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Nerve Pain Is Hard to Explain

Published on November 10, 2020 under RSDS General Info
Written by Heather Maerten for the RSDSA blog.  My name is Heather Maerten and I'm a mother of three and a pediatric nurse. How and when did you develop CRPS/RSD? In August of 2015, I was working as a nurse in emergency transport for Children’s Hospital of Philadelphia. During a call, I rolled my ankle coming off the helicopter. I went to urgent care after my shift and was diagnosed with a sprain after the s-ray was misread (my talus bone in my ankle was actually fractured). From August to April, I saw multiple doctors and completed six weeks of physical therapy on a broken bone, unknowingly. In April, I met with a specialist and after multiple images it was…
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CRPS Warrior Kathleen Coleman’s Story

Published on October 28, 2020 under RSDS General Info
Submitted by Jay Conner and Kathleen Coleman for the RSDSA blog. CRPS Warrior Kathleen Coleman is the biggest Tampa Bay Lightning fan you'll ever meet. She lives in Arizona and wanted RSDSA to help share her message of hope and gratitude via the below video by Jay Conner of Jaybird Media. Please consider making a donation to RSDSA today!
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FAQs – RSDSA’s Treating the Whole Person: Optimizing Wellness Conference

Published on October 12, 2020 under RSDS General Info
The RSDSA team is excited to have you join our first virtual conference from October 19th through October 22nd. Below are a few FAQs to ensure you have an amazing experience!   Q. Is the conference free? The conference is 100% free to join!   Q. When does registration close? Registration does not close! You can register at anytime, even once the sessions have started!   Q. What time does the conference begin? The conference officially begins with networking and our expo hall at 6:30p Eastern / 3:30p Pacific each night. Sessions begin at 7p Eastern / 4p Pacific each night.   Q. Which browser should I watch the conference on if I'm on a desktop or laptop? Hopin recommends…
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Faces of Pain

Published on October 8, 2020 under RSDS General Info
Written by Rocky Odell for the RSDSA blog. I am but one face in pain out of millions My name is not important. However, my PAIN is very important. A physician triggered the monster I now live with. CRPS, also known as Complex Regional Pain Syndrome, is a pain disease with no cure and is very misunderstood. It has crippled my body. I live with pain often beyond description. It is a very real disease often called the most painful disease known to man. It is also called the suicide disease. All the faces of pain share pain from diseases and injuries we never heard of and certainly never wanted. We all suffer in ways the healthy cannot even fathom.…
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CRPS and The Digestive System

Published on September 24, 2020 under RSDS General Info
Written by Dr. Katinka van der Merwe for the RSDSA blog. The Spero Clinic has gained a reputation for effective, non-invasive nervous system rehabilitation, and for the sheer number of people who have found remission after going through our program. Often people ask me why our clinic is so unique in its approach. I think the answer is multifaceted, but certainly, one of the factors that makes us most successful where other approaches have failed is that we approach the body as a whole. This may seem simple, but if you think about it, it is very powerful. When patients are suffering from conditions like CRPS or EDS (Ehler’s Danlos Syndrome), they are often bounced around from specialist to specialist.…
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Shining a Light – The Fight Against CRPS/RSD Continues

Published on August 20, 2020 under RSDS General Info
Written by Bryan D. Pope of The Cochran Firm for the RSDSA blog as a silver sponsor of RSDSA's First Virtual CRPS Awareness Walk. The last five months have been hard on everyone as we deal with the impacts of COVID-19 in our society. I have represented victims of negligence my entire career and have seen people struggle with the aftermath of life altering injuries. Having personally represented many members of the CRPS community for over 20 years, I know these past few months have been especially difficult for CRPS/RSD Warriors.  They already face isolation and deal with challenges such as difficulty sleeping and trouble concentrating and completing simple tasks due to the never-ending pain and discomfort. Now they are dealing with…
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CRPS: The Viral Connection

Published on August 19, 2020 under RSDS General Info
Written by Dr. Katinka van der Merwe for the RSDSA blog. Ten years ago, I treated my first CRPS patient, Carlos. Carlos had full body CRPS and suffered from gastroparesis. Carlos had no quality of life left, and would curl into a ball each time he ate the smallest bite of food, screaming pain ravaging his body. Carlos’s youngest son was nine months old. In those years, I was like so many other doctors who face their first CRPS patient. I was unfamiliar with the condition, and I felt daunted by the sheer magnitude of his suffering. Luckily for me, I had one tool that turned out to be exactly what Carlos needed: Vagus nerve stimulation. The Vagus nerve is…
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As Parents, We Did Everything We Could

Published on July 22, 2020 under RSDS General Info
Written by Isabel and reposted with permission on the RSDSA blog. My 17-year-old son broke his leg at football practice the summer before his senior year of high school. The X-ray showed a broken fibula in two places and one of the pieces of bone was pinching the peroneal nerve. The orthopedic surgeon was concerned about foot drop because of possible damage caused to the nerve. He warned us that foot drop might still be present even after surgery to repair the fibula. Foot drop would require our son to wear a brace on his ankle for the rest of his life. Little did we know then that “foot drop” would have been way better than the CRPS he ended…
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RSDSA Resources Research

Published on July 20, 2020 under RSDS General Info
RSDSA has received many requests for dentists, workers comp attorneys, and disability attorneys who know and understand CRPS. If you have a reputable dentist or attorney who works with CRPS Warriors, please share this information to help others. Loading… Please consider making a donation to RSDSA today!
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Helping Others Is the Best Cure to Any of My Ailments

Published on July 1, 2020 under RSDS General Info
Written for the RSDSA blog by Elyssa Weiss. My story is nothing short of a miracle, I do say that very humbly, please know. I have Grace I hardly deserve. On Christmas Eve 2015 I fell asleep and somehow crushed my brachial plexus and then went into a coma. I was not under the influence of any alcohol or substances and I say this because it is hard to believe. I was also not heavy at this time. Evidently the crushing of my brachial plexus caused Rhabdomyolysis. I had liver, kidney, and heart failure. My brain swelled and I had double lung pneumonia. I also had three pressure blisters on my leg and feet that were 4 x 4 inches. 16…
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