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Category: Fundraising

Any fundraising events that are happening in the RSDSA community will be blogged about here.

CRPS Awareness Day 30: Awareness Must Become Our 365 Day Activity

Published on November 30, 2017 under Call to Action
By Jim Broatch, MSW, Executive Vice President, Director RSDSA Executive Vice President and Director of RSDSA, Jim Broatch, details why it is crucial that we continue our CRPS awareness efforts beyond November. Awareness is a 365-day effort that we must push forward with in order to make positive change in the world of chronic pain. First, a standing ovation for all who participated in the fourth Annual Color the World Orange (please visit their page by clicking here). It was an outstanding success and is growing exponentially each year. Billboards in Times Square, New York were just one of more than 100 locations in six countries that turned orange for Color The World Orange. Other locations included Niagara Falls and…
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CRPS Awareness Day 26: The Importance of a Walk

Published on November 26, 2017 under Events
By Guest Blogger Beth Seickel Many of us attend or get involved with a walk to support a family member or friend challenged by a specific diagnosis or condition hoping the fundraiser will help to create change. So, how can a RSDSA event be any different? Who participates? What can one expect? Where is it held? Do you have to walk to attend? Is it accessible?   Simply stated, RSDSA’s Long Island Annual CRPS/RSD Awareness Walks reflects their mission statement by creating: Awareness and Advocacy Education and Resources Comradery and Networking Validation and Support Hope and Encouragement   In 2016, RSDSA’s 1stAnnual Long Island CRPS/RSD Walk hosted 225 kids and adults, raising $25,000 despite the heat and humidity at Eisenhower…
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A Halloween Tale for CRPS With a Fun Message

Published on October 31, 2017 under Events
By Samantha Anderson ‘Twas the day of Halloween, and all through RSDSA, Anticipation was occurring, for another important day. While others prepared costumes of Wonder Woman and Zeus, Samantha was writing a Halloween blog, although for another use. Tonight, she would dress as a unicorn in full, To pass the trick or treaters candy by the bagful. The clock will strike midnight, and a new month will arrive, Just in time for a new campaign to thrive. The first of November means it is the time, To shed some awareness through story and rhyme. A new blog will be posted every day, For members of the RSDSA community to relate to in some way. Tips, tricks, and stories we hope…
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RSDSA: The People and Programs Behind the Website

Published on October 24, 2017 under Call to Action
By Jim Broatch, MSW, Executive Vice President, Director With CRPS/RSD Awareness Month approaching, we wanted to feature a message from our Executive Vice President and Director, Jim Broatch. So many people rely on RSDSA for resources. Here at RSDSA, we want to be able to best help you and best support you. We want to create a hopeful environment. Every day, we look to see what we can do better for our community. Jim Broatch too the time to write up a bit of what we do daily. We will continue to move towards progress. Please join us in shedding more light on CRPS/RSD, not only in the month of November, but every month of the year. I would like…
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A New Month, An Almost New Season- What’s Coming in CRPS/RSD

Published on September 5, 2017 under Events
I can’t believe it is September already! Before we know it, the leaves will start falling, pumpkins will start glowing, and it will be sweater weather (at least here in New England). Not only do all of these amazing things happen, but this is when our events really start to kick up. Woohoo! We’re starting September off with a bang. This coming weekend, we will be in East Meadow, New York at Eisenhower Park for the 2nd Annual Long Island CRPS/RSD Awareness Walk. This event is going to be spectacular, as the committee members have worked tirelessly to put together a great day. There will be raffle items, crafts, fake tattoos, a barbeque, and of course an environment of hope…
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CRPS Retreats and Gatherings- The Positive Impact of the YA Retreat

Published on August 29, 2017 under Events
By Guest Blogger Melissa Lanty RSDSA is focusing on how we can better serve the community, especially with November (CRPS Awareness Month) quickly approaching. One of our young adults contributed this blog shortly after our first young adult weekend, which was a great success. Read what Melissa has to say about how this weekend impacted her! Be sure to keep an eye on our events calendar for all things CRPS coming up! The first time I heard of CRPS/RSD was when my cousin, Ken, was finally given a diagnosis for the intense, burning pain he had been experiencing.  By the time the doctors figured out his diagnosis it already spread, jumped, and did all the horrible things this disease can…
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Knock Out Pain Together- An Inspirational Story of Coming Together

Published on July 18, 2017 under Events
Sarah Phillips-O’Steen is an ally to the CRPS community. Ever since she was 2 years old, she has been witnessing what CRPS/RSD can do to a loved one. Her father, Julian Phillips, has been living in pain since his daughter was toddling around. As Sarah will tell you, he’s always been good at hiding his pain, but she has never known him without it. In January 2015, Julian took a terrible fall that sent him into one of the worst CRPS/RSD flare ups that he had ever experienced. This guided him into full body CRPS. While Julian was spending time in hospitals, fighting the pain, Sarah witnessed some of the grim realities that come with CRPS. Medical staff didn’t know…
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My CRPS Experience at the Young Adult Weekend

Published on July 4, 2017 under Events
By Guest Blogger Jess Henry-Cross Jess was a participant in our very first CRPS Young Adult Weekend this past June. She was more than happy to write a brief blog about her experience and how it changed things for her. Why are events like this so important? Read about what Jess experienced to learn more.   Around 2:30 in the afternoon on Sunday, June 18th I found myself holding back a few (happy) tears.  I was driving home after spending the last 45 hours with a group of women who recharged me in a way I had never even dared to hope for.  I didn’t want the weekend to be over.   I signed up for the RSDSA Young Adult Weekend…
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RSDSA Finds Great Success At Nashville CRPS Conference

Published on April 11, 2017 under Events
By Samantha Barrett, Special Events Coordinator As we regroup after a fabulous weekend in Nashville, Tennessee, we thought it would be nice to do a quick recap of the events that happened this past weekend. An amazing group of people with CRPS, caregivers, and supporters joined us to make this one of our most successful conferences yet! This past weekend, RSDSA staff and board members traveled to Music City to host Treating the Whole Person: Optimizing Wellness at Opryland Resort and Convention Center. This was our first time to Nashville and excitement was abundant. After months of planning, we couldn’t believe how quickly the event came up. Upon arriving at Opryland Resort and Convention Center, our jaws dropped. We never…
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Rare Disease Day 2017: A Rare Game for the CRPS/RSD Community

Published on February 28, 2017 under Events
Today is February 28. It is Rare Disease Day!  This is a wonderful day for educating people about rare diseases and conditions, including Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy (CRPS/RSD). This blog is a little different than what we typically do. We want to help educate people about CRPS/RSD, while helping people find different resources on our website! What could be better than to organize a scavenger hunt?! You will have until Sunday, March 5, 2017 at 11:59 p.m. EDT to complete this scavenger hunt and email your responses to SBarrett@rsds.org. People with 100% correct responses will be entered to win an RSDSA travel mug. The winner will be chosen via a random selection tool online and will be announced…
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