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Sheryl’s HOPE

Published on October 3, 2018 under RSDS General Info
By Sheryl Rehs This is a story about adversity and fear. It’s a story about emotional and physical pain, but ultimately, it’s a story about acceptance and hope. Hi! My name is Sheryl and I’m 56 years old. I’ve lived in Tucson Arizona since 2005. I moved to Tucson leaving my entire family in New York due to medical reasons. I was married for 23 years, have two incredible children, ran my own company, and was truly overwhelmed with stress. In 2005, I was diagnosed with Multiple Sclerosis (MS). For 3 years I had horrific brain fog and fatigue. Divorced and remarried, I was a triathlete at that time and was in the best shape of my life!  For treatment,…
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Another Rider for RSDSA

Published on September 26, 2018 under RSDS General Info
By James W. Broatch, RSDSA Executive Vice President, Director In October, a friend of RSDSA, Tatum Bunnett will be embarking on a bike ride across our country to raise CRPS awareness and funds for RSDSA. You can donate on her FirstGiving page to help her. This is what Tatum plans: "I am a recent high school graduate who was diagnosed with CRPS when I was in the 5th grade. I was born with birth defects in both feet which caused CRPS, I battled CRPS for 3 years. After months and months of therapy, I was able to begin living a more normal lifestyle. While I am incredibly lucky to be able to control my CRPS and live normally again, it…
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Fifth Annual Color The World Orange for CRPS/RSD Awareness is Nov. 5

Published on September 19, 2018 under RSDS General Info
By The Color The World Orange Team Get your orange ready! The fifth-annual Color The World Orange for Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy Awareness is November 5. Buildings, bridges and landmarks around the world will be lit orange on Nov. 5 including Niagara Falls, the Helmsley Building in New York, the Wrigley Building in Chicago, the CN Tower in Toronto, the Blackpool Tower in England and many more! In addition, a number of US politicians have granted proclamations recognizing Color The World Orange and November as CRPS/RSD Awareness Month. The easiest way to get involved is to wear orange and post a picture to social media with the hashtag: #CRPSORANGEDAY. Make sure to ask friends, family, support groups and…
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Traversing the Minefields

Published on September 5, 2018 under RSDS General Info
By Linda Young Like a purveyor of fine wine or food, I am a purveyor of a neurological disorder that has impeded my body but not sacrificed my mind or soul for the past eight years. CRPS (Complex Regional Pain Syndrome) or RSD (Reflex Sympathetic Dystrophy) as it is commonly referred to is worthy of the acronym “CRAPS!” One day you are waltzing through life easily and gracefully and all of a sudden you wake up one morning with a leg that is blue and mottled. No doctor is able to diagnose the problem as you rotate between all of them. First, there is the internist, the orthopedist, then the neurologist, the rheumatologist, and the pain specialist. Everything is ending…
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Our Groundbreaking Non-invasive Approach to CRPS

Published on August 29, 2018 under RSDS General Info
By: Dr. Katinka van der Merwe Author of “Putting Out the Fire: New Hope for RSD/CRPS”. She practices in Fayetteville, Arkansas. Find her clinic on Facebook: https://m.facebook.com/TheNeurologicReliefCenter/?tsid=0.4504157920998121&source=result Telephone: 1 (479) 304-8202 I set out on a journey eight years ago that made treating the nervous systems of those suffering from CRPS (Complex Regional Pain Syndrome) not only a part of my life as a chiropractic physician, but my passion and my mission. My first CRPS patient was a man named Carlos, who suffered from full body CRPS. This case revealed to me how complicated but also rewarding treating patients who suffer from CRPS can be. I have kept in touch with Carlos through the years, and I’m delighted to say that…
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Tracey’s Story

Published on August 22, 2018 under RSDS General Info
By:  Tracey Morales Hi, my name is Tracey, I'm 48-years-old, married and have two daughters. I've had RSD for 21 years. My RSD story starts in Jan 1998. A toy V-Tech computer fell on my left foot, fracturing two toes and crushing the MT joints (toe knuckles). After two weeks, I knew something was wrong so I saw a podiatrist, who by the 2nd appointment diagnosed me with RSD. He sent me to a vascular surgeon who confirmed the diagnosis. I went through 6 blocks and a 6-day epidural over 6 weeks.  All worked, but wore off within 24 hours or less. But I found the RSD came back fighting, worse after each treatment. My leg was now on fire, but…
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Jennifer’s Legacy

Published on August 1, 2018 under RSDS General Info
James W. Broatch, RSDSA’s Executive Vice President, Director I want to introduce you to a special book which was recently published as a testimony to Jennifer Abramson’s brief but wonderful and impactful life. Jennifer lived only 31 years. However, her wisdom and can-do spirit live on in JEN’S Gift, a book which is filled with Jen’s poems, insights, and quotes that touched her soul. The posts were uploaded to her Instagram account lovingly titled Goal2Soul (Sending Out Unlimited Love).  Annie Abramson, Jen’s mother writes, this is Jen’s gift to us. Every page reflects the humor, wisdom and feelings we need to help us appreciate our own journey in life…May her gift inspire you and may you too be touched by…
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Minimizing Pain

Published on July 25, 2018 under RSDS General Info
By:  James W. Broatch. MSW. RSDSA Executive Vice President, Director Earlier this summer, RSDSA conducted a short survey of the RSDSA community asking individuals with Complex Regional Pain Syndrome (CRPS) what practices, medications, i.e. what is helping you to minimize your CRPS.  In other words, as John Lennon said, “what is getting you thru the night?”  As CRPS is the only medical condition with complex as its first word, a caution, whatever works for someone else may not be helpful to you. We received many, many replies.  I’m sending a warm thank you to all who participated. Today, I would like to share a few responses. Email me at info@rsds.org with minimizing pain in the subject line and I’ll send…
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Walking the fire. My journey to pain management living with CRPS

Published on July 11, 2018 under RSDS General Info
By Roy N Greenwood I was diagnosed with CRPS in my right leg in late 1996, before the internet had really become a thing and most research was still done at the local public library. A simple slip and fall while working on a cold and rainy night back in December of 1995 changed my life forever. I found out quickly that going through the Worker’s comp system by itself was going to be a total an abomination, but doing it while suffering through the first stages of CRPS when early intervention is critical, would be even more distressing. At first, the insurance refused to accept the diagnosis or even pay for any of the treatments or durable medical equipment.…
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24 Tips For People With CRPS

Published on June 27, 2018 under Guest Blogger for RSDSA
By Guest Blogger Jennifer Ginsburg Jennifer has been living with CRPS for 24 years. In her 24 years with Complex Regional Pain Syndrome, she has learned a lot about herself and about the nature of CRPS. How can her experience help you? She created 24 tips to help you! As I just entered my 24th year with Complex Regional Pain Syndrome, I’ve realized I lived with this disease for well over half of my life.   I’ve had the “benefit” of being a child with CRPS and just wanting to move on in life.  I’ve suffered the “disadvantages” too and had to end my career in my mid-thirties.   My CRPS gave me 8 glorious years of remission.  It’s also…
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