James has served as RSDSA’s as Executive VP and Director for 22 years. He also serves on RSDSA’s Board of Directors. Under his leadership, RSDSA’s revenue has grown by three hundred percent (300%), more than $2 million has been invested in CRPS research and fellowships, and RSDSA is now recognized as the international “go-to” organization for the latest information of the diagnosis, treatment, and management of CRPS. In addition to leading RSDSA, Jim serves as a compassionate, knowledgeable point of contact for individuals newly diagnosed with CRPS or those suffering for decades with the intractable pain and disability caused by CRPS who reach out to RSDSA for direction.

Mary Beth has served as Patient Representative and Secretary to the Board. She has had CRPS for a period which spans many decades. She has been blessed with a life filled with support from her family and close friends, inspiring her to help others struggling with CRPS, especially those who are without social support. She was a prime mover behind RSDSA’s establishment of its Patient Assistance Fund in honor of Brad Jenkins and serves on RSDSA’s Grant Committee.

Hank is a caregiver. He recently retired as President of the Premium Audit Division for AIG. Prior to AIG, Hank spent 23 years at Citibank including Chief Operations Officer for Citibank Delaware. He serves on the Executive, Finance, and Audit Committees.

Peter is a recently retired Orthopedic Surgeon with a special interest in CRPS. He also serves on the Executive Committee and also as RSDSA’s liaison to the International Research Consortium for CRPS, which is currently funded by RSDSA.

Steve Shisler has had CRPS for 50 years as a result of a motorcycle accident in his youth. He has a special interest in litigating on behalf of people with CRPS. He practices law in Pennsylvania and serves as Secretary of the Board and on the Executive Committee.

Stephen is a person with CRPS for over 20 years who, along with Sharon Weiner, is a founding member of Living with RSDS where he has served as treasurer since inception. Mr. Brilliant is a sole proprietor of his own CPA business located in New Jersey where he specializes in accounting and taxation for small businesses, individual’s estates and nonprofits. He is also an adjunct accounting and taxation professor at Kean University. As the Treasurer of the Board, he serves on the Executive, Finance and Audit Committees.

Sharon is a person with CRPS for over 20 years and the President of Living with RSDS, Inc., a New Jersey not-for-profit that offers multiple support groups and serves as a vice president of the Board. She serves on the Executive Committee and chairs the Support and Board Nomination Committees.

David is a father whose younger daughter has had CRPS for over 25 years. He is a retired Senior Vice President of Finance at Safeway, and serves on the Finance and Audit Committees.

Stephen is a Professor of Anesthesiology and NIH-funded chronic pain researcher at Vanderbilt University Medical Center. He was co-developer of the current diagnostic criteria for CRPS (the Budapest Criteria). He is chair of the Scientific Advisory Committee and serves on the Research Committee.

Norman has served as Professor Emeritus in Physical Medicine and Rehabilitation at Northwestern University (Evanston, IL) and the Rehabilitation Institute of Chicago (RIC) Center for Pain Studies, the latter of which he directed during the 1990’s. In 1998, he was awarded the Addison Chair in Pain Studies, and in 2000, he founded the Center for Pain Management. Having served as both a Falk Scholar and a Rosen Scholar, he was the first holder of the Robert G. Addison, MD, Chair in Pain Studies, RIC. He currently serves as Chair of RSDSA’s Research Committee and on the International Research Consortium for CRPS Steering Committee.

Robert is an active member on the Board, and husband of Maria, who lost her battle with CRPS. Founder and trustee of Maria’s Fund. He facilitates a support group in Denver.

Eric is the sibling of a young adult with CRPS. In 2018, he started a cycling campaign called Ride for Warriors to raise money and awareness for CRPS. Eric also gave a TEDx talk in 2020 about how to be a better ally to people with chronic illnesses He currently is the Communications Committee Chair.

Sue is a mother whose daughter was diagnosed with CRPS/RSD in 2005 and Ehlers Danlos Syndrome in 2012. She has been involved in raising awareness of CRPS/RSD and chronic pain since 2008. Sue has organized and participated in many fundraisers for non-profits for the last 20 years including Wide Horizons for Children, The Thornton Burgess Society, RSDSA and TCAPP. Sue is one of the founding Moms and the President of The Coalition Against Pediatric Pain. Her duties include presiding over the Board meetings, supporting children and families who live with pediatric pain conditions, fundraising, and working to fulfill the mission of TCAPP.

Ilona is a person who has CRPS and serves as the president of Patient Society CRPS, a patient advocacy committee in the Netherlands.

Kelly developed CRPS in 2005 after an ankle sprain while playing volleyball. Since then, she has become a fierce advocate for CRPS Warriors across the globe through numerous efforts. She has taken on many roles within RSDSA over the years, such as Chairing the 2nd and 3rd Annual Virtual CRPS Awareness Walks and through membership of RSDSA’s Development Committee, Patient Protective Task Force, and the Patient Representative on the Practical Pain Management Advisory Board.