What Happens When the Strong Get Tired?

Published on January 29, 2020 under RSDS General Info
Written by Scott Setchel for the RSDSA blog.   What happens when the strong get tired? What happens when we don't want to fight anymore? Is this what I am reduced to? Once I was full of life Once I was full of joy Once I was full of laughter I endured cancer, not once, but twice I could dance I could skate I entertained hundreds and hundreds Of people over the decades But, now I am tired I am fighting a disease that has no cure I am fighting a disease that no one understands Unless you, yourself, have it as well The constant pain is 24/7 It is wearing me down It robbed me of who I was…
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Set a Goal Each Day

Published on January 22, 2020 under RSDS General Info
Written by Christopher Skinner for the RSDSA blog. Your struggles don't have to be lonely or a family struggle! There are good people out there to help! I am a Christian man with full body Complex Regional Pain Syndrome (CRPS). I have been full body for about a year now. I was playing basketball with two students at a drug and alcohol rehabilitation school working as a student advisor/teacher and was forcefully pushed from behind causing me to fall into a heavy stage bench. This caused me to tear my rotator cuff, hit my head, and hurt my neck. Either this event or the surgery about five months later caused me to develop CRPS in my entire right arm. I…
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Thoughts From The Parents of a CRPS/RSD Warrior

Published on January 15, 2020 under RSDS General Info
Written by John and Mary Ann Schildt for the RSDSA blog. It was a day like all days, but one that would change our lives forever. Our daughter was a freshman music therapy major at Shenandoah University in Winchester, Virginia. On February 12, 1990 she called us about extreme pain in her right hand/wrist. There was surgery for what was thought to be carpal tunnel. However, it was not carpal tunnel at all. In April of 1990, we received the dreaded diagnosis of RSD or Reflex Sympathetic Dystrophy. It was the beginning of a pain that does not go away just like a fire that continues to smolder and burn. Thus began a thirty year journey of suffering for Shannon…
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Incomparable Pain

Published on January 8, 2020 under RSDS General Info
Written by Hydi Godsey for the RSDSA blog. My name is Hydi Godsey, I am a 51-year-old woman who has been married for 30 years. I have two girls. One of them is a 23-year-old in pharmacy school and the other is a 19-year-old freshman in college. This is the first year my husband and I have been empty nesters. My injury which caused RSD/CRPD, occurred 16-17 years ago and was such a stupid accident. I am right hand dominant and was opening a door at work when my wrist popped. When I first went to the doctor that January, they stated that the pain in my wrist and thumb area was carpel tunnel. From the beginning of January until…
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Thoughts From The Sibling of a CRPS/RSD Warrior

Published on December 18, 2019 under RSDS General Info
Written by Susan L. Schildt for the RSDSA blog. I have been asked, as a sibling of an RSD Warrior, to share my thoughts and feelings on this wicked disease. I am not good at sharing my feelings, but as I thought through this I thought that using the letters of the acronyms of this disease might be the way to go to describe what the disease does to the patient and family. RSD - Letters that define a disease of Intense burning sensation. R Robber of quality of life for patients Robber of quality family time due to suffering of patient Robber of anticipated fun events, hopes, and dreams due to the burning sensation that cripples the individual and…
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5 CRPS Lessons From My Pain Psychiatrist

Published on December 11, 2019 under RSDS General Info
Written by Carrie Cleary for the RSDSA blog. I had my first spine surgery, a laminectomy in 2008, at the age of 45. That was followed by a multi-level fusion in 2009. This is where we believed the CRPS started. I had two cervical spine fusions a few years after this. I had nerve blocks for the lumbar nerves every three months for years. After years of pain on and off then just on, I had a Spinal Cord Stimulator implanted in 2016. I was still taking opioids and living in Northern Illinois where the barometric pressure changes and months of bitter cold were killing me. Barometric pressure changes cause the tissues in your body to swell and push on…
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Olivia Erdman’s New Life with CRPS

Published on December 4, 2019 under RSDS General Info
Special thanks to Olivia Erdman for the taking the time to create this amazing vlog for her YouTube Channel. Take a moment to watch to learn more about her diagnosis, journey, friendships, and more. Please consider making a donation to RSDSA today!
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I Have Made It This Far

Published on November 30, 2019 under RSDS General Info
Written by Colleen C. Ross for the RSDSA blog. How and when did you develop CRPS/RSD? Well, that is actually a really great question! I suffered a back injury around 2008ish, did not really get adequate medical treatment until 2009, and opted for a laminectomy at L5-S1. I pretty much knew right after surgery that things seemed much worse, but all of my concerns were dismissed and I was basically told that I just wanted the pain pills. After horrible results from a round of epidural cortisone injections, I opted to just realize that this was my new normal. That really did not last long though because by 2011 I was a hot mess, literally. My new PCP chalked it…
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Be as Positive as You Can

Published on November 29, 2019 under RSDS General Info
Written by Lisa Marie Weiner for the RSDSA blog. How and when did you develop CRPS/RSD?  I developed CRPS/RSD after I had a knee surgery. Originally, I hurt it playing softball when I was 15 and aggravated it again when I was playing again at age 21. I had surgery and it was supposed to heal in four to six weeks. My knee was super swollen for 12 weeks. I went to many doctors to try to figure out what the problem was. First, they thought it was a neuroma. So, I had another surgery which did not help the pain any and then they thought I had a torn meniscus. This ended up in another surgery. Finally, I saw…
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Buckle-Up Young Warrior: An Inspirational Story for Adolescents with CRPS

Published on November 27, 2019 under RSDS General Info
Written by Madison McKune for the RSDSA blog. I know your favorite stories start with the classic phrase of “once upon a time”, or have these amazing, colorful, vivid, superheroes that somehow in the brink of the scariest moments turn bad into good. I know that this diagnosis you just received seems like one of those scariest moments. That all these new faces and doctors, needle pricks, and hospital stays seem like you are living your least favorite fairytale, or that you are now a pawn. Let me assure you sweet child; you are exactly where you are supposed to be. You are not lost; I and all the other warriors in this community are holding your hand. I, Madison…
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