CRPS Warriors Memorial
RSDSA is highlighting CRPS Warriors we have lost over the years.
If you have a loved one you would like added to this memorial, please send us an email at info@rsds.org.
| CRPS Warrior’s Photo | CRPS Warrior’s Name | Sunrise | Sunset | Their Story |
|---|---|---|---|---|
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Hannah Bernard | October 02, 1996 | December 27, 2015 | Hannah was an indomitable warrior. She courageously fought CRPS, Ehlers Danlos Syndrome, Postural Orthostatic Tachycardia Syndrome, Gastroparesis and Dystonia for over 10 years. She was smart, funny and strong. She never gave up and appreciated every day.She wanted to educate and spread awareness about these rare disorders and fought for quality of care for all Zebras.Her unwavering strength, determination and kindness made a difference in the world. – Janet Bernard |
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Preston Lee Downing | July 22, 1996 | May 29, 2021 | Preston’s life was a journey filled with love, joy, laughter, and some adventures. He was incredibly caring and generous. He loved going on family trips including Disneyland, Las Vegas, and Hawaii. He always lobbied for room service in the hotel and had champagne taste with our beer budget. He was in Cub Scouts and Boy Scouts, which gave him the opportunity to explore the outdoors. Preston was not exactly a ‘wilderness kid’, but some of his favorite outings were rafting, swimming at Catalina Bay, and summer camp. Preston adored his older sister and they were inseparable as children. |
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Andrea L. Gianopoulos | December 15, 1982 | February 11, 2009 | Andrea was a Warrior from the day she was diagnosed with RSD at 13. Over the years, Andrea did whatever she could while she could to keep active. From marching band to college to starting Fighting4US, a non profit dedicated to helping others, Andrea never gave up. 2002 ketamine in Germany, 2009 ketamine in Mexico where her body decided she had enough. We miss her forever and ever and even longer than that. |
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Rusty Hutchinson | 1952 | 2019 | After being diagnosed with RSD in 1996, Rusty was one of the first people I met who had RSD/CRPS. Rusty had lost his arm in an accident involving a piece of farm machinery. He ended up with RSD in that arm. While I was planning a 5K for RSD/CRPS awareness in our town in 2019, Rusty passed away from cancer. – Deborah Robbins |
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John Michael Molinares | November 5, 1978 | June 16, 2021 | Even with a debilitating health condition, John never backed down from a fight and continuously fought to raise awareness for CRPS/RSD. He was an advocate for the Michigan chapter of Team Tenacity, and went before Senators, Congressman, and Michigan State Delegates to push for increased recognition and funding for CRPS/RSD. |
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Della Ferguson Novick | July 27, 1943 | September 24, 2019 | My sweet sister. A woman of wisdom, strength, and courage. Put through the fire and tempered to become A PERFECT GEM. She was my only comrade in a war that is invisible to most of the world. I will carry you close in my heart. ALWAYS. – Janice Matsumoto |
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Hunter Lia Zager | 1987 | 2016 | I am forever grateful to have known Hunter. She was the bravest and strongest person I have ever known – giving so much of herself and always helping others – when her pain was unbearable. She taught me so much about RSD/CRPS, and was such an inspiration to me and so many others. The world was truly a better place with her in it. ❤️ – Kristin Crosley |