reflex Sympathetic Dystrophy

CRPS Awareness Day 23: Why We Are Thankful Despite CRPS

Published on November 23, 2017 under RSDS General Info
Compiled by Samantha Anderson Thanksgiving can be a particularly difficult time for people living with CRPS. The holidays in general are stressful. Whether you are hosting dinner at your house or have to travel to a relative’s house, it can be stressful. However, Thanksgiving is a wonderful part of the year, as we get to reflect on why we are thankful. Sometimes, it can be difficult to be thankful when you are living with the pain associated with CRPS. But, there is always at least one reason. We asked members of our wonderful RSDSA community to let us know what they are thankful for this year. We received an overwhelming amount of responses. After reviewing everyone’s amazing submissions, we wanted…
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CRPS Awareness Day 16: What We Lose When We Undertreat Pain

Published on November 16, 2017 under Guest Blogger for RSDSA

Vlog by Kate Nicholson This video is being shared with Kate Nicholson's permission. Kate was a civil rights attorney for the Justice Department when pain consumed her life. Using opioids to function, she moved on to become a federal prosecutor. Based on her experience, she recorded this TED Talk to show how the opioid "crisis" is harming the people in pain that need it and how it harms so many when we undertreat pain. Thank you to Kate for sharing her story and her opinion on such a large platform. We are honored to share it through our blog as a vlog. The full description of this YouTube video states: "Kate Nicholson was working as a civil rights attorney for…
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CRPS Awareness Day 13: Becoming an RSD Warrior

Published on November 13, 2017 under Guest Blogger for RSDSA
By Guest Blogger Amy Marie Suss There are moments in which we realize our lives are changing, forever. Amy Marie Suss realized hers was changing a decade ago. Little did she know, this day would lead to RSD/CRPS and to becoming a warrior against pain. April 30, 2007.  That was the day my entire world changed.  I was driving home from work when a 17-year-old kid blew a stop sign, going well over the speed limit, while trying to make a ninety degree turn less than fifty feet in front of me.   There was nothing I could do and I hit him -- head on.   I remember bits and pieces from the rest of that day.  The sound…
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CRPS Awareness Day 12- My Burning Nights Complex Pain Story

Published on November 12, 2017 under RSDS General Info
By Guest Blogger Victoria Abbott-Fleming I grew up in the North West, UK as an only child and went through early life enjoying school, sports and music. At primary school I made Head Girl and became a Head of House and School Prefect at Secondary School. My childhood was a very happy one! I became the first in my family to go to university and I eventually qualified as a Barrister and was Called to the Bar in 2002. I loved it but knew it was a tough profession to get in especially for women. After University I got a job as Head of the Law Department at a college. I loved it! Passing over my legal knowledge that I…
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CRPS Awareness Day 11: A CRPS Veteran on Veterans Day

Published on November 11, 2017 under Guest Blogger for RSDSA
By Shara Wilkey, Capt. USMC Ret. I graduated from Fountain Valley High School after marching I President Ronald Regan’s Inaugural Parade plating the Tuba. I auditioned for the US Marine Corps Band about two-months after returning from Washington DC. Within a month of graduating high school I was at Parris Island, South Carolina at boot camp! After boot camp, I went to the School of Music at Little Creek Amphibious Base, Norfolk, VA for 6-months. Then I was stationed at 29-Palms, Ca Drum & Bugle Corps. During this time, I was able to play at a taping for a USO Anniversary in Hollywood, having dinner with Scattman before he passed away then the Drum & Bugle Corps Unit drove down…
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CRPS Awareness Day 10: CRPS Teacher Turned Student

Published on November 10, 2017 under Guest Blogger for RSDSA
By Guest Blogger Lara Santoro, Ph.D. Lana Edwards Santoro, Ph.D., is a teacher, educational consultant, writer, and amateur photographer. She also lives with Complex Regional Pain Syndrome (CRPS). Embracing CRPS turned this teacher back into a student. Lana’s interest in education began when she was in elementary school. She loved reading and never passed an opportunity to visit books in the library. She remembers setting up a “school” at home in her living room, and how her grandfather lovingly subjected himself to her improvised reading lessons. Lana’s early interest in teaching and learning became her professional work. With an interest in multidisciplinary, integrated approaches to education and health, she taught in a residential treatment program, psychiatric hospital, and a center…
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CRPS Awareness Day 9: My CRPS and DRG Story

Published on November 9, 2017 under Guest Blogger for RSDSA
By Guest Blogger Marcia Nolting Treatments for CRPS or RSD vary per person. We would like to note that you should always consult with your medical team about treatment options. For Marcia, DRG was the right answer. See what she was able to do due to DRG.   My name is Marcia and I've had RSD for almost ten years and as of writing this, am post Abbott DRG stimulation surgery 4 months.   A decade ago, I tripped over a step and thought someone had cut my left ankle/foot off, it hurt so bad. The pain was instant, continuous and unrelenting. The ER thought I was insane and sent me home with what they termed a "sprain" and to…
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CRPS Awareness Day 8- The Young Chronicle with Vicky

Published on November 8, 2017 under Guest Blogger for RSDSA
By Ashley Epping The Young Chronicle is a new blog series started by Ashley to get insight on CRPS/RSD from young adults. Each blog will offer insight to the unique challenges that young adults with chronic pain face and their ways of coping, healing, and continuing on. Vicky is a 25 year-old from Illinois who was diagnosed with CRPS nine months ago. Her original injury was a trauma to her foot while playing soccer. As she started seeing doctors and making trips to the emergency room, her pain was dismissed as a bruised bone. Once she was accurately diagnosed with CRPS, the doctor said to her “If you don’t act on this fast, you will be disabled for the rest…
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CRPS Awareness Day 7- Ketamine Treatment Information

Published on November 7, 2017 under Guest Blogger for RSDSA
By Guest Blogger Allison Wells, MD Dr. Wells shares her take on ketamine treatment information for CRPS. She offers insight to what she thinks works best, the effects CRPS can have on a person, and the impact of infusions. Please note that this is Dr. Wells' opinion and we advise that all members of the CRPS community consult with their doctor about the best options for them. CRPS / RSD can cause intense, chronic pain and can be debilitating. Many CRPS patients have lost jobs, friends and family relationships due to their illness. Many have been forced to give up activities they love and most also suffer with anxiety and depression related to their condition. Physicians and researchers are still…
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CRPS Awareness Day 3: The Media Coverage of Chronic Pain

Published on November 3, 2017 under Guest Blogger for RSDSA
By Guest Blogger Melissa Lovitz Melissa initially featured this blog on her blog site. The post was called: The Media Coverage of Chronic Pain is Oversimplified. Read what Melissa's thoughts are on the media's coverage of RSD and chronic pain. You can also click here to see her blog.   The Washington Post recently published an article about CRPS titled “The Strange Pain that can Overcome Kids, Especially High-achieving Teenage Girls.” The article was shared with me by someone who has never experienced a chronic, physical illness and believes that you can actually have unlimited spoons. The premise for sharing this article was simply, “I thought it could be interesting”. Here’s the thing about living with CRPS: it’s not interesting, it is…
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