Category: Guest Blogger for RSDSA

Bloggers from the CRPS/RSD community that write pieces for our blog will be featured here.

CRPS Awareness Day 28: Neuromodulation and DRG

Published on November 28, 2017 under Guest Blogger for RSDSA
By Dr. Timothy Deer CRPS/RSD is a debilitating painful condition affecting thousands of patients.  Chronic pain as a result of CRPS not only impacts the patient, but the patient’s family and loved ones as well.  Many are forced to give up work or other meaningful life and family activities due to the ongoing persistent pain.  Many CRPS patients continue to suffer extreme pain and limited function in spite of receiving the correct diagnosis and appropriate care. Treatment guidelines for CRPS exist and have been widely published and accepted in the national and international medical community.  Those guidelines start with conservative care including physical therapy, nerve-pain medications, supportive counseling, and in some cases nerve blocks.  For patients not responding to those…
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CRPS Awareness Day 27: CRPS, Function, and Rehabilitation

Published on November 27, 2017 under Guest Blogger for RSDSA
Written by Michael Sullivan PT, MSPT for the RSDSA blog. How important is movement to our health and wellbeing? A dark lesson starting in medieval times and running into the mid-1800s is provided by the numerous inquisitions, the most famous being the Spanish Inquisition.  For over 700 years torture was used to induce people to confess to their heresies, recant their heathen ways and profess their faith in God. Torture was used to speed up the process. One of the most effective means of torture was the use of constraints to restrict a person’s ability to move. Stocks, barrels, metal cages, ropes and chains were used to prevent movement. The tighter a person is bound, the less they can move,…
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CRPS Awareness Day 26: The Importance of a Walk

Published on November 26, 2017 under Events
By Guest Blogger Beth Seickel Many of us attend or get involved with a walk to support a family member or friend challenged by a specific diagnosis or condition hoping the fundraiser will help to create change. So, how can a RSDSA event be any different? Who participates? What can one expect? Where is it held? Do you have to walk to attend? Is it accessible? Simply stated, RSDSA’s Long Island Annual CRPS/RSD Awareness Walks reflects their mission statement by creating: Awareness and Advocacy Education and Resources Comradery and Networking Validation and Support Hope and Encouragement In 2016, RSDSA’s 1stAnnual Long Island CRPS/RSD Walk hosted 225 kids and adults, raising $25,000 despite the heat and humidity at Eisenhower Park in…
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CRPS Awareness Day 25: When They Laugh

Published on November 25, 2017 under Guest Blogger for RSDSA
By Guest Blogger Sarah Bigham This blog was originally featured on The Idea Crucible (click here) and featured this thank you: "Thanks to Lori Leitzel Rice for inviting me to contribute my patient-focused perspective on practitioner communication. Lori is my CranioSacral massage therapist, and a dear friend who has seen me through the worst times of my life. I am forever grateful for CranioSacral techniques as well as Lori’s wonderful, listening hands." My name is Sarah and I am a chronic pain warrior. I wish a support group existed for people like me, held in a location down the block (car travel makes me flare) with squishy furniture (the only kind I can sit on comfortably, and even then for…
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CRPS Awareness Day 24: Sharing My Skills and Working

Published on November 24, 2017 under Guest Blogger for RSDSA
By Guest Blogger Kelly Hodgkins Some people with CRPS have a difficult time discovering what they can do while living in pain. Guest blogger Kelly found a way to share her skill set in a way that is convenient for her and that works with their pain. Those who can't do, teach! See how she is working here. Working with CRPS is a tussle between my goals and deadlines and what my body will allow me to accomplish each day. Every morning I assess myself and discuss with my business partner, who fortunately is my mum, what I can get done and we reprioritize the day or week’s activities. This is a vast improvement from where I was when my…
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CRPS Awareness Day 22: 5 Things I Do To Kick RSD’s Butt

Published on November 22, 2017 under Guest Blogger for RSDSA
By Guest Blogger Melissa Lovitz While many people across the United States are preparing for Thanksgiving, we thought it would be fun to feature this listicle about what you can do every day to kick CRPS/RSD's butt. This author wrote a great list for us to feature. Here's what she does. My RSD reminds me daily that I don’t have control over my body and I will hurt physically and mentally sometimes just because the wind blows. It’s easy to get defeated by this reality and lose power over your own life. RSD thrives off this mentality. It invades your body and is pleased by your compliance with its painful trajectory. If I’m being honest, it’s easy to let RSD…
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CRPS Awareness Day 21: Three Different Perspectives About CRPS

Published on November 21, 2017 under Guest Blogger for RSDSA
By RSDSA Board Member, Bob Lane RSDSA welcomes board member Bob Lane to TheTuesdayBurn. Mr. Lane has been a CRPS caregiver, a support group facilitator, a foundation leader, and now an RSDSA Board Member. See CRPS through his eyes in all different perspectives. I would have never thought that I would be writing a blog about CRPS. For those of us in the CRPS community, everyone has a story. This is my story… Where do I begin? As a former caregiver for someone who experienced full body CRPS, a Board Member of RSDSA, or as a CRPS support group founder and leader? As you will see, there is an obvious progression to this time-line.   Caregiver My wife, Maria, was…
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CRPS Awareness Day 19: Hot Tub, Cold Turkey

Published on November 19, 2017 under Guest Blogger for RSDSA
By Guest Blogger Nancy Meagher Nancy details a day in her life with CRPS pain. A day of hot tubs, wine, and workout routines. What does Nancy learn through her journey through time? Find out! Submerged in the rough swirling water, my feet become redder than most. All ten of my half moon nail beds glow almost a fluorescent white. They reach the tips of each toe. I feel a bit freakish as I climb out of this warm friendly place and I slip into the pool to begin my daily laps. The cold water of the pool is duly noted by my overheated feet. The sudden temperature drop causes them to sting and I switch from laps to kick…
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CRPS Awareness Day 16: What We Lose When We Undertreat Pain

Published on November 16, 2017 under Guest Blogger for RSDSA
Kate was a civil rights attorney for the Justice Department when pain consumed her life. Using opioids to function, she moved on to become a federal prosecutor. Based on her experience, she recorded this TED Talk to show how the opioid "crisis" is harming the people in pain that need it and how it harms so many when we undertreat pain. Thank you to Kate for sharing her story and her opinion on such a large platform. We are honored to share it through our blog. The full description of this YouTube video states: "Kate Nicholson was working as a civil rights attorney for the Justice Department when a surgical error left her unable to sit or stand, largely bedridden,…
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CRPS Awareness Day 14: The Anatomy of Hope

Published on November 14, 2017 under Guest Blogger for RSDSA
By Katinka van der Merwe Dr. Katinka is back to write about the anatomy of hope. What does she mean by this? How can a chiropractor impact lives of people living with CRPS/RSD? After finding her purpose, Dr. Katinka did just that. From neuromuscular reeducation to microcurrents, read all about it here. Six years ago, I was a chiropractor bored to death in practice. The public viewed me much the same as they view all chiropractors. I probably “cracked” backs and necks. That is what chiropractors do, right? I reached out for help in any way I could think. I attended seminars, I visited successful and happy chiropractors, I read motivational things. Everywhere I looked I was told to “find…
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