Complex Regional Pain Syndrome (CRPS) was recently designated as a rare disorder by the United States Food & Drug Administration. A disease is considered rare if fewer than 200,000 people in the United States have it. This designation has already generated much greater interest than ever before in CRPS/RSD and is enticing pharmaceutical corporations to consider developing medicines to treat CRPS.
- There are two clinical trials in CRPS is recruiting right now.
- Intravenous Neridronic Acid in CRPS Trial
- Volunteers wanted for studies looking at Complex Regional Pain Syndrome in young people: University of Bath
- exploring how young people with CRPS think about their future – 20-25 minute online survey
- exploring how parents of young people with CRPS think about their child’s future – 20-25 minute online survey
- exploring resilience in parents (couples) of youth with CRPS – Interview
- Karuna Labs: Virtual Reality Pain Management Clinical Trial, Safe, non-pharmacological, Effective
Karuna uses virtual reality mirrow therapy and graded motor imagery to help people with chronic limb pain. People who have had success with the program have been patients with CRPS, Fibromyalgia, Phantom limb pain, Multiple Sclerosis, stroke, Post-surgery and other types of chronic pain.
- Neurotropin to Treat Chronic Neuropathic Pain
The National Institute of Neurological Disorders and Stroke, part of the National Institutes of Health, is looking for individuals to participate in clinical studies. Participating in clinical trials allows you to play an active role in research on the nature and causes of many disorders of the brain and nervous system, and to possibly help physician-scientists develop future treatments. The information below is designed to help you quickly learn about actively recruiting research studies for which you or someone you know may be eligible.
- Read about a multi-national study of patient-defined recovery from RSD: funded by RSDSA
- Interim report of RSDSA funded Genetic study investigating the risk of developing CRPS
- To participate in Investigations of Pathophysiology of Dystonia and Complex Regional Pain Syndrome at the NIH.
- Read about a new Research Study funded by RSDSA
- Stanford Current Research Studies: We have a number of research studies being conducted and we always need the help of both individuals with chronic pain, and individuals without chronic pain! The studies we are currently conducting are summarized in the table below.
- TARGET Post-Approval Study (TARGET PAS): A Post-Approval Study to Evaluate Targeted SCS Spinal Cord Stimulation (SCS) Dorsal Root Ganglion (DRG) Stimulation for the Management of Moderate to Severe Chronic, Intractable, Pain of the Lower Limbs Due to CRPS Types I and II
- To locate clinical trials in CRPS and RSD, visit clinicaltrials.gov
- RSDSA has ended its 20-year study of the long-term health impact of CRPS on individuals diagnosed with it. We thank everyone who participated. We have begun the analysis of the data and hope to publish the results as soon as possible.