Get the latest news and updates on CRPS directly from the RSDSA team SearchBack to All News Recent Posts Pharmacy Benefit Managers and the DRUG Act March 2025 Legislative Update: Support the EXPERT Act A Recap of Rare Disease Week 2025 How to Complete an In Memoriam Donation to RSDSA Life Is Not a Contest. I LIVE at My Own Pace. Preparing to Talk With Legislators With a One-Pager February 6, 2025 A “one pager” helps effectively deliver your message and facilitates a productive conversation on the issues of importance to you and your organization. A New Pain Killer on the Market: The Good and the Not So Good on Journavx February 3, 2025 As with any medication, it is essential to weigh its benefits against potential risks and to consider individual patient needs when determining the most appropriate pain management strategy. Cultivating Relationships with Your Representatives January 27, 2025 Building relationships with your Members of Congress is important to ensuring that CRPS patients are heard on Capitol Hill and policymakers are working to improve the lives of patients living with pain. Advocacy Update | House Bill 6094 Protect Rare January 23, 2025 This bill is supported by more than 60 rare disease organizations, including the RSDSA. You Are Your Expert January 21, 2025 CRPS is an unwelcome visitor in your life. Taking care of yourself and advocating for your own needs is essential. Pages: 12345678910111213141516171819202122232425262728293031323334353637383940414243444546474849505152535455565758596061626364656667686970717273747576777879808182Load More Recent Posts Pharmacy Benefit Managers and the DRUG Act March 2025 Legislative Update: Support the EXPERT Act A Recap of Rare Disease Week 2025 How to Complete an In Memoriam Donation to RSDSA Life Is Not a Contest. I LIVE at My Own Pace.
