2022 Initiatives

With your support, RSDSA has been able to accomplish these 2022 Initiatives!

  • Provided more than $5,000 to individuals with CRPS who received emergency funding to pay for heat and other utilities, rent, durable medical equipment, travel expenses to obtain medical care and more.
  • Sponsored our third annual four-day virtual conference attended by thousands of people
    with CRPS, caregivers, and medical professionals.

    • Continued publication of a monthly digital newsletter, In Rare Form for the CRPS
      community which is sent to 21,400 emails with an open rate of 32%
  • Sponsored 9 Facebook Live presentations which highlighted CRPS research, treatment, and many interventions to manage CRPS. Viewed more than 33,000 times.
  • Launched our third virtual walk which raised 111% over the goal. We had more than 250 participants and 30 teams. Our live stream on walk day visited walkers from California to the New York islands
  • Answered more than 5,000 emails and phone calls which poured into our office. Our compassionate staff answered questions, provided information packets and a list of knowledgeable health professionals who understand and treat CRPS
  • Educated and supported the CRPS community on our Facebook page with 210 posts which reached 633,233 people.
  • RSDSA Social Numbers
    • Facebook – more than 26,000 followers
      • Posts were seen over 737K times. Posts had 67K engagements (shares, comments, likes, clicks, etc.)
    • Twitter – More than 5,000 followers
      • Posts were seen over 33.5K
    • Instagram – 3,200 followers
      • Posts were seen over 84.8K times
    • YouTube – 8.9K subscribers
    • We gained 826 subscribers
  • Hosted an invitation-only research meeting in Toronto along with the International Research Consortium, to discuss the direction of CRPS research and our next steps for a study of targeted treatment based on subtypes of CRPS.
  • Along with The Pediatric Coalition against Pediatric Pain (TCAPP), hosted two sessions of Zoe’s Zoomalong Camp for ages 7-18. This included six planned activities, such as Lego Masters, Art Therapy, Escape Room, Disney Bingo, and baking with a Chef. All gatherings were virtual.
  • Helped to sponsor successful community building, awareness and fundraising in person walks in California, New Jersey, and Texas, as well as our annual Virtual Walk.