Donate
Events

adapting

CRPS From An Outside Perspective- Interview With a Husband

Published on August 15, 2017 under Opinion
By Samantha Anderson, Special Events Coordinator After several requests for my husband and I to give a bit of our story and let everyone know how things work with us, I decided to interview him to find out what he thinks about CRPS/RSD as a person that lives with it daily without physically experiencing it. 10 years ago, I started dating my now husband. We were each 14 years old. This was less than a year after my CRPS/RSD diagnosis. As a matter of fact, I was still on crutches when I started dating the boy with the blue mohawk. At that point, I didn’t know the extent that CRPS/RSD would actually impact my life. I know the doctors told…
continue reading

The CRPS Wedding Chronicles- Almost There!

Published on March 22, 2017 under Stories of Hope
By Samantha Barrett, Special Events Coordinator Getting closer to the wedding date, Samantha updates everyone on some of the tips she has learned through the wedding planning process with CRPS. What questions do you have for Samantha? She can answer them in the next edition! Hello friends! It’s been a while since I’ve update you on the wedding chronicles. We are just about 3 months out from the big day (I know, crazy, right)? But I’m getting extremely excited, although a tad overwhelmed. Recently, my health hasn’t been the best it could be. My CRPS has gone into occasional flares, but the EDS and POTS have been what is really affecting me. But the EDS contributes to CRPS pain for…
continue reading

CRPS Wedding Chronicles: Photographers

Published on July 5, 2016 under Stories of Hope
By Sammie Barrett, Special Events Coordinator I’m back! We’re officially less than a year away from my CRPS wedding. I’m taking you all on this journey with me. Believe it or not, I have shy tendencies. While I used to be able to perform at Celtics games, competitions, and recitals, that was with a group. When the attention is on me, I get quite nervous. Plus, over the past few years, I’ve become more self-conscious. Because of my inability to constantly be active, I’ve gained weight. My teeth have shifted despite having braces and a retainer for over 4 years (thank you, Ehlers-Danlos Syndrome). So, getting my pictures taken isn’t something that puts me at ease. My fiancé also gets…
continue reading