CRPS Wedding Chronicles: The Dress

Published on May 24, 2016 under Stories of Hope
By Samantha Barrett, Special Events Coordinator Wedding Dress Shopping with CRPS It’s been a bit since I wrote about wedding planning with CRPS. But let me tell you, a lot has been going on behind the scenes. You think that starting to plan almost two years in advance would be enough, but obstacles do come up. If you want to read about the proposal, click here. If you want to read about how I picked my venue, click here. Before we delve into wedding dress shopping, I wanted to say something. Just because you have CRPS or your significant other has CRPS doesn’t mean you can’t get married and live out your fairy tale. CRPS is a challenge, I would…
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The True Definition of a CRPS “Warrior”

Published on May 17, 2016 under Guest Blogger for RSDSA
  By Anna Evenosky, Frequent Contributor What is the true definition of a CRPS Warrior? We refer to ourselves all the time as “CRPS Warriors.” Although, what does it truly mean to be a warrior? Warrior is defined as, a brave or experienced soldier or fighter. So yes, we do fit under this definition considering every day we have no choice but to fight. We fight to keep our function and fight to keep our spirits bright and alive. Recently, I have had endless things go wrong for me. On top of Complex Regional Pain Syndrome (CRPS), I was diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS), my depression came on full force, and my anxiety on how I will go…
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But I Still Look Fine- Living with Chronic Pain/CRPS

Published on May 10, 2016 under Guest Blogger for RSDSA
By Guest Blogger Tara White, RN, (Disabled)   I used to be a very active woman. I proudly served as a corpsman in the United States Navy for five years. I went to Nursing School and loved working in Obstetrics for twenty years. I climbed the difficult back of Half Dome in Yosemite National Park twice, and felt alive while cycling many hundreds of miles a year. I loved training with weights, power walking, skiing, kayaking, yoga, and many other outdoor activities.   Like many other women, I made a very poor choice of a first husband, though got a wonderful daughter out of the deal. Raising her by myself with microscopic child support but tremendous family support, I’ve watched…
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My Journey Back to Health: Barbara Wall and RSD

Published on May 3, 2016 under Guest Blogger for RSDSA
    By Guest Blogger Barbara Wall, Power Over Pain of Arkansas (Note: This is a success story from someone with RSD/CRPS that saw  Dr. Katinka van der Merwe. To read our article on Dr. Katinka van der Merwe's approach, click here). I was living life and enjoying all things around me. I did not feel that I took much of anything for granted. In 2005, I suffered a severe injury to my cervical spine (broken neck) as well as other injuries. As if dealing with a broken neck was not enough I received the diagnosis of Reflex Sympathetic Dystrophy (RSD), today known as Complex Regional Pain Syndrome (CRPS). I had the opportunity to practice as a registered nurse for twenty…
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Trying with CRPS: What Do You Do?

Published on April 26, 2016 under Guest Blogger for RSDSA
     By Guest Blogger Autumn Strand 687 days ago I was robbed. Nothing of any monetary value was taken but something much more priceless was: my health. When you think about the value of things and what they mean to you, I believe that one's health is often overlooked. That is, until it isn't anymore. Before I fell and got RSD/CRPS, I was a college student studying journalism at the University of South Florida and I loved it. It was challenging in a way that took me completely out of my comfort zone, made me think about things with a different outlook and was the most difficult thing I have ever done but I really thrived on it because…
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DRG Stimulation: The Breakthrough CRPS Treatment Has Finally Arrived in the United States

Published on April 19, 2016 under Guest Blogger for RSDSA
By Corey W. Hunter, MD Most patients with CRPS can attest to the fact that many of the existing treatments for it are extremely limited.  Recently, Ketamine moved into the spotlight and gave physicians and patients, alike, a great deal of hope that we were getting closer to an answer.  Sadly, the data has been mediocre and insurance coverage remains a problem.  Fortunately, there has been a substantial breakthrough in the understanding of CRPS and how to better treat it.   The dorsal root ganglion (DRG) is a small bundle of neurons located just outside the spinal cord.  Previously, the DRG was believed to be a passive structure with no real involvement in creating or maintaining neuropathic pain.  New evidence,…
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Putting Out the Fire: A Brand New Approach to Treating RSD/CRPS

Published on April 12, 2016 under Guest Blogger for RSDSA
By Guest Blogger Dr. Katinka van der Merwe Visit the Spero Clinic for more information Dr. Katinka van der Merwe grew up in South Africa before immigrating to the United States when she was twenty. She was formally trained as a chiropractor.  She received her degree in 1999 from Parker College of Chiropractic in Dallas, TX. Dr. Katinka has since expanded her coursework in Neurology, Biological Medicine, and Junctional neurology, focusing on helping complicated and 'hopeless' neurologic cases, using cutting edge techniques that focus on restoring proper junction and balance to the Central Nervous System.  Dr. Katinka is qualified as a Quantum Neurologist and has also studied under Dr. Thomas Rau, MD, clinical director of the world famous Paracelsus clinic…
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CRPS Wedding Chronicles: Venue Hunting

Published on April 5, 2016 under Stories of Hope
By Samantha Barrett, Special Events Coordinator Last week, you were able to read about a bit of my engagement story. I got engaged in October and we instantly started planning (hey, I’m an event coordinator by trade, it was only natural). We signed up for all of the wedding planning websites, bought a giant wedding planning binder, and started keeping a wedding planning idea notebook. So now it's time for the next story in the CRPS Wedding Chronicles! Since we’ve been together for almost nine years, we’ve talked about some of our wedding details before. Our colors are purple and silver, our theme is Beauty and the Beast, our bridal party was selected instantly, and our potential vendor list was…
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CRPS Wedding Chronicles- The Engagement

Published on March 29, 2016 under blog
By Samantha Barrett, Special Events Coordinator   In 2015, I had one of my worst CRPS flare ups, thanks to a dislocation from EDS (Ehlers-Danlos Syndrome). It was scary to me because it was the one limb I had not experienced pain in. But, it happened and I was in a wheelchair. I fought my way out of the wheelchair and back to my zebra print cane after a few months. I was ultimately used to flare ups at this point, as I was nine years into my diagnosis with CRPS. What did I do when I was able to move again? I went to a renaissance fair with my boyfriend and a group of friends. I had been looking…
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How My CRPS Pain Plot Twist Changed My Life

Published on March 23, 2016 under Guest Blogger for RSDSA
By Guest Blogger Audrey Johns I came across this meme on Facebook this morning and some emotions (both good and bad) came flooding back from yesterday. I have a disease called CRPS, a painful nerve disease that makes everyday a new struggle… heck I’m writing this to you from my bed, atop my 4 inch memory foam mattress pad, the only place I can be when in extreme pain. Yesterday I was working with a new pilates instructor, I was exclaiming how wonderful it was to feel pain from exercising, not CRPS pain but pain that was positive and that I knew was making me stronger. She did not understand, I had given her some guidelines before we started like…
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