Resources for Patients with CRPS/RSD and Chronic Pain
Written by Melissa Wardlaw for the RSDSA blog.
In my work as a CRPS/RSD, Chronic Illness & Pain Peer Counselor/Advocate, many patients contact me for assistance and support – particularly those who are newly diagnosed. After speaking with CRPS patients, I usually send them a list of resources they may find useful.
As we all know, there is a lot of propaganda online about CRPS, and navigating the web or “Dr. Google” can be a very scary thing sometimes. Unfortunately most physicians are unfamiliar with CRPS, so in lieu of asking them for advice, sometimes we have no choice but to turn to the web or our peers to try and find out all we can about the disease.
Below I have pasted some links to resources I have found helpful over the years for newly diagnosed CRPS/RSD patients, as well as those who have been dealing with CRPS/RSD and chronic pain for any length of time.
RSDSA & RSDHope Articles & Resources
RSDSA is the leading national organization on CRPS/RSD and one of its kind. Both of these organizations provide unparalleled information and support for CRPS/RSD patients. You can also sign up for the RSDSA newsletter. Although RSDHope is no longer in active operation, the information remains on their website as a courtesy to patients.
“15 Tips For Healthcare Providers Treating CRPS/RSD” (self-promotion here!)
Articles from “The Mighty”
You can sign up for multiple categories including CRPS/RSD and have articles sent directly to you each week – you can even sign up to be a contributor yourself!
“8 Questions to Ask Your Doctor Before an Invasive Medical Procedure” (self promotion here!)
You can sign up for most of these blogs to receive articles and content daily or weekly
“My Top 5 Strategies for Dealing with a CRPS/RSD Flare” (self-promotion here!)
Additional Resources & Links
Many of these resources have newsletters or programs for which you can sign up to receive additional articles and content
For Grace – Foundation specifically for women with chronic pain started by Cynthia Touissant, who has had CRPS for 36 years!
Hopefully some of these resources will prove to be worthwhile as you navigate your way through being newly diagnosed with CRPS/RSD and chronic pain (or even living with it for many years). I always recommend joining a few groups on Facebook as well. It’s beneficial to be a part of a few large national groups online, and also small local ones (if available in your area) to meet others in person if possible. I would be interested to know other resources you all have found too!
Take care on your journey and GodSpeed, my fellow Chronic Illness and Pain Warriors!
Melissa Wardlaw was diagnosed with CRPS/RSD as a result of a spinal cord injury (non-paralyzing) suffered during a routine medical procedure. She also suffers from fibromyalgia, lumbar and cervical degenerative disc disease, migraines and additional chronic medical issues. Formerly a Business Executive/Consultant with an MBA in Entrepreneurship, she is also a Certified Career Coach and Certified Professional Resume Writer, and now spends her time career coaching and offering peer counseling/advocacy (pro bono) to those dealing with similar medical struggles. As a fierce advocate, she also runs both in-person and online support/empowerment groups for CRPS/RSD and chronic illnesses/pain in the Metro Atlanta area. A “fur mom” to two cats, Melissa is an avid volunteer and supports multiple organizations committed to rescuing animals and helping those with chronic illnesses/pain. She can be reached at email@example.com.
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