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Knock Out Pain Together- An Inspirational Story of Coming Together

Published on July 18, 2017 under Events
   Sarah Phillips-O’Steen is an ally to the CRPS community. Ever since she was 2 years old, she has been witnessing what CRPS/RSD can do to a loved one. Her father, Julian Phillips, has been living in pain since his daughter was toddling around. As Sarah will tell you, he’s always been good at hiding his pain, but she has never known him without it. In January 2015, Julian took a terrible fall that sent him into one of the worst CRPS/RSD flare ups that he had ever experienced. This guided him into full body CRPS. While Julian was spending time in hospitals, fighting the pain, Sarah witnessed some of the grim realities that come with CRPS. Medical staff didn’t…
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A Teen In Pain Making a Difference- Keegan’s CRPS Story

Published on November 1, 2016 under Events
By Guest Blogger Keegan. Introduction by Samantha Barrett It's CRPS Awareness Month. RSDSA has several events happening all over the country this month. We will also be sharing some stories of hope and stories to raise awareness for CRPS/RSD. We were recently introduced to Keegan, a teenager who was recently diagnosed with CRPS. She's not just any teenager; she instantly wanted to raise awareness for CRPS/RSD. Read a little bit about her and about her event! She wrote this blog to kick off our awareness month! Hi all! Happy National CRPS and RSD awareness month! My name is Keegan I'm 15 years old, here's a bit of my story. I left my hometown of Poughkeepsie New York in August to…
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Long Island and CRPS- RSDSA’s New Walk

Published on August 16, 2016 under Events
By Samantha Barrett, Special Events Coordinator There is a new event coming to the RSDSA community. I have been particularly excited about it since I’ve been working with the three wonderful women from the walk committee for months now. Millie, Debbie, and Beth all live with CRPS. They hadn’t known each other very well until this walk started to get planned. These three women have been working day in and day out to ensure that the Long Island CRPS/RSD Awareness Walk is a success. Every two weeks, we have a giant conference call and I get to hear about everything they have planned for September 10, 2016 in Eisenhower Park. It is an event not to be missed. Because I…
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Matthew’s Story- Hope and Perspective

Published on August 9, 2016 under Guest Blogger for RSDSA
By Guest Blogger, Matthew When a person is diagnosed with CRPS, often times it can be a confusing, complex time. Read what Matthew has gained from his diagnosis and what he hopes for your future. My name is Matthew. I'm a 19-year-old male from Melbourne, Australia.  I was just recently diagnosed with stage 3 Complex Regional Pain Syndrome, but to most people's surprise, it was an absolute relief. My injury started 5 years ago as a 14-year-old kid playing basketball. I clashed knees with an opposing player, which I had done hundreds of times before- everyone in sport has. All the usual symptoms of that type of injury came on and lasted weeks: swelling, bruising, dull ache, and redness. 4…
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A Journey with CRPS/RSD Through the Gift of Music

Published on June 7, 2016 under Guest Blogger for RSDSA
  By Guest Blogger Shannon L. Everyone has that one thing that gets them through their CRPS/RSD battle. For Shannon, it is music. Read her story below. “WOW” is all I can say as I sit back and reflect on the past 26.5 years in dealing with RSD (yes, I know the correct term is CRPS but I still call it RSD).  In the midst of all the changes in my life as a result of RSD, the one constant in my life has been my music and how it has helped me deal with the pain. I have been wondering how to even start this blog, as so much has happened over 26.5 years - all the doctor appointments,…
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My Journey Back to Health: Barbara Wall and RSD

Published on May 3, 2016 under Guest Blogger for RSDSA
    By Guest Blogger Barbara Wall, Power Over Pain of Arkansas (Note: This is a success story from someone with RSD/CRPS that saw  Dr. Katinka van der Merwe. To read our article on Dr. Katinka van der Merwe's approach, click here). I was living life and enjoying all things around me. I did not feel that I took much of anything for granted. In 2005, I suffered a severe injury to my cervical spine (broken neck) as well as other injuries. As if dealing with a broken neck was not enough I received the diagnosis of Reflex Sympathetic Dystrophy (RSD), today known as Complex Regional Pain Syndrome (CRPS). I had the opportunity to practice as a registered nurse for twenty…
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Living Beyond Your Illness- Getting By With CRPS

Published on March 1, 2016 under Guest Blogger for RSDSA
By Guest Blogger Suzanne Stewart. Originally Featured on her Tears of Truth blog. Hello Luvs, IF you haven’t read any of my blog before, you won’t know that I always start out my blog with “Hello Luvs”.  I had meant to write this long ago, but time gets away from all of us, so today the phone was on mute and the kitty was lying in her spot with me in the same room and it seemed a good time to write about this.  We can all get down and sad sometimes, even depressed.  I mean, having a chronic illness, or a list of chronic pain illnesses can get pretty monotonous to say the least! If you let yourself get…
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RSDSA Spotlight: How CRPS Taught Me to Live In the Moment

Published on February 9, 2016 under Guest Blogger for RSDSA
By Anna Evenosky, Guest Blogger Rewind to that time that is so vague in my head that I can barely remember it. The time of my life when I was as free as a bird spreading its wings for the first time. The time of my life when I didn’t know CRPS existed. I can’t recall what being pain free feels like. Although, I can recall the happy times I would be lying if I said I didn’t miss. Going from a life where my biggest worries were passing a class, or getting something done on time, to a life of chronic illness, was an adjustment to say the least. Something I wasn’t exactly ready to take on. Although, I’m…
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Developing CRPS/RSD and Finding Hope

Published on June 29, 2015 under Giving Back
Hi there! My name is Katie and I’m the blogger behind Upcycled Treasures and A Handcrafted Wedding. I was diagnosed with CRPS back in August 2012, and remember how difficult it was to find information and inspiring stories. In fact, I generally ended my search feeling more discouraged than when I started, and this only seemed to make my symptoms worse. Can anyone else relate? The RSDSA website was the best source of information I could find, which is why I am so excited to share my story with you. I want you to know that there is hope, and not to be discouraged by what you read. However, I’d be lying if I didn’t admit that I am also…
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Sammie Barrett is RSDSA’s New Special Events Coordinator

Published on June 19, 2015 under Events
  My name is Sammie Barrett. I am the new Special Events Coordinator for the RSDSA. The RSDSA has been near and dear to my heart since a year after I was diagnosed.  I was diagnosed with RSD/CRPS 9 years ago after spraining my ankle in ballet. I danced 5 days a week for a minimum of 4 hours per night as well as teaching some classes. But once this "sprain" didn't heal correctly, that all changed. Five doctors later, someone finally was able to diagnose me. Unfortunately, this doctor told me I would never walk again, and that I absolutely would not dance again. As a thirteen year old little girl, my world had been turned upside down. But,…
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