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RSDSA’s Longest Day of Golf- Meet Zach

Published on September 26, 2016 under Events
Interview Conducted by Samantha Barrett Monday, September 26 is RSDSA's very first Longest Day of Golf. We wanted to find someone that would represent us in a great way. That's when Zach Baron came along. As this is being posted, Zach is trying to complete as many holes of golf as possible for RSDSA. People have been making pledges per hole and one-time donations to make this event a success. The more holes of golf Zach completes, the more fundraising is done for RSDSA. We interviewed Zach before he took to the green. Samantha Barrett: Hi Zach! Thank you for participating on behalf of RSDSA for the Longest Day of Golf. Can you tell us a little bit about yourself?…
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Comparing Pain- Why We Shouldn’t Do That

Published on September 20, 2016 under Opinion
By Samantha Barrett There are some things that we all do subconsciously. We judge books (and people) by their covers, we tell little white lies to spare people’s feelings, and we compare our pain to the pain of people around us. None of these actions are particularly good for us, especially when it comes to comparing pain. But why is something that comes so naturally to so many of us harmful? It is a touchy subject, so let’s dive right in. I was diagnosed ten years ago with CRPS/RSD. At the time, I was incredibly young and getting bullied for having a condition that no one could see. I needed to educate myself so I could educate others. When I…
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A Measured Approach to Pain- Help People with Chronic Pain

Published on September 13, 2016 under Guest Blogger for RSDSA
By Guest Blogger Elisa Friedlander Written for the Huffington Post initially titled: A Measure Approach to Pain: Tools to Help Patients and Doctors "There’s one question I’ve been asked more than any other in my adult life. On a recent visit to the emergency room, I heard it once again. My pain was so intense I could hardly tolerate the standard intake procedures: getting my blood pressure taken and explaining why I was there was beyond me. When I told the admitting nurse about my symptoms, she followed up with those overly familiar words. “What’s your pain level on a scale of 1-10?” I couldn’t do it. It might have been the feeling of scalding hot knives piercing my body…
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Opioids: Friend or Foe? | CRPS

Published on September 6, 2016 under Guest Blogger for RSDSA
By Alaa A. Abd-Elsayed, MD (Dr. Al) Assistant Professor Department of Anesthesiology University of Wisconsin School of Medicine and Public Health Madison, WI   It is nearly impossible to search for information on chronic pain conditions without stumbling across articles on the dangers of opioids.  The FDA has recently published action plans to reduce opioid abuse and a number of states are putting together new regulations regarding opioid prescribing.  For those suffering with chronic pain, all this negative talk of opioids can make someone who is using (not abusing) them feel like they are wearing a scarlet letter.  While the rationale for implementing these strict regulations on opioid prescriptions comes with good intent, it is also a burden those in…
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Jodi’s Story of Hope- DRG Stimulator and CRPS

Published on August 30, 2016 under Stories of Hope
Read this story of hope about Jodi, who lives with CRPS, from Ainsworth Institute of Pain Management. "Jodi, like most women, does it all. She is a mom, Nonna, baker, kickboxing instructor, softball player, wife, sister, you name it! Jodi led a very active, very busy and very happy life. On April 17th, 2014 while on vacation, Jodi was involved in an automobile accident that would leave her with a broken ankle. Jodi’s doctor noticed her ankle wasn’t healing properly and there was a lot of sensitivity in the leg near and around the broken ankle that was not normal. Her doctor had a hunch it was Complex Regional Pain Syndrome, or CRPS…a short time later the became progressively worse and the diagnosis…
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Being Told to Keep My CRPS Quiet

Published on August 23, 2016 under Bully Free Zone
=== By Samantha Barrett Sometimes, people can be downright mean. When awareness is a crucial part of living with CRPS/RSD, what do you do when someone tells you that you should keep quiet about it? I’ve had CRPS for just about 10 years now. I was diagnosed as a pediatric patient. Being a teenager, I got easily irritated when people didn’t know what CRPS/RSD was or why I was still on crutches. People wrote posts on MySpace about me, calling me a faker. I lost a lot of friends because they didn’t understand why I couldn’t go to the movies or have sleepovers. To say I was angry would be an understatement. But I didn’t want to let that anger…
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Long Island and CRPS- RSDSA’s New Walk

Published on August 16, 2016 under Events
By Samantha Barrett, Special Events Coordinator There is a new event coming to the RSDSA community. I have been particularly excited about it since I’ve been working with the three wonderful women from the walk committee for months now. Millie, Debbie, and Beth all live with CRPS. They hadn’t known each other very well until this walk started to get planned. These three women have been working day in and day out to ensure that the Long Island CRPS/RSD Awareness Walk is a success. Every two weeks, we have a giant conference call and I get to hear about everything they have planned for September 10, 2016 in Eisenhower Park. It is an event not to be missed. Because I…
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Matthew’s Story- Hope and Perspective

Published on August 9, 2016 under Guest Blogger for RSDSA
By Guest Blogger, Matthew When a person is diagnosed with CRPS, often times it can be a confusing, complex time. Read what Matthew has gained from his diagnosis and what he hopes for your future. My name is Matthew. I'm a 19-year-old male from Melbourne, Australia.  I was just recently diagnosed with stage 3 Complex Regional Pain Syndrome, but to most people's surprise, it was an absolute relief. My injury started 5 years ago as a 14-year-old kid playing basketball. I clashed knees with an opposing player, which I had done hundreds of times before- everyone in sport has. All the usual symptoms of that type of injury came on and lasted weeks: swelling, bruising, dull ache, and redness. 4…
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Feeling Good (Again) at CCK’s Pain Week

Published on August 2, 2016 under Youth
  By Sammie Barrett Last year, you may recall that I had my very first camp experience at the Center for Courageous Kids in Scottsville, Kentucky. I liked it so much that I went back to represent RSDSA again this year! If you thought the inaugural year was amazing, wait until you hear about this year. Thank you to The Coalition Against Pediatric Pain for allowing me to tag along with you. Another thank you to the US Pain Foundation and Rock Out to Knock Out RSD for co-sponsoring this camp, too! Last year, we had about 19 children total, which was a great first year! This year, we had 49 children total and then parents/guardians. We completely filled the…
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Manual Ligament Therapy (MLT) and RSD/CRPS

Published on July 26, 2016 under Guest Blogger for RSDSA
By Arik Warren Gohl LMT, MMLT   Part 1- A Short History of Manual Ligament Therapy (MLT) In 2003 when I first began creating Manual Ligament Therapy (MLT), it was for this simple but important reason… Something different had to be done in the approach of helping those with pain. In those days as a medical manual therapist working in a Physical Therapy clinic, I became frustrated with the amount of time it was taking for people to heal while getting multiple therapies such as PT, Chiropractic, Massage , and anti-inflammatory injections. Inspired by an old chiropractic technique called the “Logan Basic” that a good friend, a Chiropractor named Dr. John Mishko had shown me, I decided to do something…
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