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Category: Support Groups

CRPS Awareness Day 2-Burning Nights CRPS Support in the UK

Published on November 2, 2017 under Guest Blogger for RSDSA
By Guest Blogger Victoria Abbott- Fleming Our friend, Victoria, runs a support network for people with CRPS in the United Kingdom (UK). We asked her to write up a little bit of what Burning Nights does. Here is what she wrote. Thank you, Victoria! Burning Nights CRPS Support finally began and went live in September 2014 and we became a registered UK charity in April 2016. At the time of it being set up not a single UK charity or website existed that was dedicated to raising awareness & supporting people affected by Complex Regional Pain Syndrome (CRPS) not only those living with CRPS but including the carers, family members, friends and loved ones. There was just insufficient and no…
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I Feel Your Pain: The Power of Witness in Support Group

Published on December 4, 2015 under Guest Blogger for RSDSA
By Elisa Friedlander, from her blog. "People have a deeply innate desire to be seen. I'm not talking about Facebook selfie type visibility, I mean really be seen. To have people, or even that one person, be tuned-in to your joy, struggle or other experience. To simply be present without trying to fix you. When somebody bears witness to a piece of my story, we've established a connection and those shared moments become a part of me. I have received a valuable gift.  To be witness to the story of another is also powerful. Even though deep down we want people to see who we are, we might be conflicted about that. It can feel vulnerable, uncomfortable or even unsafe…
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