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Living With CRPS/RSD

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CRPS/RSD is a chronic condition, not a life-threatening one. Living with CRPS/RSD offers many challenges to those who are affected by it. Challenges include difficulties with diagnosis, coping strategies after diagnosis, caregiver concerns, differences in the problems faced by adults and youths, insurance, workman’s compensation and other issues.

What is always at the forefront of any discussion of CRPS/RSD is that it is a condition characterized by one of the most severe levels of pain – 42 out of a possible 50 on the McGill University Pain Scale.

But the goal that RSDSA keeps in sight is to help patients function better and live a fulfilling life while living with pain and disability.

A small percentage of those with CRPS/RSD are not able to achieve that objective. Sometimes the result is that they take their own lives. It is important to note that suicides are almost always the result of complex issues beyond the fact of physical pain. But, given this reality, we also make resources available for suicide prevention and aftermath.

For the vast majority of those who live with CRPS/RSD, here at the RSDSA website you can find:

  • A list of symptoms and a check list to help with diagnosis
  • Information and resources for the newly diagnosed
  • Tips and tools for living better with CRPS/RSD
  • Education and information for caregivers
  • Information about new and existing treatments
  • Age-specific Information about living with CRPS/RSD
  • Blog posts on relevant topics
  • Stories from others living with CRPS to offer inspiration and hope

There is always help here to assist in answering your concerns and questions. Please contact us directly if you require further information or have a story to share. Please join the RSDSA Community for updates and our quarterly newsletter!

The experience and impact of having CRPS and the need for early diagnosis & treatment.
Presented by: Three individuals with CRPS and a cargiver talk about the experience of having CRPS. Drs. Getson and Harden talk about the importance of early diagnosis.

CRPS: A Different Approach Extended
Presented by: Philip Getson, DO a CRPS specialist from Marlton, NJ who has treated hundreds of individuals with CRPS throughout his career. He is a member of RSDSA’s Scientific Advisory Committee.

Sean Mackey, MD, PhD
Professor of Anesthesiology at Stanford University.

The experience and impact of having CRPS and the need for early diagnosis & treatment