Suzanne Miller

Meetings are the 3rd Tuesday of the month from 3-5pm.
Location: Atascadero Library – O’Grady Room, 6555 Capistrano, Atascadero, CA 93422
If you can’t make the meeting, Suzanne also offers telephone and email support.

Vacaville Support Group
Vacaville, California
Jo Hewitt

Phone and Email Support

Denver Metro CRPS Support Group
Denver, Colorado
Bob Lane

At this time the group will only have virtual meetings. Please contact the Support Group leader for dates and times.

Circle of Friends
Meriden, Connecticut
Sabrena Dixon

New Group for Phone Support Only

New CT Chronic Pain Support Group
Middleton, Connecticut
Lori Monarca and Wendy Foster

U.S. Pain Foundation support group for Connecticut residents living with chronic pain. The group meets the third Wednesday of the month from 1pm- 2pm at U.S. Pain’s headquarters at 670 Newfield Street, Suite C, 2nd floor (elevator lift) in Middletown. Please check the website below the day of the meeting for last minute cancellations due to inclement weather or chronic pain/illness.

Teen Support Group
Bradenton, Florida
Alexi Stoev

For teens living with CRPS around the country. Alexi’s meetings initially will be over the phone, Skype, or IM. For more information contact Alexi.

RSDSA/ACPA Chronic Pain Support Group
Fort Myers, Florida
Patricia Mehaffie

This group will meet the 1st and 3rd Monday of the month on Zoom. After 1/1/2021 the meetings will be on the 1st (in person and Zoom) and 3rd Thursday (Zoom only). The location for the meetings are at the New Hope Presbyterian Church, 10051 Plantation Road, Fort Myers, FL 33966.

Tales of the CRPS
Jacksonville, Florida
Anita Davis, PT, DPT, MSM, D-AAPM

Tales of the CRPS is no longer meeting monthly. They will have quarterly events that are announced and publicized in the Tales of the CRPS Facebook Group. Anyone can request to become a member of the Facebook group to see when these events will take place and to get information.

Pain Help for CRPS/RSD and Other Chronic Pain Conquerors
Naples, Florida
Kristi Oen

In person meetings postponed due to COVID, feel free to reach out for questions and help. Meeting replays are available here.

Ocala Email Support Group
Ocala, Florida
Nancy Carp

Email support only

Palmetto Support Group
Palmetto, Florida
RSD Support Group of the Treasure Coast
Vero Beach, Florida
Liz Radloff-Martin

Phone Support Only from 10am to 10pm

CRPS/RSD, Chronic Illness & Pain Support / Empowerment Group
Atlanta, Georgia
Melissa Wardlaw

We meet both virtually AND now in-person again every 6-8 weeks. We also have special guests and group activities on occasion. Spouses/caregivers are always welcome too! Peer counseling/advocacy is also available via phone by appointment (no charge).

Rome, Georgia Support Group
Rome, Georgia
Felechia

Phone and Email Support Only

Oahu CRPS Support Group
Oahu, Hawaii
Jenny Picciotto
Welcoming members across the Hawaiian Islands community. Monthly Zoom meetings. Peer to peer support group, with Zoom, Facebook, phone, and email support.  
RSDS|CRPS Association of Hawaii RSDSA
Kailua-Kona, Hawaii
Tina Mohr, LMT

Email, phone support or one-on-one support at her office

Midwest RSD/CRPS Support Group
Buffalo Grove, Illinois
Gracie Bagosy-Young

A virtual safe place for all of the Midwest RSD/CRPS residents to gather. We host regular virtual meetings and virtual educational sessions. Potential members need to register on the website with their name and email and then request to join the closed group. Answers are HIPAA protected.

Illinois RSDS Association
DuPage, Illinois
Bob Mogler

Feel free to call and leave a message. Please note that all calls are screened.

Meets 2nd Sunday from 2 pm to 4 pm. Meets virtually or in person (call for location).

Pain Specialists of Greater Chicago
Round Lake, Illinois
Joy Thornborough

Phone / email support. 604 Nippersink Ave, Round Lake, 60073

Fort Wayne Support Group
Fort Wayne, Indiana
Mara Gerke

Meetings and phone support. Call for meeting information.

Northern Indiana Support Group
Northern Indiana, Indiana
Julie Osborne Brock

Phone support

Iowa CRPS Support
Cedar Falls, Iowa
Lisa VanAllen

Meeting will be online and alternating locations. The meeting will be held the 1st and 3rd Thursday of the month at 4pm Central. For meeting information please look on the Iowa CRPS Support page on Facebook or call for information.

