Get the latest news and updates on CRPS directly from the RSDSA team SearchBack to All News Recent Posts Every Day Is Challenging, but She Tries to Remain Positive When No One Believed Him: A Mother’s Fight and a Son’s Strength The New Front Line of Patient Advocacy: PDABs and the Trouble with QALYs A Journey To Relief: Tony’s Story Comfort, Relief, and Support: A Meaningful Gift Guide for CRPS Warriors Self Advocacy: When It Feels Like It’s All Too Much April 15, 2025 Surviving and thriving in the face of this darkness is not easy. It requires choosing hope and intentionally lining up activities that give you a sense of meaning and purpose. RSDSA Research Update March 24, 2025 In a recent RSDSA-supported study published in BMC Molecular Medicine, scientists describe, for the first time, two biological subtypes of CRPS type 1 that are consistent across both skin and blood. Pharmacy Benefit Managers and the DRUG Act March 20, 2025 This broken system disproportionately harms low-income individuals, seniors, and those with chronic illnesses who rely on life-saving prescriptions to manage their health. March 2025 Legislative Update: Support the EXPERT Act March 18, 2025 This legislation seeks to bridge the gap between rare disease expertise and regulatory expertise. A Recap of Rare Disease Week 2025 March 7, 2025 Regardless of where you land on the political spectrum, your voice is needed. We each need to contact our representatives are ask them to protect funding for research and access to care for rare diseases. Pages: 1234567891011121314151617181920212223242526272829303132333435363738394041424344454647484950515253545556575859606162636465666768697071727374757677787980818283848586Load More Recent Posts Every Day Is Challenging, but She Tries to Remain Positive When No One Believed Him: A Mother’s Fight and a Son’s Strength The New Front Line of Patient Advocacy: PDABs and the Trouble with QALYs A Journey To Relief: Tony’s Story Comfort, Relief, and Support: A Meaningful Gift Guide for CRPS Warriors
