An Update on the Walk to Conquer Pain

Written by Samantha Barrett for the RSDSA blog. The Walk to Conquer Pain kicked off this past Saturday. It grew even more over the weekend. I love seeing how much this walk grows every day. I wanted to just clarify a few things for everyone. Since this is a new website and event, I am learning as we go as well. To sign up for the walk you can go to: https://walk-to-conquer-pain.everydayhero.com/us/get-started. This will create your fundraising page that you can share online through email or social media. All you have to do is copy the web address at the top of the page. It is similar to a FirstGiving page. If you would like a template of an email/post…continue reading

Color The World Orange™ for CRPS

Join us to Color The World Orange™ for CRPS/RSD Awareness on Nov. 2 By The Color The World Orange™ Team   Color The World Orange™ is almost here and we need your support!   An annual event held the first Monday of November to spread awareness of complex regional pain syndrome (CRPS), also known as reflex sympathetic dystrophy (RSD), on Nov. 2 Color The World Orange™ supporters will be wearing orange and hosting events to spread awareness of CRPS/RSD, as well as raising funds to support research of this debilitating condition.   To have the biggest impact, we need everyone in the CRPS/RSD community to get involved.   The easiest way to participate is to wear orange – a ribbon,…continue reading

7 Reasons to Try Qi Gong for RSD/CRPS

By Elizabeth Lane Ok maybe 8.  I’m adding one.  It’s FREE.  I should say that usually you must pay to have a teacher show you the form (which is often the cost of one massage or acupuncture treatment).  Then you have the tools to help yourself whenever you need it. For FREE.  For a LIFETIME.  But I do know there are podcasts on itunes as well if you want to try to go completely cost-free. It’s almost unbelievable, right? No, i am over the FREE part.  Actually, I’m not.  That still excites me.  But what I am getting at is how a form of moving meditation can alleviate pain and so many symptoms. Here are 7 benefits of qi gong…continue reading

High four Tips To put in writing A Artistic Coursework

High four Tips To put in writing A Artistic Coursework Have you ever heard about creative producing coursework? If no, then you definitely might probably inquire to jot down it by your professor. Artistic composing coursework aims composing for the specified team of folks or crafting for your described reason. Although it allows producing inside of a liberal fashion, but learners must have to stick to some specific guidelines for making an item resourceful and practical. Subsequent tend to be the four totally different recommendations of writing creative coursework, so let us use a look and feel at them: A narrative design coursework will require telling a story in the perception of 1 or more people. Also, it includes a…continue reading

My Story of Living with RSD And I’m Sticking To It

My Story of Living with RSD And I'm Sticking To It   After being diagnosed with RSD in 1997, my career had been forfeited and replaced with playing the roles of researcher, advocate, physician and pharmacist...as I was now a Professional Patient. The information on RSD was as abundant as it was scarce; so little was truly known about how to physiologically treat this baffling condition, yet the plethora of universal symptoms, suffering and damage was undeniable. RSD was isolating and lonely, yet I was not alone. Fortunately, by connecting and subscribing to the only two RSD organization/groups available (which, back in the day, was pre-social media and hard copy newsletters), I found others who were at a similar level…continue reading

CCK- We Feel So Good: A Reflection of Our Experience at the Center for Courageous Kids in Scottsville, Kentucky

By Samantha Barrett, RSDSA's Special Events Coordinator I have a confession to make- I have never been to summer camp. Or, at least I hadn’t experienced camp until this past week when I went to the Center for Courageous Kids, where there was a week for pediatric pain. This was made possible by a collaboration between The Coalition Against Pediatric Pain, RSDSA, U.S. Pain Foundation, Rock Out to Knock Out RSD, and of course The Center for Courageous Kids. It is amazing what we can do when we all work together. I was able to adventure to Kentucky to represent RSDSA at this camp and had some fun of my own! The children and their families were able to partake…continue reading

Easy Ways to Give to a Charity

By Samantha Barrett, RSDSA’s Special Events Fundraiser A question that we get frequently is: “How can I give to the community?” There are plenty of very easy ways to give back that can be a part of things you do every day! These methods don’t just apply to RSDSA, but to several different charities and causes. Goodsearch.com is your new best friend (http://www.goodsearch.com)!    Google is running our world, but GoodSearch will get you the same results, all while donating to charity! Go to the website and click “Find A Cause to Support.”  You can then search for your favorite cause (including RSDSA). Once you select the cause, you can sign in with Facebook or with an email address. Then, happy…continue reading

Current and Future RSDSA Initiatives on Behalf of the RSDSA Community

Current and Future RSDSA Initiatives on Behalf of the RSDSA Community By Jim Broatch, RSDSA's Executive Vice President, Director This month, RSDSA is partnering with The Coalition Against Pediatric Pain and The US Pain Foundation to co-sponsor a free camp for children living in chronic pain: THE CENTER FOR COURAGEOUS KIDS in Scottsville, Kentucky. The camp is July 14-17, 2015 for children ages 7-17. The goals of the summer camp are FUN, FUN, & FUN!!!! It is the first time we have ever found a camp for children living in pain. The camp is totally FREE for all participants and a parent/guardian who will stay at the camp with his/her child. Please go to www.tcapp.org and fill out an application…continue reading

Developing CRPS/RSD and Finding Hope

Hi there! My name is Katie and I’m the blogger behind Upcycled Treasures and A Handcrafted Wedding. I was diagnosed with CRPS back in August 2012, and remember how difficult it was to find information and inspiring stories. In fact, I generally ended my search feeling more discouraged than when I started, and this only seemed to make my symptoms worse. Can anyone else relate? The RSDSA website was the best source of information I could find, which is why I am so excited to share my story with you. I want you to know that there is hope, and not to be discouraged by what you read. However, I’d be lying if I didn’t admit that I am also…continue reading

Sammie Barrett is RSDSA’s New Special Events Coordinator

  My name is Sammie Barrett. I am the new Special Events Coordinator for the RSDSA. The RSDSA has been near and dear to my heart since a year after I was diagnosed.  I was diagnosed with RSD/CRPS 9 years ago after spraining my ankle in ballet. I danced 5 days a week for a minimum of 4 hours per night as well as teaching some classes. But once this "sprain" didn't heal correctly, that all changed. Five doctors later, someone finally was able to diagnose me. Unfortunately, this doctor told me I would never walk again, and that I absolutely would not dance again. As a thirteen year old little girl, my world had been turned upside down. But,…continue reading