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Guest Blogger for RSDSA

Bloggers from the CRPS/RSD community that write pieces for our blog will be featured here.

RSD Is An Angry Ocean- Why It’s Okay to Be Angry

Published on August 1, 2017 under Guest Blogger for RSDSA
By Guest Blogger Sara We love to post uplifting stories about people living with CRPS/RSD. But, what about the moments where it is nearly impossible to be positive? Do we let that go unnoticed, or should we reach a point of acceptance that RSD comes with a range of emotions. Sara covers her feelings on RSD and how it is like an angry ocean.   Each day, I face the endless ocean, scanning the horizon, tipping my head to the sky searching for signs of storms.  Will the currents be calm, allowing me to drift easily under a sunny sky with my aching and ancient bones; or will the storms clouds gather, thunder booming, lightning splitting the horizon with the…
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RSD and Me- A New Full Time Job

Published on July 11, 2017 under Guest Blogger for RSDSA
By Guest Blogger Sylvia Miller Being diagnosed with RSD CRPS can cause people to go through a range of emotions: denial, frustration, confusion, sadness, incompleteness, etc. Sylvia writes about what it was like trying to find an answer that wasn't RSD/CRPS. What happens after the RSD diagnosis? How can you impact your life regardless of the pain?   3 years ago, I suffered a fall and fractured my ribs.  From that point forward, it seemed to be that I reached out to any doctor to [try to] understand the pain I encountered.   A physician diagnosed me as having RSD, but I thought, surely, this doctor is wrong.  So, I continued to research and search for any understanding about RSD and…
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My CRPS Experience at the Young Adult Weekend

Published on July 4, 2017 under Events
By Guest Blogger Jess Henry-Cross Jess was a participant in our very first CRPS Young Adult Weekend this past June. She was more than happy to write a brief blog about her experience and how it changed things for her. Why are events like this so important? Read about what Jess experienced to learn more.   Around 2:30 in the afternoon on Sunday, June 18th I found myself holding back a few (happy) tears.  I was driving home after spending the last 45 hours with a group of women who recharged me in a way I had never even dared to hope for.  I didn’t want the weekend to be over.   I signed up for the RSDSA Young Adult Weekend…
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How CRPS Is Like a Wailing Alarm That Never Shuts Off

Published on June 27, 2017 under Guest Blogger for RSDSA
By Guest Blogger Roberta Hierath This blog about CRPS being a wailing, screaming alarm that never shuts off was originally featured on The Mighty. We were given permission to post it as a part of #TheTuesdayBurn, especially since it explains the overwhelming feelings that CRPS can bring on. One thing I’ve learned in seven years of living with Complex Regional Pain Syndrome is that there is almost no one in the regular course of my life who truly understands what constant, unwavering and intense pain really feels like. I am glad for that fact as I wouldn’t wish this on anyone, but it does make it harder for people to relate to my daily experience. So I am going to try…
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7 Things I Can Do When The Pain Is Too Much- CRPS Blog

Published on June 20, 2017 under Guest Blogger for RSDSA
By Guest Blogger Kelly Hodgkins This blog was originally posted on Moonglotexas. Click here to view the original post. This post, entitled "7 Things I Can Do When The Pain Is Too Much" was posted with permission and offers great insight into things that you can do, or try to do, when your CRPS/RSD pain feels like too much. My CRPS has a habit of flaring up on days I’ve made plans to do fun things that rejuvenate my soul. Snuggled up under my duvet, I visualize the landscape before me trotting along on my horse. I rearrange flower beds, trim branches and try out that great idea from a book. Coffee in hand, I catch up with a friend…
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Stress: A Chronic Pain (CRPS/RSD) Warrior’s Worst Enemy

Published on June 6, 2017 under Guest Blogger for RSDSA
By Guest Blogger Gabe King Gabe is back this week to blog about stress, the impact it has on CRPS/RSD and chronic pain, and how to try to manage it. While stress is an inevitable part of life, there are certainly ways to manage it. "...Chaos calls but all you really need...Is to just breathe." -Johnny Diaz, "Breathe" Stress is a normal part of everyday life. It starts as soon as you wake up: getting kids ready for school, finishing a major project for work, or preparing for a big family meal. These are normal, mostly every day, stresses of life. Often times, for the typical human being, it can be hard not to allow these stresses to get the best of…
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Understanding CRPS/RSD- As Taken from Fitness for Your Health

Published on May 30, 2017 under Guest Blogger for RSDSA
By Michael Sullivan, PT, MSPT This blog about understanding CRPS was originally featured on Fitness for Your Health. Learn about the pain and how they diagnosis it here. This week’s topic is one not many know too much about but it can be a very debilitating condition.  Those who suffer from Complex Regional Pain Syndrome (CRPS), A.K.A. Reflex Sympathetic Dystrophy (RSD), know far too well how bad this condition is.  It is a very complex condition (hence the name), so we have asked the Director of Physical Therapy here at our clinic to explain it. Michael Sullivan earned his MSPT at Duke University in 1989.  He worked in private practice for 8 years before deciding to move to help those…
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Never Let Pain Define You- CRPS Inspiration

Published on May 23, 2017 under Guest Blogger for RSDSA
By Guest Blogger Gabe King Guest blogger Gabe returns this week. After his blog entitled "A Thorn in the Flesh" was well-received, he returns to write about how CRPS pain can change you, but it doesn't need to be in a negative way. "Don't let pain define you, let it refine you." -Tim Fargo With chronic pain, it can be very easy to allow it to define who you are. You can feel like just giving up and allow it to control every inch of your life, letting it decide who you can be. In all honesty, I have found myself doing the exact same thing. Because of how extensive and unpredictable our condition is, we find it extremely difficult to…
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A Thorn In the Flesh-A Chronic Pain Journey

Published on May 9, 2017 under Guest Blogger for RSDSA
By Guest Blogger Gabe King This blog was originally featured on Gabe King's blog site Treasures on the Sand. This blog was submitted to us by Mr. King with full permission to share his chronic pain journey.   For many of us with chronic pain, we can only remember suffering. It can be very hard to think of the times that were pain-free, living our lives like normal human beings. However, this is not the path Our Heavenly Father has in store for us, for He has a greater purpose at hand. Though this is the case, it can still be a difficult journey, walking through life with what the apostle Paul referred to as a "thorn in the flesh."…
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Happy Disabiliday – A Letter from A Canadian CRPS Friend

Published on April 25, 2017 under Guest Blogger for RSDSA
This Disabiliday blog was originally featured on Pain Matter's website (Click on the word Pain Matters to see the original article). It was submitted to us by Paula to share with our wonderful #TheTuesdayBurn community. We hope this helps inspire all those living with disabilities, especially CRPS/RSD. "You may remember Paula Orecklin, the inspirational Canadian CRPS patient whom I wrote about in yesterday’s blog post: Let’s Talk To An Inspirational Young Canadian Woman, Paula Orecklin, About CRPS, Sativex, Physiotherapy and Neuroplasticity (There are additional References and Links at the end of this blog post.) This week, Paula sent me a beautiful letter to share with all of you (see below).  Paula’s letter contains a very important message for everyone, on behalf of all people living…
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