South Central KY RSD Support Group
Leitchfield, Kentucky
Carolyn Clemons

Meets 1st Tuesday at 1pm Central. Lobby of Twin Lakes Regional Hospital Leitchfield, KY 42754

Learn More About RSD and CRPS
New Orleans / Kenner, Louisiana
Kim Gaudet

Kim is available for Phone/Email/Facebook Support

Cajun Angels on Fire
Lafayette, Louisiana
Shreveport CRPS Group
Shreveport, Louisiana
Chronic Pain Support Group
Harrison, Maine
Evelyn and Jane

Meets 1st Thursdays from 6:00 to 7:30pm at the Hospitality Room of The Pines in Ocean Park

Maryland RSD/CRPS Support Group
Frederick, Maryland
Erin McKittrick

Meets the first and third Monday of the month from 1-2:30 pm via Google Meet. To join the support group, please click here to complete the Google form. You will then be added to the email list and will receive the link to the support group.

 

Request to join our closed Facebook Group: facebook.com/groups/MarylandCRPSsupport/. We have a small thriving online community that provides education and support.

 

RSDSA Registration Number: 40147

RSDS Support Group of Southern Maryland Hospital Center
Clinton, Maryland
Arlington Chapter of the American Chronic Pain Association
Arlington, Massachusetts
Cindy Steinberg

At this time the group will only have virtual meetings. Please contact the Support Group leader for dates and times.

RSDS/Chronic Pain Support Group of Grand Rapids
Grand Rapids, Michigan
Cliff Mulder

Email / Phone Support Only | 1259 Diamond NE, Grand Rapids, MI 49505

RSDS/Chronic Pain Support Group of Grand Rapids
Grand Rapids, Michigan
Jean Arp

2446 Eden, SW, Wyoming, MI 49509

Cold Burnings CRPS and Chronic Pain
Muskegon, Michigan
Steph Umlor

Meetings will be the 4th Thursday of the month from 6pm – 7:30pm. Location: Health West, 376 E. Apple Avenue, Conference Room B, Muskegon, Michigan

RSDS/Michigan RSD/CRPS Support Group
Statewide, Michigan

This is a support and information sharing group for people who live in Michigan who have been diagnosed with RSD / CRPS or their immediate family members/caregivers.

Hands Helping Hands
Republic, Minnesota
Patti Truckey

Mail or Phone Support Only | 789 Kloman Avenue, Republic MI 49879

Minnesota RSD Support Group
Savage, Minnesota
Samantha Lademann

Open to everyone with CRPS, affected by or interested in learning about RSD/CRPS. Meets 4th Saturday, noon to 2pm at Savage Public Library (13090 Alabama Ave. S, Savage, MN). We also have periodic Family, Friends and Caregiver support groups separate from the RSD groups. Please contact Samantha for more information.

Minnesota RSD Support Group
Savage, Minnesota
Diane Keil
RSD/CRPS on the Gulf
Diberville, Mississippi
Joanna Blakeney

Meetings temporarily will be held at Joanna’s home: 14150 Millie Street, Diberville, MS

Missouri and Metro East Illinois RSD/CRPS Support
St. Louis, Missouri
Dan Kaatman

Support for individuals in the State of Missouri and Metro East Illinois affected with or by RSD/CRPS a neuroinflammatory
disorder. This is a Facebook-based support group. Please see below for the Facebook link.

Missouri RSD/CRPS Support
Statewide, Missouri
Paula Popeko

This is a place for those who have or those that have loved ones with CRPS/RSD to come for help and support in a safe loving environment. This is an online Facebook Group and will occasionally meet in person at different locations across Missouri.

CRPS/RSD Support Group
Lincoln, Nebraska
Angie Jones

Meetings will be the 2nd Saturday of the month at 10 am. Location: Colonial Heights Apartments Clubhouse in the Tierra Neighborhood in Lincoln.

Chronic Pain Anonymous 12-Step Meeting
Carson City, Nebraska
Chuck

Chronic Pain Anonymous is a 12-Step fellowship of men and women who share their experience, strength and hope with each other so that they may solve their common problem and to help others recover from chronic pain and chronic illness. The only requirement for membership in CPA is a desire to recover from the emotional, physical, and spiritual debilitation of chronic pain and chronic illness and a willingness to help others to do the same. Meets Saturdays at 12pm at BHS Carson Tahoe Regional Health Care, Building B at W Williams St at N Minnesota Rd, Carson City, NV 89702.

Support Group for Teens with Chronic Pain
Nashua, New Hampshire
Kristen McGraw

Meets the 3rd Thursday of each month at the Nashua Library at 20 Court Street, Nashua, NH. The group is professionally facilitated. Kristen also leads a phone group for adults on the 2nd Sunday of each month from 7pm – 8pm Eastern time.

