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New U.S. Clinical Trial of Neridronate

Published on April 13, 2015 under Research and Development
  In the last fifteen years, only two randomized, placebo-controlled trials for CRPS have been conducted in the United States. Sadly, both were unsuccessful. Our optimism is rising, however, with the U.S. Food and Drug Administration’s declaration in 2014 that Complex Regional Pain Syndrome (CRPS), also known as Reflex Sympathetic Dystrophy (RSD), is officially a rare disease. The designation is a strong catalyst for new drug development. Developers qualify for clinical trial tax incentives, may sell the drug without competition for seven years, and may enroll fewer patients in a trial (as recruiting is more difficult in small populations). Four pharmaceutical companies are now considering clinical trials for CRPS in the United States. The first out of the gates is…
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Camp for Courageous Kids!!!!

Published on April 2, 2015 under Bully Free Zone
Do you remember sitting around the campfire and signing camp songs, roasting marshmallows and giggling with your new friends? It's your first day of summer camp and you are so excited to be there, to join in all the activities:  archery, bowling, arts & crafts, horseback riding, etc. Fast forward 25 years to being a Mom and/or Dad whose child who lives in chronic pain - there are no summer camps for your child because he/she is "too complex." But now there is a SUMMER CAMP for children living in chronic pain: THE CENTER FOR COURAGEOUS KIDS in Scottsville, Kentucky. RSDSA together with the US Pain Foundation and The Coalition Against Pediatric Pain (TCAPP) is sponsoring a camp July 14-17,…
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RSDSA launches new, user-friendly website and blog to help the CRPS Community

Published on February 8, 2015 under RSDS General Info
Welcome to RSDSA’s new website and blog. We’ve updated our presence on the web in order to better serve the CRPS/RSD community. The new website is very user friendly and easy to navigate. The idea is to help you quickly find the information, tools, and strategies you need to understand the diagnosis of and treatments for CRPS -- and how to live well despite having this condition. For those visitors who don’t know about us or about CRPS/RSD, RSDSA is an international not-for-profit organization based in Milford, Conn. Our mission for the last 30+ years is to provide support, education, and hope to all those affected by CRPS/RSD while we drive the search for better treatment options and a cure.…
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