Empower yourself with the latest CRPS information
RSDSA provides not only these publications but other information as well for the benefit of our members and the general public. The RSDSA does not endorse any particular treatment/medication/publication/guideline etc. but rather supplies these for the edification/education of the CRPS community. We encourage those who use the information to discuss the same with your physician or provider.
RSDSA has published a number of articles and gathered other information, including research studies, to help individuals and family members to understand this little-known and puzzling syndrome. Feel free to print out/download content from this page, or call us at 877-662-7737 for paper copies.
RSDSA Community Update Archive
Select the Community Update issue you would like to download.
RSDSA Information Packages
Brochures and Cards
Brochures to help you in school, post secondary education, or in the workplace
- An Overview of Complex Regional Pain Syndrome (Updated July 2023)
- When Your Child’s Pain Won’t Go Away – It could be Complex Regional Pain Syndrome
You are your child’s best advocate. Your child frequently experiences severe pain following an accident, injury or other trauma. It may be accompanied by swelling, changes in skin color, temperature, or limited mobility. He or she is suffering, and other treatments have been ineffective. Worst of all, he or she may not be able to tell you what’s wrong. Your child could have CRPS (Complex Regional Pain Syndrome) which is also referred to as RSD (Reflex Sympathetic Dystrophy). - Dental Guidelines for the CRPS Patient (English)
Dental Guidelines for the CRPS Patient (Spanish)
Planning a dental procedure? Please read and share with your dental professional - Emergency Guidelines for the CRPS Patient (English)
Emergency Guidelines for the CRPS Patient (Spanish)
This sheet contains patient tips and hospital procedures for an emergency room protocol for the CRPS patient. Included are hospital procedures, how to take blood pressure and pulse rate, transport, and patient identification. Don’t leave home without it! - Hospital Guidelines for the CRPS Patient
The document lists over two dozen specific suggestions for a care plan in areas including: setting up the patient room, performing medical procedures, taking blood pressure and pulse rate, transporting, feeding, and identifying CRPS patients. - Guidelines for Health Care Aides, Personal Care Assistants, and Certified Nurse Assistants
- I Have CRPS Cards (Click here to access the 2017 version)
This card describes CRPS from the point of view of a person with the syndrome and some suggestions on how others might help. Cards are free. We only ask for a small good-will donation to defray costs and to support our mission. - Tips for Managing Complex Regional Pain Syndrome
Physical and Occupational Therapy Publications
Treating Complex Regional Pain Syndrome: A Guide to Therapy
A brochure on treating CRPS from an occupational therapist.
YouTube Videos
Livestream with UCSD's Dr. Fadel Zeidan and Yasmeen Esshaki – CRPS Research Study
Livestream with Dr. Philip Getson
Livestream with Dr. Lisa Van Allen, Chair of RSDSA’s Advocacy Committee
CRPS and Lymphedema | Livestream with Lynn Clemons CLT, MMP, LMT and Mark F. Davy MD