With your support, RSDSA has been able to accomplish these 2022 Initiatives!
Provided more than $5,000 to individuals with CRPS who received emergency funding to pay for heat and other utilities, rent, durable medical equipment, travel expenses to obtain medical care and more.
Sponsored our third annual four-day virtual conference attended by thousands of people
with CRPS, caregivers, and medical professionals.
Continued publication of a monthly digital newsletter, In Rare Form for the CRPS
community which is sent to 21,400 emails with an open rate of 32%
Sponsored 9 Facebook Live presentations which highlighted CRPS research, treatment, and many interventions to manage CRPS. Viewed more than 33,000 times.
Launched our third virtual walk which raised 111% over the goal. We had more than 250 participants and 30 teams. Our live stream on walk day visited walkers from California to the New York islands
Answered more than 5,000 emails and phone calls which poured into our office. Our compassionate staff answered questions, provided information packets and a list of knowledgeable health professionals who understand and treat CRPS
Educated and supported the CRPS community on our Facebook page with 210 posts which reached 633,233 people.
RSDSA Social Numbers
Facebook – more than 26,000 followers
Posts were seen over 737K times. Posts had 67K engagements (shares, comments, likes, clicks, etc.)
Twitter – More than 5,000 followers
Posts were seen over 33.5K
Instagram – 3,200 followers
Posts were seen over 84.8K times
YouTube – 8.9K subscribers
We gained 826 subscribers
Hosted an invitation-only research meeting in Toronto along with the International Research Consortium, to discuss the direction of CRPS research and our next steps for a study of targeted treatment based on subtypes of CRPS.
Along with The Pediatric Coalition against Pediatric Pain (TCAPP), hosted two sessions of Zoe’s Zoomalong Camp for ages 7-18. This included six planned activities, such as Lego Masters, Art Therapy, Escape Room, Disney Bingo, and baking with a Chef. All gatherings were virtual.
Helped to sponsor successful community building, awareness and fundraising in person walks in California, New Jersey, and Texas, as well as our annual Virtual Walk.
