Category: Guest Blogger for RSDSA

Bloggers from the CRPS/RSD community that write pieces for our blog will be featured here.

Being A Wounded Healer With CRPS

Published on March 13, 2018 under Guest Blogger for RSDSA
By Guest Blogger Gabe King "You come out of suffering sometimes scarred. But you come out, anyway, a stronger person...you become, yourself, a wounded healer." -Bobby Schuller As a chronic pain warrior, have you ever thought of yourself as a healer? Not a physical healer, by no means! If that were the case, we would not be in the state we are in currently. No, I speak of being what Bobby Schuller termed a 'wounded healer'. What does that mean? A wounded healer is one who is or has gone through a time of suffering. Instead of being broken by it all, they come out stronger and are able to aid those on a similar path. Though unable to heal…
continue reading

Hope Has Found You

Published on March 6, 2018 under Guest Blogger for RSDSA
By Guest Blogger Terri Arnett Suddenly living life with chronic pain syndromes, such as CRPS/RSD, can be a shock to the system. There are a number of trials and tribulations that people living with CRPS/RSD go through. Terri Arnett writes about her experience and how she now feels hopeful and encouraged. I know why people take their lives due to mind-altering pain. The type of pain that shrouds your every move, your every thought, your very existence. A pain no narcotic can relieve. A level of pain that makes you think you will lose your mind. I know because this was me. This is my story. For 10 years I wandered the land of Ooos and Aghs. It started innocently:…
continue reading

Seeing Is Not Always Believing: Perception and Chronic Pain

Published on February 27, 2018 under Guest Blogger for RSDSA
By Guest Blogger Gabe King This blog was originally titled "Seeing Is Not Always Believing: How Chronic Pain Warriors Allow Others' Perception To Shape Them." As a chronic pain warrior, Gabe knows first hand how other people's views of us can impact how we think about ourselves. What advice does he have to help us through? "What you see and hear depends a good deal on where you are standing." C.S. Lewis Your hanging out with some friends and they decide to do something that you cannot physically do. You have told them over and over again about your condition and how you are not able to do certain activities that you could do in the past, like the one they…
continue reading

Stages of Grief With CRPS

Published on February 20, 2018 under Guest Blogger for RSDSA
By Anonymous Being diagnosed with CRPS at a young age comes with its own complications. There are so many things to try, so many people with different opinions, and so many different emotions that can be felt. This author wrote about their experience with CRPS, grief, and learning to live with pain. When I was twenty-four years old, I was working 40 hours a week on my feet as a restaurant manager.  Working this way for three years straight never really bothered me.  It wasn’t until one Friday afternoon when I began feeling an excruciating pain in my lower left leg.  Despite it getting worse as I tried to walk on it, I really didn’t think much of it. I wrote it…
continue reading

Living with RSD- Never Give Up On Hope

Published on February 6, 2018 under Guest Blogger for RSDSA
By Guest Blogger Brenda Refior Brenda discusses her life before being diagnosed with RSD and all of the things she endured after a traumatic incident. Through all of this, Brenda is able to find hope and encourages readers to do the same. Find out how below. Before I had RSD, I was a strong and happy person who loved life to the fullest. When I was nineteen, I tried out for an Olympic handball team at the Colorado Springs Olympic Training Center. I was accepted and asked to go to the Lake Placid training camp, but this conflicted with my wedding plans. I was young and felt that all of life was ahead of me, and decided not to go…
continue reading

Complex Regional Pain Syndrome- What To Do About It

Published on January 30, 2018 under Guest Blogger for RSDSA
By Dr. David Brady This blog was initially titled Complex Regional Pain Syndrome- What Is It And What To Do About It. It was featured on Fibrofix. To learn more about Dr. Brady, you can click here. Here, Dr. Brady writes about what Complex Regional Pain Syndrome is and how to approach it. Chronic pain affects more individuals than diabetes, cancer, and heart disease combined and yet its origins can be so elusive that an accurate diagnosis of a chronic pain syndrome can be difficult. Determining precisely what you are experiencing and identifying the cause of those specific symptoms is undoubtedly important to unweave the complexity of chronic pain syndromes and find the treatment approach that best addresses your specific…
continue reading

Using Somatosensory Rehabilitation to Treat Allodynia

Published on December 12, 2017 under Guest Blogger for RSDSA
By Guest Blogger Tara Packham, Ph.D., OTReg (Ont). @TaraLPackham Postdoctoral fellow, Michael G. DeGroote Institute for Pain Reearch and Care. McMaster University, Hamilton, Ontario Canada Allodynia is formally defined as a painful response to a stimulus that does not normally produce pain.  This includes painful feelings in response to 1) light touch such as a caress, or the stroke of a cotton ball; 2) temperatures that would normally be comfortable (like cool water from the tap, or the warmth from a mug of coffee); or 3) gentle pressure, like wearing a sock or a bra.  In the Budapest criteria for complex regional pain syndrome, allodynia is considered both a sign (something that can be measured) and a symptom (something the…
continue reading

15 Tips For Healthcare Providers Treating CRPS/RSD

Published on December 5, 2017 under Guest Blogger for RSDSA
By Guest Blogger Melissa Wardlaw As a patient with CRPS/RSD, I am lucky to have a pain-management physician I have been partnered with since 2004 whom I trust, who trusts me and who understands my complex medical issues. As I have visited many physicians and other specialists on my medical journey before and after partnering with him, clearly this hasn’t always been the case! Recently I spoke to an audience of healthcare professionals at a healthcare conference, and left them with this takeaway of some helpful treatment tips I have comprised in all my years as a CRPS/RSD, chronic illness & pain patient. 1. Patients with CRPS/RSD are on individual journeys and every patient is different! Even though most patients…
continue reading

The Young Chronicle: Ophelia

Published on December 1, 2017 under Guest Blogger for RSDSA
Written by Ashley Epping for the RSDSA blog. Ophelia is a 19-year-old who developed Complex Regional Pain Syndrome at only nine years old, is from Ontario Canada and uses the pronouns they/them/their. They were originally told by a doctor that they were only experiencing growing pains. They reflected on the experience saying “I always knew it was not growing pains because growing pains do not put you in a wheelchair”. Ophelia’s pain started in both knees and has now spread to their entire body. In 2013 they went into remission after a stay at the Children’s Hospital of Philadelphia in their chronic pain program; but the pain returned a year later and it came back full force. Currently Ophelia spends…
continue reading

CRPS Awareness Day 29: Restaurateur Gets CRPS

Published on November 29, 2017 under Guest Blogger for RSDSA
By Anonymous for the RSDSA blog My life truly changed when I was 23 years old. As I look back, I realize that I was in my golden years. I just completed my bachelors in Food Service Management from Johnson and Wales University. Even at a young age, I was interested in food so I decided to pursue my passion and turn it into a career. As a manager for Darden Restaurants, I led the region in guest services while also teaching other restaurants what practices I followed to ensure a great guest experience. I worked ten hour days, five days a week, and was on my feet about 90 percent of the time. It didn't bother me though. I…
continue reading