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chronic illness

Managing RSD/CRPS As A Chronic Illness from a CRPS Warrior

Published on May 2, 2017 under Opinion
By Guest Blogger Emily S. Nunez Emily has been living with CRPS/RSD and learning how to best manage it. Here, she includes her tips and tricks to control your CRPS/RSD as a chronic illness. She finds the following tips helpful for her own pain.   The reality of living with RSD/CRPS is that it is a lifelong chronic illness, which requires management and attention to avoid exacerbating symptoms.  I consider myself very fortunate to have most of my RSD symptoms under control at the moment.  But I do get flare ups of pain and swelling from time to time, and I’m always aware of how my affected foot is feeling in order to prevent symptoms from getting out of control. …
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Fear of Distance- RSD / CRPS and The Journey Away from Home

Published on December 6, 2016 under Guest Blogger for RSDSA
By Guest Blogger Rachel Ehrenberg Rachel is a member of the RSD / CRPS community that had the opportunity to be a part of DCP, or the Disney College Program. She details what it is like to be so far away from home, for the first time, with CRPS. 997.2 miles. 997.2 minutes. 16 hours. These are just numbers that form a distance to most people. But when you are living with a chronic illness, 997.2 miles is a long way from home and your comfort zone. That’s exactly what it was for me. In January, I packed up my things and moved from South Jersey to Orlando. I was beginning a journey of a lifetime and starting the Disney…
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The Friend Who Didn’t Tell Me About Their Chronic Illness

Published on June 1, 2016 under Opinion
By Melissa Lovitz, Guest Blogger for RSDSA Dear Friend, I think you didn’t tell me about your chronic illness because I didn’t create a space for you to share with me more about your whole self. I wasn’t fully open and honest with you either – I’m sorry. Living with an invisible illness isn’t easy, and sometimes the shame and stigma that is associated with our conditions hinders our ability to be forthcoming about this important aspect of our lives. But, our silence perpetuates the invisibility of our illnesses – just saying. I think you didn’t tell me because you’re so used to, and good at, managing your condition on your own.  I am too! I wonder if you thought…
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Living Beyond Your Illness- Getting By With CRPS

Published on March 1, 2016 under Guest Blogger for RSDSA
By Guest Blogger Suzanne Stewart. Originally Featured on her Tears of Truth blog. Hello Luvs, IF you haven’t read any of my blog before, you won’t know that I always start out my blog with “Hello Luvs”.  I had meant to write this long ago, but time gets away from all of us, so today the phone was on mute and the kitty was lying in her spot with me in the same room and it seemed a good time to write about this.  We can all get down and sad sometimes, even depressed.  I mean, having a chronic illness, or a list of chronic pain illnesses can get pretty monotonous to say the least! If you let yourself get…
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