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How DRG Differs from SCS- The Idea of Pleasant Stimuli in CRPS

Published on August 8, 2017 under RSDS General Info
By Guest Blogger Dr. Chu Dr. Chu details studies that have been done, treatments that have been done in the past, and findings for DRG versus SCS. As most patients suffering from Complex Regional Pain Syndrome know, long-term data regarding standard treatment for this oftentimes debilitating condition has been mediocre at best. In fact, most of the usual treatment available, until recently, have been extremely limited. Nerve-specific medications can have intolerable side effects and low responder rates. Injections such as sympathetic nerve blocks are typically short-lived. Even more advanced therapeutics such as Dorsal Column Stimulation (traditional SCS) have mixed results with patients reporting unwanted areas of stimulation or loss of pain relief over time. The idea behind neuromodulation is simple,…
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“A Happy Seven” Short Film Review- Relating Back to CRPS

Published on July 25, 2017 under RSDS General Info
By Guest Blogger Juli Wordgirl Chronic Pain Blogger, Juli Wordgirl, offers her insight into the short film entitled "A Happy Seven." How does she think this relates back to the CRPS/RSD community? Life with Complex Regional Pain Syndrome (CRPS) is very difficult for me. Over the past nine-years I’ve made some difficult decisions, and I’ve had to face the consequences of those decisions—whether they are my fault or not. But in the past two-years (especially the last six-months), I’ve made the decision to be pro-actively more positive in my mind-set. One of the steps I’ve taken in my pro-active path is finding a local chronic pain support group. The following review is based on my post on the support group’s…
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Knowing When To Push Yourself with CRPS

Published on June 13, 2017 under RSDS General Info
By Samantha Barrett What is your limit? How far can you truly push yourself and your CRPS? How do you gauge each and every day  when your ability changes by the hour? Samantha has experienced this and has some stories that may help. As someone who has been living with CRPS for over a decade, I ultimately know what my limits are. Did I learn what they were right away? Absolutely not. There was a lot of trial and error in the process. But overtime, I’ve learned to read the signals that my body has given me. I’ve met a lot of people with CRPS in my time with it, and the one thing everyone is trying to figure out…
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Ketamine Treatment Centers- Carolyn’s CRPS Treatment Story

Published on March 28, 2017 under RSDS General Info
Please meet Carolyn! Carolyn has been suffering with CRPS for many years now and we are so happy to share her success story.  After undergoing Ketamine infusions at Ketamine Treatment Centers, Carolyn has had a significant improvement in her quality of life and she was gracious enough to share her story and experience with us!     For any questions, please call us at 888-566-8774 or email us at info@ktcpartnership.com Click here to visit Ketamine Treatment Centers' Website. See you in Nashville!!!!   View Carolyn's Ketamine Treatment Centers Story Below: https://www.youtube.com/watch?v=VVgZVvNU3pw
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Painting CRPS: A Nurse’s Reflection of the Bible and Its Correlation to CRPS

Published on February 14, 2017 under RSDS General Info
Matthew 6:26 inspires artwork of a nurse living with Complex Regional Pain Syndrome (CRPS). This blog was originally posted on this website. Alyssa Skillman, RN, BSN had the wonderful opportunity to create a canvas and acrylic painting for the Boston Scientific Neuromodulation headquarters in California. They have a program that allows their patients with implanted devices to create artwork and send it in to be hung at the corporate office. Alyssa stated, "My rep knew I like to paint so she was excited to get me into the program. The company sent me the painting supplies and guidelines (for consistency purposes). This is what I created and the meaning behind it." Thank you for the opportunity to share my artwork.…
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You Have to Be There- Friendship and RSD

Published on July 19, 2016 under Guest Blogger for RSDSA
By Shannon Leidig, Guest Blogger "You have to be there, you have to Without you I drown in the deep Too far, too far from land The waters drag me down I reach for your hand" From the Musical Kristina I remember several years ago driving to my weekly massage appointment, listening to the Broadway channel on Sirius XM, when all of the sudden, out of the blue, came a song that I had never heard, from a musical I had never heard of.  I remember driving and sobbing/crying as this song sucker punched me in ways that I had thought about over my 26.5-year journey with RSD, but could not quite find the words. This song did it. I…
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Early Predictors of Complex Regional Pain Syndrome

Published on February 23, 2016 under Guest Blogger for RSDSA
By Randall Kaye, MD., Chief Medical Officer of Axsome Therapeutics, Inc. What could help identify patients with CRPS earlier? While increasing one's index of suspicion is likely the best way to promote early detection, please consider the strong predictors described below.   CRPS is often triggered by minor or major trauma, such as needle stick, wrist fracture, surgery, but it can also occur spontaneously. In the general population, CRPS seems to occur most often after fracture (40%-60% of CRPS cases) and surgery is the next most common precipitating event. Sprains, contusions, and crush injuries are also known triggers. Retrospective population-based studies founds that CRPS is 3 to 4 times more frequent in women than in men, more commonly affects the…
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Twelve Things People with CRPS Want You To Know About Them During the Holiday Season

Published on December 17, 2015 under Opinion
  By Samantha Barrett, Special Events Coordinator Tis the season to be jolly! Or at least, that’s what I’ve heard. I love the holiday season. There are beautiful lights and decorations everywhere, there are people singing cheery songs, there are fun, mindless movie marathons on TV, there is delicious food- all of my favorite things wrapped into one season. Maybe that’s why I am so exhausted this year! In my years with CRPS, I’ve noticed that things are a little different than what they used to be. But, I am finding a way to be a little less “bah-humbug” and a little more “holly jolly.” While some people may not understand why I’m Scrooge one moment and good ol’ Saint…
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I Feel Your Pain: The Power of Witness in Support Group

Published on December 4, 2015 under Guest Blogger for RSDSA
By Elisa Friedlander, from her blog. "People have a deeply innate desire to be seen. I'm not talking about Facebook selfie type visibility, I mean really be seen. To have people, or even that one person, be tuned-in to your joy, struggle or other experience. To simply be present without trying to fix you. When somebody bears witness to a piece of my story, we've established a connection and those shared moments become a part of me. I have received a valuable gift.  To be witness to the story of another is also powerful. Even though deep down we want people to see who we are, we might be conflicted about that. It can feel vulnerable, uncomfortable or even unsafe…
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How Camp Is Changing Lives For All Ages

Published on December 1, 2015 under Guest Blogger for RSDSA
By Candice Clifford. Volunteer from the Center for Courageous Kids Pediatric Pain Camp Session. CRPS Warrior. Experiences which leave an impression on your heart are the ones that stay with you forever… I ventured to Kentucky this past July to volunteer at the Center for Courageous Kids’ (CCK) inaugural Pediatric Pain Camp.  I took a solo trip, not knowing what to expect but ready to have fun with the campers.  To many, Kentucky seemed like a random place for this east coast girl to be traveling to.  However, as I reflect back on my experience at CCK, there was nothing random about this trip, rather I’d like to believe it was serendipitous. Working with children who live with chronic pain…
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