Written by Barbara Schaffer for the RSDSA blog.
My name is Barbara Schaffer. I am 70 years old and have had RSD for 32 years. It started with a stretched brachial plexus and spread through my entire body.
32 years ago, my life changed when a very minor accident caused by RSD (reflex sympathetic dystrophy).
PAIN, treatments, complications from treatment
PAIN, RSD invading my arms, legs, chest, face, lungs, stomach, full body
PAIN, great doctors who tried but couldn’t help. Lousy doctors who purposely made my life more difficult.
PAIN, legal battles to prove I was in pain and to get treatment paid
PAIN, it always comes back to the PAIN!
32 years. All of my 30s, all of my 40s, 50s, 60s and now my 70s. Life dealing with, but not controlled by, RSD. My husband, daughter, son-in-law, sister, brothers, and my grandchildren… all of their lives affected by RSD because they are my loves as I am theirs.
My life is filled with my family, friends, dogs, live music, music festivals, traveling and camping in our little RV, named HARV (Handicap Accessible Recreational Vehicle), reading, laughing… all despite the PAIN and disability.
RSD I hate you but I do not fear you, for even though you have invaded my life, I have not and never will let you control it, or control me…
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