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RSD/CRPS

Color the World Orange 2016 – CRPS Awareness

Published on October 25, 2016 under Events
It all starts with an idea. That’s how our friends over at Color the World Orange became successful. They had an idea and acted upon it. Now, we are approaching the 3rd Annual Color the World Orange Day on November 7, 2016! Color the World Orange is a day of worldwide awareness for CRPS. Taking place on the first Monday in November, Color the World Orange encourages members of the CRPS/RSD community to take action. Whether people are getting their friends and family to wear orange to school or work, or if they are getting proclamations for their city/state, every part of Color the World Orange helps make a difference. This year, Color the World Orange is even listed on…
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The Myth of a Cure for CRPS

Published on October 11, 2016 under Guest Blogger for RSDSA
WHAT DOES REMISSION LOOK LIKE? By Dr. Katinka van der Merwe Dr. Katinka van der Merwe is a chiropractor who practices in Fayetteville, Arkansas. She treats the Central Nervous System, (specifically the Autonomic Nervous System) with the “Three Punch System”, recently revised to the “Four Punch System.” Her work is detailed on this site in an earlier blog. She has treated CRPS patients from all over the world in her clinic, and is the author of “Putting Out the Fire: New Hope for RSD/CRPS Patients,” expected to be released on Amazon in November. Her clinic number is 479-966-9766. Through the years of working with CRPS patients, I have often encountered what I refer to as “the myth of remission.” What…
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RSDSA’s Longest Day of Golf- Meet Zach

Published on September 26, 2016 under Events
Interview Conducted by Samantha Barrett Monday, September 26 is RSDSA's very first Longest Day of Golf. We wanted to find someone that would represent us in a great way. That's when Zach Baron came along. As this is being posted, Zach is trying to complete as many holes of golf as possible for RSDSA. People have been making pledges per hole and one-time donations to make this event a success. The more holes of golf Zach completes, the more fundraising is done for RSDSA. We interviewed Zach before he took to the green. Samantha Barrett: Hi Zach! Thank you for participating on behalf of RSDSA for the Longest Day of Golf. Can you tell us a little bit about yourself?…
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Long Island and CRPS- RSDSA’s New Walk

Published on August 16, 2016 under Events
By Samantha Barrett, Special Events Coordinator There is a new event coming to the RSDSA community. I have been particularly excited about it since I’ve been working with the three wonderful women from the walk committee for months now. Millie, Debbie, and Beth all live with CRPS. They hadn’t known each other very well until this walk started to get planned. These three women have been working day in and day out to ensure that the Long Island CRPS/RSD Awareness Walk is a success. Every two weeks, we have a giant conference call and I get to hear about everything they have planned for September 10, 2016 in Eisenhower Park. It is an event not to be missed. Because I…
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Matthew’s Story- Hope and Perspective

Published on August 9, 2016 under Guest Blogger for RSDSA
By Guest Blogger, Matthew When a person is diagnosed with CRPS, often times it can be a confusing, complex time. Read what Matthew has gained from his diagnosis and what he hopes for your future. My name is Matthew. I'm a 19-year-old male from Melbourne, Australia.  I was just recently diagnosed with stage 3 Complex Regional Pain Syndrome, but to most people's surprise, it was an absolute relief. My injury started 5 years ago as a 14-year-old kid playing basketball. I clashed knees with an opposing player, which I had done hundreds of times before- everyone in sport has. All the usual symptoms of that type of injury came on and lasted weeks: swelling, bruising, dull ache, and redness. 4…
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Feeling Good (Again) at CCK’s Pain Week

Published on August 2, 2016 under Youth
  By Sammie Barrett Last year, you may recall that I had my very first camp experience at the Center for Courageous Kids in Scottsville, Kentucky. I liked it so much that I went back to represent RSDSA again this year! If you thought the inaugural year was amazing, wait until you hear about this year. Thank you to The Coalition Against Pediatric Pain for allowing me to tag along with you. Another thank you to the US Pain Foundation and Rock Out to Knock Out RSD for co-sponsoring this camp, too! Last year, we had about 19 children total, which was a great first year! This year, we had 49 children total and then parents/guardians. We completely filled the…
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CRPS Supporters: You and Me Against the World

Published on June 21, 2016 under Guest Blogger for RSDSA
By Guest Blogger Shannon Sometimes, it just takes one person to make a significant difference in the life of someone with CRPS/RSD. For Shannon, that person is her mother. See how Shannon's mom has helped her on her CRPS/RSD journey and how music tied them together even more.   I remember growing up and hearing the song “You and Me Against the World” on the radio. At the time, I did not appreciate all that it stood for; however, I do now.  This could be yet another theme interwoven in my 26.5-year journey dealing with RSD, as this is how it has been for my mom and me.  She has been by my side helping me to fight the battle,…
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Team Caroline: A CRPS Story of Hope & Of Giving Back

Published on June 14, 2016 under Events
By Caroline Bert, Guest Blogger for RSDSA Caroline is a CRPS/RSD warrior that has been fighting for about 9 years. Now, Caroline is doing what she can to defy CRPS "limits" and to make a difference in the CRPS/RSD community through fundraisers. My name is Caroline Bert and I am 21 years old. In 2007 I broke my left wrist, when the doctor took my cast off my arm was crooked. After 11 months of many doctors ruling things out, my diagnosis was Reflex Sympathetic Dystrophy. Dr. Neil Kirschen treated me by a series of 3 stellate ganglion nerve blocks , and then on the first treatment of the second series I woke up with full relief. I went into…
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But I Still Look Fine- Living with Chronic Pain/CRPS

Published on May 10, 2016 under Guest Blogger for RSDSA
By Guest Blogger Tara White, RN, (Disabled)   I used to be a very active woman. I proudly served as a corpsman in the United States Navy for five years. I went to Nursing School and loved working in Obstetrics for twenty years. I climbed the difficult back of Half Dome in Yosemite National Park twice, and felt alive while cycling many hundreds of miles a year. I loved training with weights, power walking, skiing, kayaking, yoga, and many other outdoor activities.   Like many other women, I made a very poor choice of a first husband, though got a wonderful daughter out of the deal. Raising her by myself with microscopic child support but tremendous family support, I’ve watched…
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My Journey Back to Health: Barbara Wall and RSD

Published on May 3, 2016 under Guest Blogger for RSDSA
    By Guest Blogger Barbara Wall, Power Over Pain of Arkansas (Note: This is a success story from someone with RSD/CRPS that saw  Dr. Katinka van der Merwe. To read our article on Dr. Katinka van der Merwe's approach, click here). I was living life and enjoying all things around me. I did not feel that I took much of anything for granted. In 2005, I suffered a severe injury to my cervical spine (broken neck) as well as other injuries. As if dealing with a broken neck was not enough I received the diagnosis of Reflex Sympathetic Dystrophy (RSD), today known as Complex Regional Pain Syndrome (CRPS). I had the opportunity to practice as a registered nurse for twenty…
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