Support Groups
RSDSA has compiled the listing of these individuals and support groups as a public service. These individuals have not been formerly trained nor are they completely supervised by RSDSA staff or volunteers. Please let us know if there is a difficulty in the groups or if you experience challenges contacting a particular individual or group as changes often occur without our knowledge.
Updated December 2025
Members of the RSDSA Community have started support groups throughout the United States. Some meet in person at a member’s home or another local venue. Others meet online or via Zoom.
You will find the groups welcoming to new members. They understand what you are going through and the environment is generally positive and solutions-oriented. You’ll learn new coping strategies and benefit from the experience of others. You’ll also likely find that you have much to contribute to the group in return.
If we’re missing a support group, or if you want to start your own, please contact Sharon Weiner at [email protected].
General and Nationwide Support Group Resources
- 988 – The National Suicide and Crisis Lifeline is a free service that runs 24/7. You do not need to be in a crisis or suicide to call. Calling 988 will not have someone dispatched to you.
- Basic Training for Veterans with Pain Support Groups
- Here to Help – The RSD Mommy Facebook Group
- Military and Veterans with RSD Facebook Group
- Moms and Future Moms with CRPS Facebook Group
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Nationwide Phone and Email Support – Alyce F. Rowland – (859) 743-8204 – [email protected]
- RSD/CRPS and Neuropathic Pain Syndrome Facebook Group
- RSD/CRPS Loved Ones and Caregivers Support Groups
- RSDSA Young Adult Support Group – For Young Adults with CRPS between 18 and 31.
- Síndrome de dolor regional complejo – CRPS support in Español
- Spinal Cord Stimulator Support Facebook Group
- US Pain Foundation: state-based support groups
- Warriors of CRPS(RSD) Facebook Group
Support Group Grant Program
New and existing support group facilitators often find that there are costs related to operating a support group or need startup funds for an awareness event. RSDSA has created a Support Group Grant Program to offer finial assistance with those costs. The goal of this program is to help maintain support systems for our CRPS Community.
This grant program will offer assistance to RSDSA registered in person, social media, phone and virtual support group meetings to aid in covering costs for postage, renting space for meetings, printing costs, office supplies deemed necessary, permits for events, promotional materials, refreshments for approved events and other needs.
Learn more about the purpose and use of the RSDSA Support Group Grant ahead of completing the grant application. Email your completed application to Sharon Weiner.
Support Groups By State
Join us if you’re looking to find fellowship among those who are embarking on a lifelong journey with CRPS in and around Orange County.
Meetings are the 2nd Tuesday of the month from 11:30am – 1pm Pacific at Board & Brew, 3030 Harbor Blvd., Costa Mesa, CA 92626. Please contact Kristie for registration information before attending the first meeting.
Peer Support
We are a support group that includes topics we all deal with and also education. If you just want someone to talk to, do not hesitate to call or send an email. The group will meet on the 2nd Wednesday of the month at noon. Location: 1925 Laver Court, Los Altos
Meets bi-weekly Virtually. To join the group please contact Suzanne.
Provides a safe and non-judgmental environment for those with CRPS. Also provides education & support for all affected by CRPS.
At this time the group will only have virtual meetings. Please contact the support group leader for dates and times.
Zoom and Facebook Support
Meets every 2nd & 4th Saturday from 1-3 PM at Christ the Cornerstone Church (3135 Summit Bridge Road, Bear, DE 19701)
Provides education and peer-to-peer support for individuals with chronic pain.
Meets the first Thursday of each month at 1pm Eastern on Zoom. Please reach out to obtain the Zoom link.
Zoom Support
Tales of CRPS uses Facebook with occasional live meetings in Jacksonville.
Facebook Support
Anyone is welcome to contact the facilitator if you’re in need of local resources.
Peer Support
Welcome! This group is for patients and their loved ones. We meet in person every couple of months as well as provide a platform for support on Facebook. We provide peer counseling/advocacy to all patients by appointment only via phone.
Zoom, Phone, and Peer Support
Focusing on people in pain, coping skills and to improve life.
Phone Support
Meetings are online and in alternating locations. The meeting will be held the 1st and 3rd Thursday of the month at 4pm Central. For meeting information please look on the Iowa CRPS Support page on Facebook or call for information.
We meet via Zoom on the first Thursday of each month from 1-2:30 p.m. Information about upcoming meetings and events can be found on our Facebook Page.
This is a support and information sharing group for people who live in Michigan who have been diagnosed with CRPS or their immediate family members/caregivers.
Support for individuals in the State of Missouri and Metro East Illinois affected with or by CRPS.
Chronic Pain Anonymous is a 12-Step fellowship of men and women who share their experience, strength and hope with each other so that they may solve their common problem and to help others recover from chronic pain and chronic illness. The only requirement for membership in CPA is a desire to recover from the emotional, physical, and spiritual debilitation of chronic pain and chronic illness and a willingness to help others to do the same.
