Search the RSDSA Website Search Blog Advocacy Update | House Bill 6094 Protect Rare January 23, 2025 PROTECT Rare Act – Providing Realistic Opportunity To Equal and Comparable Treatment for Rare Act Over 7,000 rare diseases affect more than 30 million people in the United States. CRPS… Blog Cultivating Relationships with Your Representatives January 27, 2025 Written by Lisa Van Allen, Chair of the RSDSA Advocacy Committee, for the RSDSA blog. Building relationships with your Members of Congress is important to ensuring that CRPS patients are… Event Walk Strong 2025 Join Burning Hope in walking a 3k in support of the Complex Regional Pain Syndrome (CRPS) Community. All proceeds will go to aid research and treatment options for those suffering… Blog A New Pain Killer on the Market: The Good and the Not So Good on Journavx February 3, 2025 by Pradeep Chopra, MD for the RSDSA blog. Edited for clarity. There is a lot of discussion about the newest medicine on the market. Suzetrigine, marketed under the brand name… Pages: 12345678910111213141516171819202122232425262728293031323334353637383940414243444546474849505152535455565758596061626364656667686970717273747576777879808182838485868788899091929394959697