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With your support, RSDSA has been able to accomplish these 2018 Initiatives!

  • Co-sponsored 250 children with CRPS (and other pain syndromes) and their families at The Center for Courageous Kids Camp.  The experience allowed the campers to feel like kids again for the first time since the onset of their illness. This is our 4th year.  Wheelchairs welcome!
  • Sponsored Young Adult retreats in Austin, TX and Nashville, TN for 25 young adults (aged 18-25). Many had never met anyone who had CRPS.  Friendships, ongoing networking and a young adult committee have since developed,
  • Sponsored conferences in San Jose, CA and Charlotte, NC attended by 400 individuals with CRPS, caregivers, and medical professionals; 14 new educational videos were added to our YouTube channel.
  • 362 individuals with CRPS received emergency funding to pay for heat and other utilities, rent, durable medical equipment, travel expenses to obtain medical care and more,
  • Created a new Advocacy Committee which will explore and promote the interests of the CRPS community. It will create awareness, encourage increased clinical and research funding, and promote changes in the CDC Guidelines,
  • Answered more than 5000 emails and phone calls which poured into our office. Our compassionate staff answered questions, provided information packets and a list of knowledgeable health professionals who understand and treat CRPS,
  • Mailed 17,725 newsletters to individuals with CRPS, health professionals and caregivers three times a year. The newsletters, filled with the latest updates and inspiring personal stories, were also sent electronically 3 times a year to our online community.