15 Tips For Healthcare Providers Treating CRPS/RSD

Published on December 5, 2017 under Guest Blogger for RSDSA
By Guest Blogger Melissa Wardlaw As a patient with CRPS/RSD, I am lucky to have a pain-management physician I have been partnered with since 2004 whom I trust, who trusts me and who understands my complex medical issues. As I have visited many physicians and other specialists on my medical journey before and after partnering with him, clearly this hasn’t always been the case! Recently I spoke to an audience of healthcare professionals at a healthcare conference, and left them with this takeaway of some helpful treatment tips I have comprised in all my years as a CRPS/RSD, chronic illness & pain patient. 1. Patients with CRPS/RSD are on individual journeys and every patient is different! Even though most patients…
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Bonus Blog- The Young Chronicle: Ophelia

Published on December 1, 2017 under Guest Blogger for RSDSA
By Ashley Epping Ophelia is a 19-year-old who developed Complex Regional Pain Syndrome at only nine years old, is from Ontario Canada and uses the pronouns they/them/their. They were originally told by a doctor that they were only experiencing growing pains. They reflected on the experience saying “I always knew it was not growing pains because growing pains do not put you in a wheelchair”. Ophelia’s pain started in both knees and has now spread to their entire body. In 2013 they went into remission after a stay at the Children’s Hospital of Philadelphia in their chronic pain program; but the pain returned a year later and it came back full force.   Currently Ophelia spends a lot of time…
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CRPS Awareness Day 30: Awareness Must Become Our 365 Day Activity

Published on November 30, 2017 under Call to Action
By Jim Broatch, MSW, Executive Vice President, Director RSDSA Executive Vice President and Director of RSDSA, Jim Broatch, details why it is crucial that we continue our CRPS awareness efforts beyond November. Awareness is a 365-day effort that we must push forward with in order to make positive change in the world of chronic pain. First, a standing ovation for all who participated in the fourth Annual Color the World Orange (please visit their page by clicking here). It was an outstanding success and is growing exponentially each year. Billboards in Times Square, New York were just one of more than 100 locations in six countries that turned orange for Color The World Orange. Other locations included Niagara Falls and…
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CRPS Awareness Day 29: Restaurateur Gets CRPS

Published on November 29, 2017 under Guest Blogger for RSDSA
By An Anonymous Writer My life truly changed when I was 23 years old. As I look back, I realize that I was in my golden years. I just completed my bachelors in Food Service Management from Johnson and Wales University. Even at a young age, I was interested in food so I decided to pursue my passion and turn it into a career. As a manager for Darden Restaurants, I led the region in guest services while also teaching other restaurants what practices I followed to ensure a great guest experience. I worked ten hour days, five days a week, and was on my feet about 90 percent of the time. It didn't bother me though. I had a…
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CRPS Awareness Day 28: Neuromodulation and DRG

Published on November 28, 2017 under Guest Blogger for RSDSA
By Dr. Timothy Deer CRPS/RSD is a debilitating painful condition affecting thousands of patients.  Chronic pain as a result of CRPS not only impacts the patient, but the patient’s family and loved ones as well.  Many are forced to give up work or other meaningful life and family activities due to the ongoing persistent pain.  Many CRPS patients continue to suffer extreme pain and limited function in spite of receiving the correct diagnosis and appropriate care. Treatment guidelines for CRPS exist and have been widely published and accepted in the national and international medical community.  Those guidelines start with conservative care including physical therapy, nerve-pain medications, supportive counseling, and in some cases nerve blocks.  For patients not responding to those…
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CRPS Awareness Day 27: CRPS, Function, and Rehabilitation

Published on November 27, 2017 under Guest Blogger for RSDSA
By Michael Sullivan How important is movement to our health and wellbeing?  A dark lesson starting in medieval times and running into the mid-1800s is provided by the numerous inquisitions, the most famous being the Spanish Inquisition.   For over 700 years torture was used to induce people to confess to their heresies, recant their heathen ways and profess their faith in God.   Torture was used to speed up the process.  One of the most effective means of torture was the use of constraints to restrict a person’s ability to move.  Stocks, barrels, metal cages, ropes and chains were used to prevent movement. The tighter a person is bound, the less they can move, the greater the pain.  Complete restriction of…
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CRPS Awareness Day 26: The Importance of a Walk

Published on November 26, 2017 under Events
By Guest Blogger Beth Seickel Many of us attend or get involved with a walk to support a family member or friend challenged by a specific diagnosis or condition hoping the fundraiser will help to create change. So, how can a RSDSA event be any different? Who participates? What can one expect? Where is it held? Do you have to walk to attend? Is it accessible?   Simply stated, RSDSA’s Long Island Annual CRPS/RSD Awareness Walks reflects their mission statement by creating: Awareness and Advocacy Education and Resources Comradery and Networking Validation and Support Hope and Encouragement   In 2016, RSDSA’s 1stAnnual Long Island CRPS/RSD Walk hosted 225 kids and adults, raising $25,000 despite the heat and humidity at Eisenhower…
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CRPS Awareness Day 25: When They Laugh

Published on November 25, 2017 under Guest Blogger for RSDSA
By Guest Blogger Sarah Bigham This blog was originally featured on The Idea Crucible (click here) and featured this thank you: "Thanks to Lori Leitzel Rice for inviting me to contribute my patient-focused perspective on practitioner communication. Lori is my CranioSacral massage therapist, and a dear friend who has seen me through the worst times of my life. I am forever grateful for CranioSacral techniques as well as Lori’s wonderful, listening hands." My name is Sarah and I am a chronic pain warrior. I wish a support group existed for people like me, held in a location down the block (car travel makes me flare) with squishy furniture (the only kind I can sit on comfortably, and even then for…
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CRPS Awareness Day 24: Sharing My Skills and Working

Published on November 24, 2017 under Guest Blogger for RSDSA
By Guest Blogger Kelly Hodgkins Some people with CRPS have a difficult time discovering what they can do while living in pain. Guest blogger Kelly found a way to share her skill set in a way that is convenient for her and that works with their pain. Those who can't do, teach! See how she is working here. Working with CRPS is a tussle between my goals and deadlines and what my body will allow me to accomplish each day. Every morning I assess myself and discuss with my business partner, who fortunately is my mum, what I can get done and we reprioritize the day or week’s activities. This is a vast improvement from where I was when my…
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CRPS Awareness Day 23: Why We Are Thankful Despite CRPS

Published on November 23, 2017 under RSDS General Info
Compiled by Samantha Anderson Thanksgiving can be a particularly difficult time for people living with CRPS. The holidays in general are stressful. Whether you are hosting dinner at your house or have to travel to a relative’s house, it can be stressful. However, Thanksgiving is a wonderful part of the year, as we get to reflect on why we are thankful. Sometimes, it can be difficult to be thankful when you are living with the pain associated with CRPS. But, there is always at least one reason. We asked members of our wonderful RSDSA community to let us know what they are thankful for this year. We received an overwhelming amount of responses. After reviewing everyone’s amazing submissions, we wanted…
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