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Holiday Blues

December 12, 2018

Jenny Picciotto is a writer and CRPS patient who enjoys reading and playing the piano. She was a yoga instructor and massage therapist before CRPS changed her trajectory. She currently lives in Hawaii, where she facilitates the Oahu CRPS Support Group. © Jennifer Picciotto 11-30-18. First published in National Pain Report. The holidays are a […]

Shannon’s Story

December 5, 2018

By Traci Patterson – Founder and Executive Director, Advanced Pathways Shannon suffered a knee injury at work that lead to her diagnosis of CRPS. Much like the majority of CRPS patients she went undiagnosed for three years. Heading into her fourth year of excruciating pain, temperature changes, swelling and frustration – she finally received the […]

Support House Resolution 1154 Affirming the Importance of the Orphan Drug Act

November 28, 2018

By James W. Broatch, MSW, RSDSA Executive Vice President, Director and Marin Blake Cartelli, RSDSA Advocacy Committee In 1983, The National Organization of Rare Disorders (NORD), working with Representative Henry Waxman was instrumental in advocating for the passage of the Orphan Drug Act (ODA) which brought new hope to the rare disease community by encouraging […]

Thankful

November 21, 2018

By Shannon Schildt-Leidig for the RSDSA blog. Oh my gosh I cannot believe we are coming up to the Holiday season and the end of another year! This is a time in which I stop and reflect on all that has happened in the past year and to say THANKS to those special people in […]

25 Years Later

November 14, 2018

Written by Keven Mosley-Koehler for the RSDSA blog. To my friends and fellow-survivors, Last week, I was playing a tennis match and my feet somehow got tangled up as I was running down a well-placed ball and the next thing I knew as I lunged for it I went down hard onto my right hip […]

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Get the latest news and
updates on CRPS
directly
from the RSDSA team

Recent Posts

Recent Posts

Get the latest news and updates on CRPS directly from the RSDSA team

Recent Posts

Recent Posts

Get the latest news and
updates on CRPS
directly
from the RSDSA team