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How CRPS Is Like a Wailing Alarm That Never Shuts Off

Published on June 27, 2017 under Guest Blogger for RSDSA
By Guest Blogger Roberta Hierath This blog about CRPS being a wailing, screaming alarm that never shuts off was originally featured on The Mighty. We were given permission to post it as a part of #TheTuesdayBurn, especially since it explains the overwhelming feelings that CRPS can bring on. One thing I’ve learned in seven years of living with Complex Regional Pain Syndrome is that there is almost no one in the regular course of my life who truly understands what constant, unwavering and intense pain really feels like. I am glad for that fact as I wouldn’t wish this on anyone, but it does make it harder for people to relate to my daily experience. So I am going to try…
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7 Things I Can Do When The Pain Is Too Much- CRPS Blog

Published on June 20, 2017 under Guest Blogger for RSDSA
By Guest Blogger Kelly Hodgkins This blog was originally posted on Moonglotexas. Click here to view the original post. This post, entitled "7 Things I Can Do When The Pain Is Too Much" was posted with permission and offers great insight into things that you can do, or try to do, when your CRPS/RSD pain feels like too much. My CRPS has a habit of flaring up on days I’ve made plans to do fun things that rejuvenate my soul. Snuggled up under my duvet, I visualize the landscape before me trotting along on my horse. I rearrange flower beds, trim branches and try out that great idea from a book. Coffee in hand, I catch up with a friend…
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Understanding CRPS/RSD- As Taken from Fitness for Your Health

Published on May 30, 2017 under Guest Blogger for RSDSA
By Michael Sullivan, PT, MSPT This blog about understanding CRPS was originally featured on Fitness for Your Health. Learn about the pain and how they diagnosis it here. This week’s topic is one not many know too much about but it can be a very debilitating condition.  Those who suffer from Complex Regional Pain Syndrome (CRPS), A.K.A. Reflex Sympathetic Dystrophy (RSD), know far too well how bad this condition is.  It is a very complex condition (hence the name), so we have asked the Director of Physical Therapy here at our clinic to explain it. Michael Sullivan earned his MSPT at Duke University in 1989.  He worked in private practice for 8 years before deciding to move to help those…
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Never Let Pain Define You- CRPS Inspiration

Published on May 23, 2017 under Guest Blogger for RSDSA
By Guest Blogger Gabe King Guest blogger Gabe returns this week. After his blog entitled "A Thorn in the Flesh" was well-received, he returns to write about how CRPS pain can change you, but it doesn't need to be in a negative way. "Don't let pain define you, let it refine you." -Tim Fargo With chronic pain, it can be very easy to allow it to define who you are. You can feel like just giving up and allow it to control every inch of your life, letting it decide who you can be. In all honesty, I have found myself doing the exact same thing. Because of how extensive and unpredictable our condition is, we find it extremely difficult to…
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CRPS and Mental Health- Stress and Other Elements

Published on November 22, 2016 under Guest Blogger for RSDSA
By Roderick Borrie, Ph.D.   The last thing Penny expected was to be seeking help from a psychologist.  She had always been a fiercely independent person who could take on most problems and solve them on her own. Penny was the one who took care of others, not the other way around. An accident at work in January, 2015 changed all that. After some convalescing and physical therapy, Penny assumed that she would be able to bounce back to her old self. But that didn’t happen. At first she was merely frustrated by the tenacity of the pain in her neck and shoulder, but it evolved into fear as her pain worsened and spread into her left arm and down…
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Calmare Scrambler Therapy- When Traditional CRPS Treatments Don’t Work

Published on October 4, 2016 under Guest Blogger for RSDSA
By Michael J. Cooney, D.C. Clinical Director | Calmare Therapy NJ USA. Originally Titled: Calmare Scrambler Therapy- When Traditional CRPS Medications & Treatments Don't Work My 30-year career has revolved around treating pain. Since I was a kid, I was always trying to “fix” everybody. In high school, I played on the tennis team and was the self-designated team doctor. Decades later, Dr. Kelly and I grew frustrated that we could not lessen the pain of some of our treatment and medication-resistant patients at our clinic located just outside New York City. So we went in search of a non-invasive pain treatment to help the patients dealing with severe neuropathic pain and we discovered Calmare. We introduced this technology in…
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Comparing Pain- Why We Shouldn’t Do That

Published on September 20, 2016 under Opinion
By Samantha Barrett There are some things that we all do subconsciously. We judge books (and people) by their covers, we tell little white lies to spare people’s feelings, and we compare our pain to the pain of people around us. None of these actions are particularly good for us, especially when it comes to comparing pain. But why is something that comes so naturally to so many of us harmful? It is a touchy subject, so let’s dive right in. I was diagnosed ten years ago with CRPS/RSD. At the time, I was incredibly young and getting bullied for having a condition that no one could see. I needed to educate myself so I could educate others. When I…
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A Measured Approach to Pain- Help People with Chronic Pain

Published on September 13, 2016 under Guest Blogger for RSDSA
By Guest Blogger Elisa Friedlander Written for the Huffington Post initially titled: A Measure Approach to Pain: Tools to Help Patients and Doctors "There’s one question I’ve been asked more than any other in my adult life. On a recent visit to the emergency room, I heard it once again. My pain was so intense I could hardly tolerate the standard intake procedures: getting my blood pressure taken and explaining why I was there was beyond me. When I told the admitting nurse about my symptoms, she followed up with those overly familiar words. “What’s your pain level on a scale of 1-10?” I couldn’t do it. It might have been the feeling of scalding hot knives piercing my body…
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CRPS Supporters: You and Me Against the World

Published on June 21, 2016 under Guest Blogger for RSDSA
By Guest Blogger Shannon Sometimes, it just takes one person to make a significant difference in the life of someone with CRPS/RSD. For Shannon, that person is her mother. See how Shannon's mom has helped her on her CRPS/RSD journey and how music tied them together even more.   I remember growing up and hearing the song “You and Me Against the World” on the radio. At the time, I did not appreciate all that it stood for; however, I do now.  This could be yet another theme interwoven in my 26.5-year journey dealing with RSD, as this is how it has been for my mom and me.  She has been by my side helping me to fight the battle,…
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RSDSA Spotlight: When to Listen- A Day In The Life With CRPS

Published on January 5, 2016 under Guest Blogger for RSDSA
By Autumn Strand, Guest Blogger for RSDSA I, like many, had never heard of RSD/CRPS until it actually happened to me. I remember on the ride home googling it after the 3rd doctor I had been to said it is what I more than likely had. After many tests and even more treatments, I was diagnosed with this mysterious disease but I still wasn't sure what was happening to me. I have done a lot of research, and I am still learning new things every day. In my experience, most doctors do not know very much about RSD/CRPS so how can other people know? In the world of invisible illnesses it is almost impossible for people without them to know…
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