Spofford, New Hampshire Support Group
Spofford, New Hampshire
Living with RSDS, Inc.
Hillsborough, New Jersey
Sharon Weiner

Zoom Meetings are held the first and third Tuesday at 7:30pm. The meeting is open to anyone with CRPS/RSD, family, friends, and others with chronic pain. Professionals can attend upon approval.

Hoboken, NJ Support Group
Hoboken, New Jersey
Kurt Bond

In the Hudson County / NYC area (One 7-minute subway ride from Manhattan, and there are ferries and cabs available)

RSD and You Group of Northern NJ, Inc.
Paterson, New Jersey
Jaclyn Drake

Meets on the 4th Tuesday at 7pm at St. Joseph’s Hospital, Barclay Room at 703 Main St, Paterson

Vernon, NJ Support Group
Vernon, New Jersey
South Jersey Support Group
Voorhees, New Jersey
Sylvia Miller

Meets monthly on the last Thursday of the month from 6:30pm to 8:30pm. Please contact Sylvia for the meeting location and to reserve your place. The meeting is open to CRPS Warriors and their family and friends.

Misery Loves Company CRPS/RSD Support Group
Ballston Spa, New York
Cynthia Mascaro

Meeting will start September 1, 2022. The meetings will be held on Friday at 6pm at Round Lake Library Malta Branch located at 1 Bayberry Drive, Ballston Spa, NY.

CRPS (RSD) Association of NY State
Bellmore, New York
Marsha Rothstein-Laino, RN
Chronic Support Group
Binghamton, New York
Corky Mott

Meets Tuesdays from 10am to 12pm at Denny’s at 4024 Vestal Parkway, Vestal, NY

RSD/CRPS Support Group of Buffalo & WNY
Buffalo, New York
Lynda

Meets 4th Mondays at 7pm. Please note, the Support Group does not meet in May, July or August. Location: St. Paul’s Lutheran Church at 4007 Main Street, Eggertsville, NY

Suffolk County CRPS Support Group
Suffolk County, New York
Irene Dixon

Call for meeting location and time.

CRPS Support Group / Phone Support – New Group
White Plains, New York
Ben Gilbert and Adeepa Singh, MD, FAAPMR

Meetings will be the 2nd Tuesday of the month from 5:30 – 7:00pm at Burke Rehabilitation Hospital’s Conference Room located at 785 Mamaroneck Avenue, Building 8, Room 217. For phone support, please leave a message and calls will be returned on a weekly basis.

CRPS/RSD Support Group
Charlotte, North Carolina
Beth Stillitano

Please visit our website for updates.

Grand Forks Support Group
Grand Forks, North Dakota
RSD Painfree
Cincinnati, Ohio
Cyndi and Patrick Ellis

Meets 3rd Wednesday from 7pm to 8:30pm at Pleasant Ridge Recreation Center’s Blue Room at 5915 Ridge Road, Cincinnati, Ohio 45213. Email us if you would be interested in attending this group.

Columbus Ohio Support Group
Columbus, Ohio
Thomas Stevens

Phone support only

Ohio RSD/CRPS Support Group
Statewide, Ohio
Susan Diamond

The Ohio RSD/CRPS Support Group is a multi-faceted group focused on fundraisers, in-person meetings and providing support across the state via Senate hearings and the Ohio Board of Health.

Dayton and Vandalia Support Group
Dayton, Ohio
Cindy Lowe

Phone support

Ohio's Fire and Ice Angels
North Royalton, Ohio
Lynda Avallone

Meetings are on Sunday from 2:00pm – 4:00pm during warm weather. For meeting information, visit the Facebook Group or call Lynda. Please contact Lynda Avallone for phone and email support.

Mahoning Valley CRPS-RSDS Support Group
Warren, Ohio
Cindi Horkey

Meets 4th Tuesday from 6:30pm to 8pm. Call for location or leave your name and number.

RSD of Northwest Ohio
Statewide, Ohio
Oklahoma RSD/CRPS Support
Oklahoma City, Oklahoma
Ponca City Support Group
Ponca City, Oklahoma
Vonda Goad

Phone support only

RSD/CRPS Support Group
Ashland, Oklahoma
Elisa Friedlander

Southern Oregonians diagnosed and living with RSD/CRPS are free to join this no fee peer support group. For more information on the meetings, please email Elisa.

