fbpx
Donate
News
Events
JOIN
STORE

I Have Made It This Far

Published on November 30, 2019 under RSDS General Info
Written by Colleen C. Ross for the RSDSA blog. How and when did you develop CRPS/RSD? Well, that is actually a really great question! I suffered a back injury around 2008ish, did not really get adequate medical treatment until 2009, and opted for a laminectomy at L5-S1. I pretty much knew right after surgery that things seemed much worse, but all of my concerns were dismissed and I was basically told that I just wanted the pain pills. After horrible results from a round of epidural cortisone injections, I opted to just realize that this was my new normal. That really did not last long though because by 2011 I was a hot mess, literally. My new PCP chalked it…
continue reading

Be as Positive as You Can

Published on November 29, 2019 under RSDS General Info
Written by Lisa Marie Weiner for the RSDSA blog. How and when did you develop CRPS/RSD?  I developed CRPS/RSD after I had a knee surgery. Originally, I hurt it playing softball when I was 15 and aggravated it again when I was playing again at age 21. I had surgery and it was supposed to heal in four to six weeks. My knee was super swollen for 12 weeks. I went to many doctors to try to figure out what the problem was. First, they thought it was a neuroma. So, I had another surgery which did not help the pain any and then they thought I had a torn meniscus. This ended up in another surgery. Finally, I saw…
continue reading

Buckle-Up Young Warrior: An Inspirational Story for Adolescents with CRPS

Published on November 27, 2019 under RSDS General Info
Written by Madison McKune for the RSDSA blog. I know your favorite stories start with the classic phrase of “once upon a time”, or have these amazing, colorful, vivid, superheroes that somehow in the brink of the scariest moments turn bad into good. I know that this diagnosis you just received seems like one of those scariest moments. That all these new faces and doctors, needle pricks, and hospital stays seem like you are living your least favorite fairytale, or that you are now a pawn. Let me assure you sweet child; you are exactly where you are supposed to be. You are not lost; I and all the other warriors in this community are holding your hand. I, Madison…
continue reading

Turn to Those Who Have Your Back

Published on November 26, 2019 under RSDS General Info
Written by Alissa Brown for the RSDSA blog. How and when did you develop CRPS/RSD? I turned around too quickly on a tile floor which resulted in a sprained knee and CRPS. This happened in January of 2010. What has daily life been like since your diagnosis? Somehow, every day is the same, but also extremely different. I am always in pain and struggle to force myself to get out of bed, but once I am out of bed, it is all up in the air. First, I will let my dogs out and figure out what kind of weather is going on outside, then I pop my pills and start to get ready. I have to decide what to…
continue reading

Through It All I Persevere

Published on November 25, 2019 under RSDS General Info
Written by Kelly Considine for the RSDSA blog. How and when did you develop CRPS? Imagine being turned away from doctors when they learn of your CRPS diagnosis. Imagine being told you would be better off having cancer. Imagine not one, but several doctors recommending an amputation when they do not fully understand the underlying issue. These are just a few of the things I have faced after being diagnosed with Complex Regional Pain Syndrome (CRPS). On September 5, 2005, the first week of my senior year in high school, my life changed forever after spraining my ankle playing volleyball. I had sprained my ankle and suffered various sports injuries growing up, so I was very upset when I quickly…
continue reading

We Are In This Together!

Published on November 24, 2019 under RSDS General Info
Written by Shannon McMullen for the RSDSA blog. How and when did you develop CRPS/RSD? I developed CRPS in spring 2018, following multiple ankle sprains that never fully healed. I was cleared to run again by my doctor, but that led to aggressive tendonitis that would not go away. Eventually, I was in a boot and on crutches for some time to try to give my ankle a rest, and after that the CRPS came on. It was very hard to get a diagnosis as the physical therapy place I was going to did not understand why being in the pool was painful (told me to do it anyway) and they did not understand why touching my foot was so…
continue reading

I Wish I Could Do The Things I Used To Do

Published on November 23, 2019 under RSDS General Info
Written by Kellie Slater for the RSDSA blog. How and when did you develop CRPS/RSD? My original injury happened in August of 2012. Even though I saw providers on a regular basis and continued to have excruciating pain, and some of these providers thought it could be CRPS, I was not formally diagnosed until later. I underwent physical therapy, which only exacerbated my pain. I had ice applied and instruments that applied a high amount of pressure to my nerves and all the while, the therapists could not understand why my pain did not abate. In fact, they were visibly annoyed that I was not getting better. This added insult to injury. I feel like this lack of knowledge and…
continue reading

Let’s Help Others Understand CRPS

Published on November 22, 2019 under RSDS General Info
Written by Shanna Parlock for the RSDSA blog. How and when did you develop CRPS/RSD? On April 27, 2007 I went for the first horseback ride of the year, and since my daughter was born. After it, my life would never be the same. During the ride, my horse was spooked and threw me off. I shattered my L3 vertebrae. My back started to heal correctly, but then for some reason it would not finish healing. In February 2008, I had a 12-hour surgery to replace my L3 vertebrae with titanium mesh and fuse my L2 to L4 with rods and screws. Afterward I kept telling my doctor I felt two types of pain. I felt an aching pain in…
continue reading

Do Not Ignore CRPS

Published on November 21, 2019 under RSDS General Info
Written by Michelle Kellogg for the RSDSA blog. How and when did you develop CRPS/RSD? I was officially diagnosed October 20, 2016, but we believe I originally developed it in January 2015 after surgery. It was my second surgery on that limb, a simple surgery just to remove hardware that we believed I was allergic to. During that surgery, my surgeon noticed I had a nerve that was completely covered in scar tissue. He attempted to debride the nerve. Later, after removal of all bandages, I noticed the area where the debrided nerve was had become incredibly sensitive… as in, sick to my stomach if you just look at it kind of sensitive. He attributed it to the debriding and…
continue reading

You Will Be Stronger in the End!

Published on November 20, 2019 under RSDS General Info
Written by Rachel W. for the RSDSA blog. How and when did you develop CRPS/RSD? In September 2018, I was at tumbling practice and I sprained my ankle. My physical therapist noticed some signs of CRPS during my first few sessions, and at my one month follow up appointment with my orthopedic doctor, I was officially diagnosed with CRPS. I realize how lucky I am to have been diagnosed so quickly!   What has daily life been like since your diagnosis? It has been a struggle – a constant battle of whether or not I am going to wake up being able to get out of bed in the morning.  It started in my ankle and has spread to other…
continue reading