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Every Person Is Fighting a Battle We Know Nothing About

Published on November 5, 2019 under RSDS General Info
Written by Abigail Bourcy for the RSDSA blog. How and when did you develop CRPS/RSD? My name is Abigail I developed Complex Regional Pain Syndrome when I was 12 (10 years ago). I broke my fibula playing soccer and was put in a boot for six weeks. Doctors assumed it was a simple break, but after six weeks in a boot I was still refusing to put weight on it and complaining of tingling sensations. My mom and I went to every doctor we could find in the Northeast area; it took months to get a doctor to believe me. Finally, we visited an orthopedic physician assistant who within minutes of looking at my symptoms, knew it was CRPS. However,…
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Elizabeth Kiss Speaks on Why CRPS Warriors Can’t Give Up

Published on November 4, 2019 under RSDS General Info
Written by Elizabeth Kiss for the RSDSA blog. My name is Liz. I live in Alaska and I am 50 years old. I was diagnosed with CRPS in late 2015 after I attended my brothers wedding in Minnesota.  I honestly do know what happened other than the next day I woke up and my right ankle and foot were swollen up like balloons and it was very painful. When we got home, I went to my doctor who sent me to an orthopedic foot surgeon who did x0rays and could find nothing wrong. I was then sent to a spine specialist who did x-rays on my lower spine and also an MRI. She then sent me to a pain doctor…
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Kelly Clendenning on Why CRPS Warriors Need Allies

Published on November 3, 2019 under RSDS General Info
Written by Kelly Clendenning for the RSDSA blog. How and when did you develop CRPS/RSD? The how is hard to determine as my first mini stroke and seizure happened in 2007 when I was 20 years old. At the time, the pain started in my spine. 12 years later, it is now in my entire right side, face, chest, and left hand. At this juncture, we do not know what caused it, but it is possible the TIA (transient ischemic attack) and seizure triggered it. I was diagnosed in 2015 after seven years of trying to get a diagnosis and treatment and well over 50 various doctors. My daughter was seven months old. What has daily life been like since…
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Jacque Neff’s New Battle

Published on November 2, 2019 under RSDS General Info
Written by Jacque Neff for the RSDSA blog. I joined the Army 25 years ago to follow in the footsteps of my family and work to become an officer. I thought I had an idea of what battles laid before me, but little did I know that I was at the beginning of a lifelong battle that would forever change my life. While running during a physical endurance test, I felt and heard something in my left knee pop. I stumbled and the Captain told me not to "fall out." I pushed on and finished in good time. A month later I was discharged with 10% disability and a diagnosis of tendonitis. The pain continued way past when it should…
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Abby Sams on Why Little Things Can Make A Big Difference

Published on November 1, 2019 under RSDS General Info
Written by Abby Sams for the RSDSA blog. My name is Abby Sams and I was diagnosed with RSD/CRPS at age 19, over seven years after its official development. When I was 12, I injured my knees playing with friends and myself, my family, and my doctors all agreed it was likely a growing pain situation, or a simple “runners’ knee” that would clear itself up eventually. I ended up having to wear knee braces almost constantly for several years. My skin was purple, and my knees and thighs hurt to touch. I hated pants and always opted for our uniform skirts or shorts even during the winter. My daily life since diagnosis has changed tremendously. Now that I have…
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Finding My Way to Joy Through a Life of Continual Pain

Published on October 30, 2019 under RSDS General Info
Originally written by Lori Joksch for 110 Magazine. We have republished with permission. A decade ago, I was an R.N. working in the Delivery Unit at Sutter Delta Hospital when I became the victim of a series of horrible events. It began when I tripped over some cables and landed hard on my hands and knees. I was surprised at the severe levels of pain that immediately began shooting through my elbows. The pain never subsided but, in spite of my torment, I stayed on the job for the next ten hours, helped finish the delivery, and remained for postpartum care. From the beginning, I realized something bad had happened but continued working for the next two weeks. Even though…
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Jessica Kennedy Dutkiewicz Discusses CRPS and her Journey with Chronic Pain

Published on October 23, 2019 under RSDS General Info
Jessica Kennedy Dutkiewicz is a Florida-based vocal chronic pain warrior who often speaks about 1% disorders, medical marijuana, chronic pain awareness, and much more. The RSDSA team did not hesitate to share her full story so those who are looking to learn more about CRPS/RSD, chronic pain, and treatment methods can have yet another resource to turn to. Learn more about Jessica and her organization, Human Zebras, at humanzebras.org. Please consider making a donation to RSDSA today!
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Barry M. Wein Tells His CRPS Story

Published on October 16, 2019 under RSDS General Info
Barry M. Wein, MSW (He/Him) is a writer, storyteller, advocate and ally. For more than 20 years, he has helped good causes share their stories, so they can do even more good in the world. These days, Barry feels compelled to share his own stories because they simply demand to be told. His voice is strikingly direct, honest, and intimate. Yet, he has an uncanny knack for finding a laugh even during life’s most challenging times. He finds it to be extremely empowering and encourages others to try it too. Barry seeks to create special moments of connection with fellow Warriors through his writing. He understands those with CRPS are as unique as snowflakes, but likely share many common experiences…
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Framing My Pain Through the Lens of Faith

Published on October 9, 2019 under RSDS General Info
Written by Kelly Hodgkins for the RSDSA blog. My journey with Complex Regional Pain Syndrome started in 2008. I experienced incredible pain in my wrist and it was interfering with my ability to use my right arm. I went to my general practitioner who asked my to see an orthopedic surgeon who diagnosed ganglions. I was operated on to remove them only to have the pain increase post-operation. I was then referred to a hand specialist in Johannesburg, who after a number of tests, scans and shots of cortisone, operated on me and removed 3cm of inflammation and prescribed six months of rest and rehab. I was on a cocktail of potent anti-inflammatories and pain killers, none of which made…
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Samantha Strasser Shares Her CRPS Story

Published on October 2, 2019 under RSDS General Info
We always appreciate when Warriors of all ages take a moment to share their CRPS story with us. During the 4th Annual RSDSA Long Island CRPS Walk & Expo, we heard 16-year-old Samantha Strasser, a CRPS Warrior for the last eight years, tell her story to attendees.   If you are interested in telling your CRPS story on the RSDSA blog or social channels, send us an email at alexisdavis@rsds.org. Please consider making a donation to RSDSA today!
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