Eagle Point Support Group
Eagle Point, Oregon
Jennifer Pena

Phone and Email Support

Portland CRPS Support
Portland, Oregon
Federico Aquino

Phone Support

Knock Out Pain
Allentown, Pennsylvania
Pennsylvania Harrisburg Chapter
Camp Hill, Pennsylvania
Thomas Potter

Meets every Tuesday of the Month from 1pm – 3pm at Christ Presbyterian Church located at421 Deerfield Road, Camp Hill, PA

Lycoming County RSD Support Group
Canton, Pennsylvania
A.J. Moyer

Phone and Email Support Only | 16 Carlton St., Canton, PA 17724

Downingtown-Exton Support Group
Downingtown, Pennsylvania
Sheree

Phone support

Green Castle Support Group
Green Castle, Pennsylvania
Cindy

Phone support only

Indiana, PA Support Group
Indiana, Pennsylvania
Jamie Brown

Meets 3rd Thursdays from 6pm to 7pm at Indiana Regional Medical Center in Indiana, PA | You can also contact Mrs. N.J. King (hospital contact) at 724.357.8135

Levittown Support Group
Levittown, Pennsylvania
Kasia Trott

In person meeting will take place the 3rd Wednesday of the Month starting January 17, 2024 at 7 PM, at the Levittown Christian Church, 1481 Frosty Hollow Road, Levittown, PA 19056.

Lewisburg Support Group
Lewisburg, Pennsylvania
Jenny Dye

Phone and Email Support

RSD/CRPS Support Group of Luzerne County
Luzerne County, Pennsylvania
Tammy Tomchak

Phone support only at this time, please check back for updates.

Monongahela Valley Support Group of Southwestern PA
Monongahela, Pennsylvania
Paulette Anderson

Phone and Email Support Only

North Langhorn Support Group
North Langhorn, Pennsylvania
Tess Shore

This group is just starting

RSD Northeast Philly
Philadelphia, Pennsylvania
Danielle Gondos

Our In-person meetings occur every 2nd Sunday of every month from 1-2:30pm at Jefferson Torresdale Hospital’s Cafeteria Conference Room at 10800 Knights Rd, Philadelphia, PA 19114. Please enter the hospital through the main entrance and follow the signs. Parking is Free,, wheelchair are available in their lobby. Patients, newly diagnosed, CRPS mentors, support givers and family members are welcome to attend. We also encouraged attendees you to join our companion Facebook Philly group which is called “Philly area CRPS”, where you will find information such as pre & post meeting information, meeting cancellations, specialist referrals, making new friendships and more.

Scranton/Wilkes-Barre PA Support Group
Scranton/Wilkes-Barre, Pennsylvania
Suzanne O'Toole

Email and phone support only. From November – May 1st you can contact Suzanne at 570.348.9743 and from May – November 1st please call 570.383.0578.

Montgomery County RSD Support Group
Souderton, Pennsylvania
Stephanie Maberry

Meetings will run from September to May. Please reach out for resources, support, and information.

Grupo de apoyo Puerto Rico RSD/CRPS
Country-Wide, Puerto Rico
Mariamgelis Rivera

Adviser on Public Relations for Patients in Puerto Rico and APF Leader Action Network Puerto Rico helping to promote awareness.

Horry County CRPS Group & Surrounding Areas
Myrtle Beach, South Carolina
Kira Edwards

The Horry County & Surrounding Areas CRPS Group meets once a month. We lean on each other for support and have grown into a family along with our support squad.

If you live in Brunswick County, NC, as well as other towns around Horry County, we welcome you to join us.

Sumter Support Group
Sumter, South Carolina
Donna Parker

This support group meets on the third Saturday at 1:30 p.m. at 3785 Blackberry Lane, Lot 7 in Sumter, SC

Aberdeen Support Group
Aberdeen, South Dakota
Brandy Christman

Meetings will be held either on Monday or Tuesday and a time of day will be decided. The meetings will be held at her home on 10 8th Avenue, N.W., Aberdeen, SD 57401.

Reflex Sympathetic Dystrophy & Chronic Pain Support Group Of Eastern Tennessee
Loudon, Tennessee
Suzy Holcomb

Our group can be found on Facebook for regular discussions and periodic Zoom Meetings with valued speakers. We sometimes meet out for lunch as well. Feel free to join in any time!

RSD/CRPS Facebook Support Group
Clarksville, Tennessee
Omega Ann Kimoto

This is a local group with several non-local support members, family members of survivors, friends of survivors, nurses, doctors, physical therapists and members of other RSD/CRPS groups that can help network and share information regarding the latest treatment in their areas. This is a closed group.

Texas Support for RSD/CRPS Hub
Austin, Texas
Mandy Winner

Monthly Group Meetings Around the State / Texas CRPS Peer Support Chat Line 365 | Support is also available via Facebook, email, phone, and in person.

