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Going For Gold: A Story on CRPS and Opportunity

Published on September 18, 2019 under RSDS General Info
Written by Laura Hinkle for the RSDSA blog. On August 24, 1994, I fell climbing up to Grinnell Glacier in Glacier National Park and had a minor break my ankle. My life changed forever as I was diagnosed with RSD. I went through the common treatments in that time frame. The only thing that I found helpful was methadone and it became my answer to my RSD pain. But by 2013, the methadone was destroying my heart. In 2014 after 20 years on methadone, I was told that if I stayed on methadone I would not live much longer, or I could detox off methadone and live experiencing more pain. What a choice! I opted to detox off methadone and…
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Join RSDSA for our Longest Day of Golf Fundraiser

Published on September 12, 2019 under RSDS General Info
Have you heard? RSDSA's 2019 Longest Day of Golf (LDOG) event will take place on Sunday, September 30th! LDOG is a one-day event to raise funds for RSDSA and bring awareness to complex regional pain syndrome best known as CRPS. This year, we will once again partner with prolific golfer and CRPS advocate, Josh Rosen. Rosen, who does not have the syndrome, decided to participate after learning about both our organization and CRPS. “Like many people, I didn’t know much about CRPS before connecting with Hank Luddington, co-president of RSDSA," says Rosen. "I love that I can use my golf ability to help people with CRPS. My goal is to help RSDSA fundraise enough to help more people get just…
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Meet Our Team: Tracy Geer

Published on September 4, 2019 under RSDS General Info
This summer, we're taking the time to introduce the RSDSA team to our Warriors and their families so you can know the names and faces behind our organization. What is your name and title? I'm Tracy Geer and I'm the RSDSA Office Manager. How long have you been with RSDSA? November will mark nine years at RSDSA! What is your favorite part about working with RSDSA? My favorite part about RSDSA is working with Jim Broatch, our Executive Vice President and Director, and when a Warrior thanks us for helping and the information we provide them. What is your favorite quote? My favorite quote is easily, "May the road rise to meet you, may the wind be always at your…
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Drea’s CRPS Journey

Published on August 28, 2019 under RSDS General Info
Written by Drea Tunstall-Dooley In 2007, I  was 40-years-old when my life was permanently changed. I was going to get medicine for my friend who could not go outside because of her health. As I was crossing the street, I got hit by a car and ultimately broke my tibia and fibula in my left leg. Had I knew that I would never be the same again,  I probably would have opted against surgery. I had a rod and for pins placed in my leg, and things seemed to be progressing at a normal rate until I suddenly started going backwards with my pain. Living in New York and being on Medicaid, I do not feel the doctor really cared…
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My Journey to an Amazing Life

Published on August 21, 2019 under RSDS General Info
Written by Karen Richards The shower water is too hot, but I dare not turn it down because after two minutes it will become cold. As predicted, within a minute, the hot water has vanished, but I have to suffer in the cold until my conditioner is washed down the drain. Once the torturously icy shower is over, with my body wrapped in a towel, I walk two steps into my living room/bedroom and sit on my bed. My head hurts, my body hurts, everything hurts… I am not a stranger to any of the awful things happening in my body and I pray that tomorrow will be better. I shake my arms hoping the shooting pains going down them…
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6th Annual Color The World Orange™ for CRPS/RSD Awareness is Nov. 4

Published on August 14, 2019 under RSDS General Info
Written by The Color The World Orange Team  Get your orange ready! The sixth annual Color The World Orange™ for Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy Awareness is November 4th. The easiest way to get involved is to wear orange and post a picture to social media with the hashtag #CRPSOrangeDay. Make sure to ask friends, family, support groups, and your medical teams to wear orange as well! Buildings, bridges, and landmarks around the world including Niagara Falls, the Duke Energy Center in Charlotte, North Carolina, the Calgary Tower in Calgary, Canada, the CN Tower in Toronto, Canada, the Blackpool Tower in Blackpool, England and many more will be lit orange on November 4th! In addition, U.S. politicians have granted…
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Meet Our Team: Alexis Davis

Published on August 7, 2019 under RSDS General Info
This summer, we're taking the time to introduce the RSDSA team to our Warriors and their families so you can know the names and faces behind our organization. What is your name and title? I am Alexis Davis and I am the social media manager for RSDSA. How long have you been with RSDSA? I have been with RSDSA since April of this year and I have enjoyed every moment of the journey so far! What is your favorite part about working with RSDSA? My favorite part about working with RSDSA is learning more about CRPS, having the opportunity to tell the stories of Warriors who have the syndrome, and helping to spread awareness. This role has taught me a…
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Meet Our Team: Jeri Krassner

Published on July 31, 2019 under RSDS General Info
This summer, we're taking the time to introduce the RSDSA team to our Warriors and their families so you can know the names and faces behind our organization. What is your name and title? I’m Jeri Krassner and my title is Special Events Coordinator. How long have you been with RSDSA? I’ve been with RSDSA for five months. I am on a steep learning curve about CRPS/RSD and I have so much more to go. What is your favorite part about working with RSDSA? My favorite part about working with RSDSA is meeting the individuals and families in the community and how they persevere despite their pain. What’s the coolest thing you’re working on right now? The coolest thing I'm…
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Donate to RSDSA via Instagram

Published on July 24, 2019 under RSDS General Info
Did you know that you can host virtual fundraisers for RSDSA on Instagram similar to how so many of our Warriors host them on Facebook? Check out our easy step-by-step guide to adding the donations sticker to your Instagram Story via the mobile app: Login to your Instagram account. While on your timeline (the feed where you see photos and videos from your followers) click on the camera in the top left-hand corner to access your camera. You can also swipe to the right.   This is where you will begin designing your story. From here, you can do a few different things: Take a selfie or another photo of yourself. Swipe up on the screen and pick a photo…
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Meet Our Team: Pam Kientzler

Published on July 17, 2019 under RSDS General Info
This summer, we're taking the time to introduce the RSDSA team to our Warriors and their families so you can know the names and faces behind our organization. What is your name and title? I’m Pamela (Pam) Kientzler, and my title is Administrative / IT Support. How long have you been with RSDSA? I’ve been with RSDSA for a little over eight years. Before RSDSA, I worked for an insurance owned broker dealer / investment advisor for 20 years and worked from home for the last five years after moving to Connecticut in 2002. After retiring, I worked various jobs until I landed here at RSDSA in 2011! What is your favorite part about working with RSDSA? I would have…
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