Support Groups
RSDSA has compiled the listing of these individuals and support groups as a public service. These individuals have not been formerly trained nor are they completely supervised by RSDSA staff or volunteers. Please let us know if there is a difficulty in the groups or if you experience challenges contacting a particular individual or group as changes often occur without our knowledge.
Updated July 2025 – Additional updates to this page are coming soon
Members of the RSDSA Community have started support groups throughout the United States. Some meet in person at a member’s home or another local venue. Others meet online or via Zoom.
You will find the groups welcoming to new members. They understand what you are going through and the environment is generally positive and solutions-oriented. You’ll learn new coping strategies and benefit from the experience of others. You’ll also likely find that you have much to contribute to the group in return.
If we’re missing a support group, or if you want to start your own, please contact Sharon Weiner at [email protected].
General and Nationwide Support Group Resources
- 988 – The National Suicide and Crisis Lifeline is a free service that runs 24/7. You do not need to be in a crisis or suicide to call. Calling 988 will not have someone dispatched to you.
- Basic Training for Veterans with Pain Support Groups
- Here to Help – The RSD Mommy Facebook Group
- Military and Veterans with RSD Facebook Group
- Moms and Future Moms with CRPS Facebook Group
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Nationwide Phone and Email Support – Alyce F. Rowland – (859) 743-8204 – [email protected]
- RSD/CRPS and Neuropathic Pain Syndrome Facebook Group
- RSD/CRPS Loved Ones and Caregivers Support Groups
- RSDSA Young Adult Support Group – For Young Adults with CRPS between 18 and 31.
- Spinal Cord Stimulator Support Facebook Group
- US Pain Foundation: state-based support groups
- Warriors of CRPS(RSD) Facebook Group
Support Group Grant Program
New and existing support group facilitators often find that there are costs related to operating a support group or need startup funds for an awareness event. RSDSA has created a Support Group Grant Program to offer finial assistance with those costs. The goal of this program is to help maintain support systems for our CRPS Community.
This grant program will offer assistance to RSDSA registered in person, social media, phone and virtual support group meetings to aid in covering costs for postage, renting space for meetings, printing costs, office supplies deemed necessary, permits for events, promotional materials, refreshments for approved events and other needs.
Learn more about the purpose and use of the RSDSA Support Group Grant ahead of completing the grant application. Email your completed application to Sharon Weiner.
Support Groups By State
Meetings are the 2nd Tuesday of the month at 11am – 1pm at the Board & Brew, 3030 Harbor Blvd., Costa Mesa, CA 92626. Please contact Kristie for registration information before attending the first meeting. This is a peer to peer support group!
We are a support group that includes topics we all deal with and also education. If you just want someone to talk to, do not hesitate to call or send an email. The group will meet on the 2nd Wednesday of the month at noon. Location: 1925 Laver Court, Los Altos
Meets bi-weekly Virtually. To join the group please contact Suzanne.
At this time the group will only have virtual meetings. Please contact the support group leader for dates and times.
We meet the first Thursday of each month at 1pm Eastern on Zoom. Please reach out to obtain the Zoom link.
Tales of the CRPS is no longer meeting monthly. They will have quarterly events that are announced and publicized in the Tales of the CRPS Facebook Group. Anyone can request to become a member of the Facebook group to see when these events will take place and to get information.
Feel free to reach out for questions and help.
We meet both virtually AND now in-person again every 6-8 weeks. We also have special guests and group activities on occasion. Spouses/caregivers are always welcome too! Peer counseling/advocacy is also available via phone by appointment (no charge).
Meetings are online and in alternating locations. The meeting will be held the 1st and 3rd Thursday of the month at 4pm Central. For meeting information please look on the Iowa CRPS Support page on Facebook or call for information.
We meet via Zoom on the first Thursday of each month from 1-2:30 p.m. Information about upcoming meetings and events can be found on our Facebook Page.
We have a small thriving online community that provides education and support.
