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chronic pain

Happy Disabiliday – A Letter from A Canadian CRPS Friend

Published on April 25, 2017 under Guest Blogger for RSDSA
This Disabiliday blog was originally featured on Pain Matter's website (Click on the word Pain Matters to see the original article). It was submitted to us by Paula to share with our wonderful #TheTuesdayBurn community. We hope this helps inspire all those living with disabilities, especially CRPS/RSD. "You may remember Paula Orecklin, the inspirational Canadian CRPS patient whom I wrote about in yesterday’s blog post: Let’s Talk To An Inspirational Young Canadian Woman, Paula Orecklin, About CRPS, Sativex, Physiotherapy and Neuroplasticity (There are additional References and Links at the end of this blog post.) This week, Paula sent me a beautiful letter to share with all of you (see below).  Paula’s letter contains a very important message for everyone, on behalf of all people living…
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Ketamine Treatment Centers- Carolyn’s CRPS Treatment Story

Published on March 28, 2017 under RSDS General Info
Please meet Carolyn! Carolyn has been suffering with CRPS for many years now and we are so happy to share her success story.  After undergoing Ketamine infusions at Ketamine Treatment Centers, Carolyn has had a significant improvement in her quality of life and she was gracious enough to share her story and experience with us!     For any questions, please call us at 888-566-8774 or email us at info@ktcpartnership.com Click here to visit Ketamine Treatment Centers' Website. See you in Nashville!!!!   View Carolyn's Ketamine Treatment Centers Story Below: https://www.youtube.com/watch?v=VVgZVvNU3pw
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Chronic Pain and Family Responsiveness

Published on March 7, 2017 under Guest Blogger for RSDSA
By Guest Blogger: Laura Lustig, PhD Originally Titled: "Chronic Pain And Family Responsiveness: Stories Of Courage In The Face Of Unimagined Change." There are many types of chronic pain experienced by people all over the world, many of which have been well recognized and have treatment regimens that are prescribed regularly by doctors and allied professionals. To categorize the pain of Reflex Sympathetic Dystrophy (alternately referred to as Complex Regional Pain Syndrome) as chronic pain is almost a disservice. To begin with, people suffering from this syndrome go through indescribable pain that can strike without warning and become unmanageable. Then, there is the agony of waiting for someone to diagnose it correctly because, unlike so many other types of chronic…
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How RSD Potentially Stole My Dreams- Cope With RSD/CRPS

Published on February 21, 2017 under Guest Blogger for RSDSA
By Guest Blogger Tatiana Being diagnosed with RSD/CRPS is challenging at any age. Being young and going through the challenges of school can make it hard to cope for children and teenagers. Tatiana writes about her experience being diagnosed with RSD/CRPS, her stolen dreams, and how she has ultimately learned how to cope. When I was a young girl, only five years old, I had crazy dreams. Every single time someone asked me what I wanted to be when I grew up, I’d smile, and tell them that I was going to be a dancer. A ballet dancer, to be specific, though I often dreamed of ballroom dancing. Getting to wear a ballgown, heels, and having a handsome gentleman’s hands…
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Music & Me- My Way of Coping with CRPS Pain

Published on January 31, 2017 under Opinion
By Samantha Barrett, Special Events Coordinator We all have our ways of coping with CRPS pain. I've been using music to get me through everything in my life, especially CRPS. It's time for me to share with you. For as long as I can remember, I’ve been singing along to music, making up my own songs, and dancing (even in a wheelchair) to anything and everything that comes on the radio. For a vast majority of my life, I was a dancer, a dance teacher, and a dance team coach. Everyone in my family played an instrument or could sing (not me though, I can’t get my voice to cooperate). I’ve always been on more of the A&R/music business side.…
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CRPS and Mental Health- Stress and Other Elements

Published on November 22, 2016 under Guest Blogger for RSDSA
By Roderick Borrie, Ph.D.   The last thing Penny expected was to be seeking help from a psychologist.  She had always been a fiercely independent person who could take on most problems and solve them on her own. Penny was the one who took care of others, not the other way around. An accident at work in January, 2015 changed all that. After some convalescing and physical therapy, Penny assumed that she would be able to bounce back to her old self. But that didn’t happen. At first she was merely frustrated by the tenacity of the pain in her neck and shoulder, but it evolved into fear as her pain worsened and spread into her left arm and down…
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Calmare Scrambler Therapy- When Traditional CRPS Treatments Don’t Work

Published on October 4, 2016 under Guest Blogger for RSDSA
By Michael J. Cooney, D.C. Clinical Director | Calmare Therapy NJ USA. Originally Titled: Calmare Scrambler Therapy- When Traditional CRPS Medications & Treatments Don't Work My 30-year career has revolved around treating pain. Since I was a kid, I was always trying to “fix” everybody. In high school, I played on the tennis team and was the self-designated team doctor. Decades later, Dr. Kelly and I grew frustrated that we could not lessen the pain of some of our treatment and medication-resistant patients at our clinic located just outside New York City. So we went in search of a non-invasive pain treatment to help the patients dealing with severe neuropathic pain and we discovered Calmare. We introduced this technology in…
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A Measured Approach to Pain- Help People with Chronic Pain

Published on September 13, 2016 under Guest Blogger for RSDSA
By Guest Blogger Elisa Friedlander Written for the Huffington Post initially titled: A Measure Approach to Pain: Tools to Help Patients and Doctors "There’s one question I’ve been asked more than any other in my adult life. On a recent visit to the emergency room, I heard it once again. My pain was so intense I could hardly tolerate the standard intake procedures: getting my blood pressure taken and explaining why I was there was beyond me. When I told the admitting nurse about my symptoms, she followed up with those overly familiar words. “What’s your pain level on a scale of 1-10?” I couldn’t do it. It might have been the feeling of scalding hot knives piercing my body…
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A Journey with CRPS/RSD Through the Gift of Music

Published on June 7, 2016 under Guest Blogger for RSDSA
  By Guest Blogger Shannon L. Everyone has that one thing that gets them through their CRPS/RSD battle. For Shannon, it is music. Read her story below. “WOW” is all I can say as I sit back and reflect on the past 26.5 years in dealing with RSD (yes, I know the correct term is CRPS but I still call it RSD).  In the midst of all the changes in my life as a result of RSD, the one constant in my life has been my music and how it has helped me deal with the pain. I have been wondering how to even start this blog, as so much has happened over 26.5 years - all the doctor appointments,…
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But I Still Look Fine- Living with Chronic Pain/CRPS

Published on May 10, 2016 under Guest Blogger for RSDSA
By Guest Blogger Tara White, RN, (Disabled)   I used to be a very active woman. I proudly served as a corpsman in the United States Navy for five years. I went to Nursing School and loved working in Obstetrics for twenty years. I climbed the difficult back of Half Dome in Yosemite National Park twice, and felt alive while cycling many hundreds of miles a year. I loved training with weights, power walking, skiing, kayaking, yoga, and many other outdoor activities.   Like many other women, I made a very poor choice of a first husband, though got a wonderful daughter out of the deal. Raising her by myself with microscopic child support but tremendous family support, I’ve watched…
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