With your support, RSDSA has been able to accomplish these 2021 Initiatives!
Provided $7920 to individuals with CRPS who received emergency funding to pay for heat and other utilities, rent, durable medical equipment, travel expenses to obtain medical care and more
Sponsored our annual 4-day virtual conference attended by thousands of people with CRPS, caregivers, and medical professionals
Funded an international study to investigate pain – a role for cross-talk between skin fibroblasts and the nociceptive system in skin of patients with Complex Regional Pain Syndrome (CRPS)” ($235 880) submitted by PD Dr. Astrid Jüngel and Prof. Dr. med. et Dr. phil. Florian Brunner, Balgrist University Hospital and University Hospital Zurich
Continued publication of a monthly digital newsletter, In Rare Form for the CRPS community which is sent to 21400 emails with an open rate of 32%
Sponsored thirteen Facebook Live presentations which highlighted CRPS research, treatment, and many interventions to manage CRPS. Viewed more than 33,000 times
Launched our second virtual walk which attracted 57 teams and participants from 34 states and 3 countries
Answered more than 5000 emails and phone calls which poured into our office. Our compassionate staff answered questions, provided information packets and a list of knowledgeable health professionals who understand and treat CRPS
Educated and supported the CRPS community on our Facebook page with 210 posts which reached 633,233 people
RSDSA Social Numbers
Facebook – 26,248 followers
We successfully marketed the Longest Day of Golf, our new digital newsletter, our second virtual conference, our second virtual walk, networking nights, and game nights via Facebook, which has our largest audience.
Twitter – 4,975 followers
We hosted Rare Disease Week and had a live Twitter chat that participants were able to join in order to meet others with CRPS.
We successfully marketed the Longest Day of Golf, our new digital newsletter, our first virtual conference, our first virtual walk, networking nights, and game nights via Twitter as well.
Instagram – 3,003 followers
Continued to post recaps of Facebook Lives on Instagram
YouTube – 6,356 subscribers
We gained 1,464 subscribers last year and have over 1 million views