Zoom meetings are held the first and third Tuesday at 7:30 pm Eastern. The meeting is open to anyone with CRPS/RSD, family, friends, and others with chronic pain. Professionals can attend upon approval.
Zoom Support
Focuses on achieving support and wellness when living with CRPS
Meets monthly on the last Thursday of the month from 6:30pm to 8:30pm Eastern. Please contact Sylvia for the meeting link. The meeting is open to CRPS Warriors and their family and friends.
Zoom Support
Focuses on treatments and living with CRPS. Meets on the 2nd Saturday of each month from 1-3 pm Eastern. Please visit our website for updates.
Zoom and Facebook Support
Discover the new you. We focus on supporting others and finding treatment.
Meetings are on Sunday from 2pm – 4pm during warm weather. For meeting information or phone and email support, visit the Facebook Group or call Lynda.
Email, Facebook, and Peer Support
Provides information, physician referrals, and support for individuals diagnosed with RSD/CRPS, their family members, and caregivers.
Email, Facebook, and Peer Support
In person meeting will take place the 3rd Wednesday of the Month at 7pm at the Levittown Christian Church, 1481 Frosty Hollow Road, Levittown, PA 19056.
We encourage you to join our Philly Group on Facebook where you will find information such as pre- & post-meeting information, meeting cancellations, specialist referrals, making new friendships, and more.
The Group is for anyone who lives on the border of North Carolina and South Carolina in Brunswick, Horry, Georgetown, Pender, Marion, Florence, and Columbus Counties.
All are welcome, warriors and your supporters to come meet up with us or just to reach out by email, phone call or private message. We are here to communicate openly, honestly and no judgement as we are a family coming together to be strong for one another. ~Kira 🧡🎗️🧡
Provides phone support Monday through Saturday from 8 am to 8 pm. If you’re unable to reach anyone on the phone, please send a text message.
Phone and 1 to 1 Peer Support
Focuses on dispensing information to CRPS Warriors and caregivers.
Phone, Email, Facebook and Zoom Support
A positive environment for those diagnosed with RDS/CRPS and their caregivers to share information, provide support, and ask questions. Contact Carolyn for phone / email support or to join the private Facebook group.
Meets every other month on Sunday beginning at 2:00 pm Eastern.
Phone, Email, Facebook and Zoom Support
This is a Facebook group where people whose lives have been impacted by CRPS and chronic pain can come for encouragement and emotional support, ask questions, and share ideas and information.
For people living with CRPS, their caregivers, friends and loved ones. Our intent is to provide information, support and a forum for discussion for those dealing with this disease. Educating for Awareness on a daily basis is how we find options that will lead us to a cure. One Piece of the puzzle at a time.
The meetings are held the 1st Wednesday of every month from 6:30 – 8:00pm Pacific at North Seattle Church, Room 101, 2150 N. 122nd Street, Seattle, WA 98133. Please contact Lee and Kevin if you plan to attend so they have enough chairs, materials and refreshments.
Our group’s mission is to increase awareness and provide support, knowledge, and hope for those who suffer from the pain or disability of CRPS.
Please contact the group leader, Jennifer Ray, via email for details on the support group meetings that take place on the last Tuesday of the month at 6:30 pm Pacific on Zoom.
Email and Zoom Support
Focuses on information, guidance, and treatment options to help others who have CRPS realize they are not alone.
Facebook Group Support
International Groups
iPain International Pain Foundation Power of Pain Headquarters Our mission is to educate and support the chronic pain community around the world.
International Research Consortium for CRPS
Email: [email protected]
Australia
Australian RSD/CRPS Support Group
Email: [email protected]
PainAustralia Limited & Additional Resources
The Purple Bucket Foundation Inc.
Canada
P.A.R.C. (Promoting Awareness of RSD in Canada)
Pain Canada: Pain Canada is made up of people living with pain and pain organizations from coast to coast. Their partners are leading advocates, researchers, clinical experts, and champions on the issue of chronic pain in Canada.
Calgary CRPS Support Group – Contact: [email protected]
Germany
CRPS Selbsthilfe Koeln | Bremen
emergency.crpsselbsthilfe.de
[email protected]
+49 221 669557-0
CRPS Selbsthilfe Koeln | Bremen is a non-profit, volunteer-run self-help organization for people affected by complex regional pain syndrome (CRPS/Sudeck’s disease) and their families, which has been in existence since 2013. It offers regular regional group meetings in Cologne (odd months, St. Marien Hospital) and Bremen (even months, Netzwerk Selbsthilfe Bremen), supplemented by virtual meetings, forums, chat services, and professional collaborations to provide support and information. The aim is to facilitate exchange, strengthen hope, and, through community and practical knowledge, give those affected courage in dealing with this often difficult-to-treat condition.
India
Dr. Rajeev Arora
Pune, India
New Zealand
Kiwi CRPS
kiwicrps.co.nz
Email: [email protected]
Nordic Region
Nick Evans
[email protected]
CRPS Iceland
Contact Name: Steinunn Hannesdóttir
facebook.com/crpsIceland
[email protected]
South Korea
United Kingdom