RSDSA Registration Number: 40147
This is a support and information sharing group for people who live in Michigan who have been diagnosed with CRPS or their immediate family members/caregivers.
Support for individuals in the State of Missouri and Metro East Illinois affected with or by CRPS.
Chronic Pain Anonymous is a 12-Step fellowship of men and women who share their experience, strength and hope with each other so that they may solve their common problem and to help others recover from chronic pain and chronic illness. The only requirement for membership in CPA is a desire to recover from the emotional, physical, and spiritual debilitation of chronic pain and chronic illness and a willingness to help others to do the same.
Zoom Meetings are held the first and third Tuesday at 7:30pm. The meeting is open to anyone with CRPS, family, friends, and others with chronic pain. Professionals can attend upon approval.
Meets monthly on the last Thursday of the month from 6:30pm to 8:30pm. Please contact Sylvia for the meeting location and to reserve your place. The meeting is open to CRPS Warriors and their family and friends.
Meetings are on Sunday from 2pm – 4pm during warm weather. For meeting information, visit the Facebook Group or call Lynda. Please contact Lynda for phone and email support.
In person meeting will take place the 3rd Wednesday of the Month at 7pm at the Levittown Christian Church, 1481 Frosty Hollow Road, Levittown, PA 19056.
We encourage you to join our Philly Group on Facebook where you will find information such as pre- & post-meeting information, meeting cancellations, specialist referrals, making new friendships, and more.
The Horry County & Surrounding Areas CRPS Group meets once a month. We lean on each other for support and have grown into a family along with our support squad.
If you live in Brunswick County, NC, as well as other towns around Horry County, we welcome you to join us.
This support group meets on the third Saturday at 1:30pm at 3785 Blackberry Lane, Lot 7 in Sumter, SC
Meetings will be held either on Monday or Tuesday and a time of day will be decided. The meetings will be held at her home on 10 8th Avenue, N.W., Aberdeen, SD 57401.
Our group can be found on Facebook for regular discussions and periodic Zoom Meetings with valued speakers. We sometimes meet out for lunch as well. Feel free to join in any time!
Contact Carolyn for phone / email support or join the private Facebook group.
This is a Facebook group where people whose lives have been impacted by CRPS and chronic pain can come for encouragement and emotional support, ask questions, and share ideas and information.
For people living with CRPS, their caregivers, friends and loved ones. Our intent is to provide information, support and a forum for discussion for those dealing with this disease. Educating for Awareness on a daily basis is how we find options that will lead us to a cure. One Piece of the puzzle at a time.
The meetings are held the 1st Wednesday of every month from 6:30 – 8:00pm Pacific at North Seattle Church, Room 101, 2150 N. 122nd Street, Seattle, WA 98133. Please contact Lee and Kevin if you plan to attend so they have enough chairs, materials and refreshments.
Please contact the group leader, Jennifer Ray, via email or phone for details on the support group meetings.
Phone Support Only. To help others who have CRPS to realize they are not alone and try to have some relief in the pain.
International Groups
iPain International Pain Foundation Power of Pain Headquarters Our mission is to educate and support the chronic pain community around the world.
International Research Consortium for CRPS
Email: [email protected]
International Research Foundation for RSD/CRPS
Australia
Australian RSD/CRPS Support Group
Email: [email protected]
PainAustralia Limited & Additional Resources
The Purple Bucket Foundation Inc.
Canada
P.A.R.C. (Promoting Awareness of RSD in Canada)
Pain Canada: Pain Canada is made up of people living with pain and pain organizations from coast to coast. Their partners are leading advocates, researchers, clinical experts, and champions on the issue of chronic pain in Canada.
Calgary CRPS Support Group – Contact: [email protected]
India
Dr. Rajeev Arora
Pune, India
New Zealand
Kiwi CRPS
kiwicrps.co.nz
Email: [email protected]
Nordic Region
Nick Evans
CRPS Iceland Contact Name: Steinunn Hannesdóttir
Facebook Page: facebook.com/crpsIceland
Email: [email protected]
South Korea
United Kingdom