RSDSA’s Rare Disease Week – 2020

Published on February 24, 2020 under RSDS General Info

Rare Disease Day is held on the last day of February every year to raise awareness of rare diseases. This year, Rare Disease Day is Saturday, February 29th, 2020, but RSDSA is working to spread awareness for CRPS all week long.

Check out our daily virtual activities and join us!

Monday: Make your voice heard: Share your CRPS journey photos on social media by using the hashtag #RSDSArare. We want to make sure that those without CRPS understand what CRPS is and what it looks like.

Tuesday: Write and/or visit your local and state representatives to educate them about CRPS. Check out this sample letter that you can share.

Wednesday: Join the #SpoonieChat on Twitter at 8p ET to connect with other rare disease warriors. #SpoonieChat was created by Dawn M. Gibson in 2013 for Rheum patients. It has now become a weekly chat for chronic pain patients.

Thursday: Each one, teach one: Share advice for new chronically ill patients and use the hashtag #RSDSArare.

Friday: Connect with another rare disease warrior online or in your community.

Saturday: If you are in the South Haven, MI area, join us for Leap For A Cure at American Legion #49 at 6p.

Rare Disease Week FINAL

Please consider making a donation to RSDSA today!


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