RSDSA Provides Access to the Latest Research Data on CRPS/RSD

home-research1Complex Regional Pain Syndrome (CRPS) was recently designated as a rare disorder by the United States Food & Drug Administration. A disease is considered rare if fewer than 200,000 people in the United States have it. This designation has already generated much greater interest than ever before in CRPS/RSD and is enticing pharmaceutical corporations to consider developing medicines to treat CRPS.

  • Please participate in the Grünenthal online survey on the experience of living with CRPS. #RSDSA is collaborating with Grünenthal and other #CRPS patient advocacy groups to launch the following survey. We hope it can guide and sensitize Grünenthal and other pharmaceutical companies to the experience of living with CRPS as they develop new therapies for people with CRPS and other #painsyndromesTake this survey powered by surveymonkey.com. 
  • Volunteers wanted for studies looking at Complex Regional Pain Syndrome in young people: University of Bath
    • exploring how young people with CRPS think about their future – 20-25 minute online survey
    • exploring how parents of  young people with CRPS think about their child’s future – 20-25 minute online survey
    • exploring resilience in parents (couples) of youth with CRPS – Interview
  • Karuna Labs:  Virtual Reality Pain Management Clinical Trial, Safe, non-pharmacological, Effective
    Karuna uses virtual reality mirror therapy and graded motor imagery to help people with chronic limb pain. People who have had success with the program have been patients with CRPS, Fibromyalgia, Phantom limb pain, Multiple Sclerosis, stroke, Post-surgery and other types of chronic pain.
  • Neurotropin to Treat Chronic Neuropathic Pain
    The National Institute of Neurological Disorders and Stroke, part of the National Institutes of Health, is looking for individuals to participate in clinical studies. Participating in clinical trials allows you to play an active role in research on the nature and causes of many disorders of the brain and nervous system, and to possibly help physician-scientists develop future treatments. The information below is designed to help you quickly learn about actively recruiting research studies for which you or someone you know may be eligible.
  • Read about a multi-national study of patient-defined recovery from RSD: funded by RSDSA
  • Final report of RSDSA-funded Genetic study investigating the risk of developing CRPS
  • To participate in Investigations of Pathophysiology of Dystonia and Complex Regional Pain Syndrome at the NIH.
  • Read about a new Research Study funded by RSDSA
  • TARGET Post-Approval Study (TARGET PAS): A Post-Approval Study to Evaluate Targeted SCS Spinal Cord Stimulation (SCS) Dorsal Root Ganglion (DRG) Stimulation for the Management of Moderate to Severe Chronic, Intractable, Pain of the Lower Limbs Due to CRPS Types I and II
  • To locate clinical trials in CRPS and RSD, visit clinicaltrials.gov
  • RSDSA has ended its 20-year study of the long-term health impact of CRPS on individuals diagnosed with it. We thank everyone who participated. We have begun the analysis of the data and hope to publish the results as soon as possible.