Becoming part of a local support group can be a powerful way to cope with CRPS/RSD. As we’ve said, this can be a very isolating condition as it curtails your ability to function in as predictable a way as before, and this affects your a
bility to connect and socialize with others. You may also feel that there’s no one nearby who can understand what you’re going through – that you’re the only one in your community coping with CRPS/RSD.
Chances are there are other CRPS/RSD patients right in your local area and that you can get together for mutual support and to share information about the latest treatments and lifestyle tips. In some less populated areas, online support groups offer an excellent alternative to in-person meetings. Coming together in regular support sessions is a wonderful way to share, socialize and support each other.
RSDSA provides guidelines for establishing and running positive and productive support groups.
The number of support groups for CRPS is thankfully growing everyday. To locate a support group close to you, please use the map or list below to select your state.
For those who live in close proximity to state borders, please also check your neighboring state as there may be a support group which may actually be closer to you than the support group in your state.
For links to Support Group websites, Online Forums / Chat Rooms, and other information, please see Related Sites.
If you would like to start a support group in your area, please contact the home office, and please watch this short video.
Starting a CRPS Support Group
Sharon Weiner, VP of the RSDSA Board of Directors and President of Living with RSDS, Inc. shares her 17-years of wisdom and experience on how to start and maintain a thriving support group for people with CRPS, family members, and medical professionals. Invaluable advice!
Groups from the American Chronic Pain Association welcome anyone who is living with an ongoing pain problem. Please call 1.800.533.3231 to see if there’s a group near you. Or click here to find a support group near you.
If you are listed as a Support Group and have any changes, please contact, Pam Kientzler at RSDSA by calling 203.877.3790 or e-mail her at firstname.lastname@example.org.