Written by Jamie Sparbel for the RSDSA blog
How and when did you develop CRPS?
My CRPS started January 3, 2013, or at least that is when I was injured. I was diagnosed roughly about six months later. I was an EMT and I slipped on ice heading into a patient’s house and originally thought I had broken my wrist so I put a cast on my arm. After more x-rays, they determined it was not broken and they put my arm in a soft splint. I went to PT and massage therapy and nothing was working. Soon after, my ortho sent me to a pain management physician. My pain management physician walked in the room and said, “Yes you have CRPS and we need to stop it from spreading.”
What has daily life been like since your diagnosis?
I was a wreck when I was first diagnosed! I was young, just married and did not have any kids of my own yet. I was worried that this would restrict my life going forward. After about a year with CRPS I have learned to live with it. There are days where the pain is so bad I do not talk to anyone. I cry, I take hot showers, and I just want to cut my arm off. Other days the pain is tolerable and I go about my day where I am fine. I have always told myself, “do not let this define who you are.”
What is one thing you wish those without CRPS could understand?
You will have bad days! This can spread and it will at times be so defeating. But take the good days and remember that yes, this pain is the worst pain you have ever felt, but there is support out there and community that will support each other.
What advice would you give to newly diagnosed Warriors?
Get treatment ASAP. Do not wait! Go get second opinions and fight for your health!
What encouragement would you give to Warriors who have had CRPS for many years?
My CRPS is spreading down my left leg, so I really focus on the good days and what I can do now like spending time with my family, my daughter, and my friends. Sometimes I limp or my arm is in a sling, but I remember that the love I have for everyone is the same love they have for me. I would never wish it on anyone, but I will never let it define who I am, or have anyone remember me like this.
What activities or treatments have helped you find temporary or long term relief?
I am on medication. I find compression really helps in the winter. I also have a spinal stimulator that I love! Honestly, going to the gym really has helped in a weird painful way, lol.
Anything else you would like to add?
Stay strong! I know it’s easier to say than to do, but that is what will get you through the bad days, weeks, and years. And don’t forget that it is okay to cry!
If you want to connect with Jamie, feel free to send her an email.