Written by Tony Gaburick for the RSDSA blog.
My story began on October 16, 1991. I was at work leaning on my left arm taking a window out of a home. All of a sudden, I got a shot of pain from my left collar bone down my arm and my arm went numb.
After several doctor appointments, I was diagnosed with Thoracic Outlet Syndrome and Reflex Sympathetic Dystrophy (known as Complex Regional Pain Syndrome).
I have had 10 major surgeries to present and three pain pumps plus legions in my spinal cord T6-T7. I have been receiving Brachial Plexus Blocks and Occipital Blocks 2-3 days a week for the past 27 years to stay functional. I also suffer from seizures.
My feelings throughout this process are that I thought I was worse than anyone else. I felt like I was the victim. However, as the days turned into weeks and then months, I opened my eyes to other patients and heard their stories. My outlook changed and now I try to be a more positive person. I began giving talks on “Living In Pain and How To Deal With It.” I also became more in touch with my body as to what I can and cannot do. I cannot drive due to seizures but I am able to help other with chores.
Presently to March 2022, I am still getting injections twice a week. I am continuing my talks and helping people with simple chores to make their lives easier.
If you would like to speak with Tony, please call his cell 570-516-1454 and leave a message that your call is related to CRPS.
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