RSD Support Group for all Nations
El Paso, Texas
Olga Quiroz

Meetings will be held at the El Paso Northeast SDA Church located at 6035 Woodrow Bean/Transmountain Drive, El Paso, TX

Houston CRPS Facebook/Twitter Support
Houston, Texas
Amy Vallejo

Houstonians can also engage with the Houston Support Group at twitter.com/HoustonCRPS

Plano RSD Angels – Plano, TX
Plano, Texas
Jaclyn Drexel

If you are interested in attending a support group please contact Jaclyn by email for information. To join the private Facebook group please email Jaclyn.

Texas Phone Support
Statewide, Texas
Vickie Thoma

Telephone and email support only

San Antonio Monthly Support Group
San Antonio, Texas
Intermountain – Layton CRPS Support Group
Layton, Utah
Boyd Eastman, DPT and Jeremiah West, MD

This group does not meet on a monthly basis. If interested in attending a meeting please contact Boyd and he will add you to the email list indicating when the next meeting will be. The location for the meeting is Intermountain Layton Clinic, 2075 University Park Blvd. Layton, UT.

Northern Vermont RSD/CRPS Support Group
Newport, Vermont
BilliJo Ryea

Phone and email support only | Contact us at PO Box 1067, Newport, VT 05855

Washington DC RSD Awareness / Support Group
Chantilly, Virginia
Carolyn McNoldy

Contact Carolyn for phone / email support or join the private Facebook group.

Virginia HUGS for RSD/CRPS Private Facebook Group
Statewide, Virginia
Stephanie Roberts

This is a Facebook group where people whose lives have been impacted by Reflex Sympathetic Dystrophy (RSD) /Complex Regional Pain Syndrome (CRPS) and chronic pain can come for encouragement and emotional support, ask questions, and share ideas and information. This organization will also aid in raising awareness for RSD/CRPS and chronic pain.

Friends Living with RSD/CRPS
Virginia Beach, Virginia
Debbie Holt

Meets 3rd Tuesday from 11am to 1pm

CRPS Seattle
Seattle, Washington
Kevin and Lee Greenan

For people living with RSD/CRPS, their caregivers, friends and loved ones. Our intent is to provide information, support and a forum for discussion for those dealing with this disease. Educating for Awareness on a daily basis is how we find options that will lead us to a cure. One Piece of the puzzle at a time. The meetings are held the 1st Wednesday of every month from 6:30 – 8:00pm Pacific at North Seattle Church, Room 101, 2150 N. 122nd Street, Seattle, WA 98133. Please contact Lee and Kevin if you plan to attend so they have enough chairs, materials and refreshments.

Rising Phoenix – CRPS
Spokane, Washington
Jennifer Ray

Please contact the group leader, Jennifer Ray, via email or phone for details on the support group meetings.

RSD/CRPS WV
Statewide, West Virginia
Northeastern Wisconsin RSD/CRPS Support / Voices Behind The Fire
Green Bay, Wisconsin
Lu Ann Boulanger

Meets the 2nd Tuesday of each month from 6pm – 8pm. Please join us for this patient-led support group. Our goal is to help create a safe place for those diagnosed with RSD/CRPS, to share their journey and to promote family, friends, and caregivers to join us.

Greendale, Wisconsin Support Group
Greendale, Wisconsin
Beverly Kitzke

Phone Support Only | If Beverly doesn’t answer please leave your telephone number and she will return your call.

La Crosse, Wisconsin Support Group
La Crosse, Wisconsin
Kimberly Young

Phone Support Only. To help others who have RSD to realize they are not alone and try to have some relief in the pain.

International Groups

iPain International Pain Foundation Power of Pain Headquarters Our mission is to educate and support the chronic pain community around the world.

International Research Consortium for CRPS
Email: [email protected]

International Research Foundation for RSD/CRPS

 

Australia

Australian RSD/CRPS Support Group
Email: [email protected]

PainAustralia Limited & Additional Resources

The Purple Bucket Foundation Inc.

 

Canada

P.A.R.C. (Promoting Awareness of RSD in Canada)

Pain Canada: Pain Canada is made up of people living with pain and pain organizations from coast to coast. Their partners are leading advocates, researchers, clinical experts, and champions on the issue of chronic pain in Canada.

Calgary CRPS Support Group – Contact: [email protected]

 

New Zealand

Kiwi CRPS
kiwicrps.co.nz
Email: [email protected]

 

South Korea

Korean CRPS Association

 

United Kingdom

Burning Nights CRPS Support – UK

CRPS/RSD Awareness UK