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Finding My Way to Joy Through a Life of Continual Pain

Published on October 30, 2019 under RSDS General Info
Originally written by Lori Joksch for 110 Magazine. We have republished with permission. A decade ago, I was an R.N. working in the Delivery Unit at Sutter Delta Hospital when I became the victim of a series of horrible events. It began when I tripped over some cables and landed hard on my hands and knees. I was surprised at the severe levels of pain that immediately began shooting through my elbows. The pain never subsided but, in spite of my torment, I stayed on the job for the next ten hours, helped finish the delivery, and remained for postpartum care. From the beginning, I realized something bad had happened but continued working for the next two weeks. Even though…
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Jessica Kennedy Dutkiewicz Discusses CRPS and her Journey with Chronic Pain

Published on October 23, 2019 under RSDS General Info
Jessica Kennedy Dutkiewicz is a Florida-based vocal chronic pain warrior who often speaks about 1% disorders, medical marijuana, chronic pain awareness, and much more. The RSDSA team did not hesitate to share her full story so those who are looking to learn more about CRPS/RSD, chronic pain, and treatment methods can have yet another resource to turn to. Learn more about Jessica and her organization, Human Zebras, at humanzebras.org. Please consider making a donation to RSDSA today!
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Barry M. Wein Tells His CRPS Story

Published on October 16, 2019 under RSDS General Info
Barry M. Wein, MSW (He/Him) is a writer, storyteller, advocate and ally. For more than 20 years, he has helped good causes share their stories, so they can do even more good in the world. These days, Barry feels compelled to share his own stories because they simply demand to be told. His voice is strikingly direct, honest, and intimate. Yet, he has an uncanny knack for finding a laugh even during life’s most challenging times. He finds it to be extremely empowering and encourages others to try it too. Barry seeks to create special moments of connection with fellow Warriors through his writing. He understands those with CRPS are as unique as snowflakes, but likely share many common experiences…
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Framing My Pain Through the Lens of Faith

Published on October 9, 2019 under RSDS General Info
Written by Kelly Hodgkins for the RSDSA blog. My journey with Complex Regional Pain Syndrome started in 2008. I experienced incredible pain in my wrist and it was interfering with my ability to use my right arm. I went to my general practitioner who asked my to see an orthopedic surgeon who diagnosed ganglions. I was operated on to remove them only to have the pain increase post-operation. I was then referred to a hand specialist in Johannesburg, who after a number of tests, scans and shots of cortisone, operated on me and removed 3cm of inflammation and prescribed six months of rest and rehab. I was on a cocktail of potent anti-inflammatories and pain killers, none of which made…
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Samantha Strasser Shares Her CRPS Story

Published on October 2, 2019 under RSDS General Info
We always appreciate when Warriors of all ages take a moment to share their CRPS story with us. During the 4th Annual RSDSA Long Island CRPS Walk & Expo, we heard 16-year-old Samantha Strasser, a CRPS Warrior for the last eight years, tell her story to attendees.   If you are interested in telling your CRPS story on the RSDSA blog or social channels, send us an email at alexisdavis@rsds.org. Please consider making a donation to RSDSA today!
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Complex Regional Pain Syndrome and Social Security Disability

Published on September 25, 2019 under RSDS General Info
Written by Molly Clark for the RSDSA blog Complex Regional Pain Syndrome, or CRPS, is a relatively uncommon condition that causes severe pain and other symptoms, usually after an injury. CRPS can last for a long time and make it impossible for someone to work. Anyone that expects to be out of work for at least 12 months can file a claim for Social Security disability benefits, including those suffering from CRPS. The money from disability benefits can help with living expenses while a person is unable to work.   Disability Benefits and CRPS There are a lot of conditions that qualify for Social Security disability benefits. Those conditions can all be found in the SSA’s Blue Book along with…
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Going For Gold: A Story on CRPS and Opportunity

Published on September 18, 2019 under RSDS General Info
Written by Laura Hinkle for the RSDSA blog. On August 24, 1994, I fell climbing up to Grinnell Glacier in Glacier National Park and had a minor break my ankle. My life changed forever as I was diagnosed with RSD. I went through the common treatments in that time frame. The only thing that I found helpful was methadone and it became my answer to my RSD pain. But by 2013, the methadone was destroying my heart. In 2014 after 20 years on methadone, I was told that if I stayed on methadone I would not live much longer, or I could detox off methadone and live experiencing more pain. What a choice! I opted to detox off methadone and…
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Join RSDSA for our Longest Day of Golf Fundraiser

Published on September 12, 2019 under RSDS General Info
Have you heard? RSDSA's 2019 Longest Day of Golf (LDOG) event will take place on Sunday, September 30th! LDOG is a one-day event to raise funds for RSDSA and bring awareness to complex regional pain syndrome best known as CRPS. This year, we will once again partner with prolific golfer and CRPS advocate, Josh Rosen. Rosen, who does not have the syndrome, decided to participate after learning about both our organization and CRPS. “Like many people, I didn’t know much about CRPS before connecting with Hank Luddington, co-president of RSDSA," says Rosen. "I love that I can use my golf ability to help people with CRPS. My goal is to help RSDSA fundraise enough to help more people get just…
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Meet Our Team: Tracy Geer

Published on September 4, 2019 under RSDS General Info
This summer, we're taking the time to introduce the RSDSA team to our Warriors and their families so you can know the names and faces behind our organization. What is your name and title? I'm Tracy Geer and I'm the RSDSA Office Manager. How long have you been with RSDSA? November will mark nine years at RSDSA! What is your favorite part about working with RSDSA? My favorite part about RSDSA is working with Jim Broatch, our Executive Vice President and Director, and when a Warrior thanks us for helping and the information we provide them. What is your favorite quote? My favorite quote is easily, "May the road rise to meet you, may the wind be always at your…
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Drea’s CRPS Journey

Published on August 28, 2019 under RSDS General Info
Written by Drea Tunstall-Dooley for the RSDSA blog. In 2007, I  was 40-years-old when my life was permanently changed. I was going to get medicine for my friend who could not go outside because of her health. As I was crossing the street, I got hit by a car and ultimately broke my tibia and fibula in my left leg. Had I knew that I would never be the same again,  I probably would have opted against surgery. I had a rod and for pins placed in my leg, and things seemed to be progressing at a normal rate until I suddenly started going backwards with my pain. Living in New York and being on Medicaid, I do not feel…
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