Get the latest news and updates on CRPS directly from the RSDSA team SearchBack to All News Recent Posts Self Advocacy: When It Feels Like It’s All Too Much Pharmacy Benefit Managers and the DRUG Act March 2025 Legislative Update: Support the EXPERT Act A Recap of Rare Disease Week 2025 How to Complete an In Memoriam Donation to RSDSA Self Advocacy: When It Feels Like It’s All Too Much April 15, 2025 Surviving and thriving in the face of this darkness is not easy. It requires choosing hope and intentionally lining up activities that give you a sense of meaning and purpose. Pharmacy Benefit Managers and the DRUG Act March 20, 2025 This broken system disproportionately harms low-income individuals, seniors, and those with chronic illnesses who rely on life-saving prescriptions to manage their health. March 2025 Legislative Update: Support the EXPERT Act March 18, 2025 This legislation seeks to bridge the gap between rare disease expertise and regulatory expertise. A Recap of Rare Disease Week 2025 March 7, 2025 Regardless of where you land on the political spectrum, your voice is needed. We each need to contact our representatives are ask them to protect funding for research and access to care for rare diseases. How to Complete an In Memoriam Donation to RSDSA February 24, 2025 Many individuals reach out to RSDSA in order to complete an "In Honor/In Memory" gift for a loved one with CRPS. Enclosed are answers to frequently asked questions regarding this process. Pages: 12345678910111213141516171819202122232425262728293031323334353637383940414243444546474849505152535455565758596061626364656667686970717273747576777879808182Load More Recent Posts Self Advocacy: When It Feels Like It’s All Too Much Pharmacy Benefit Managers and the DRUG Act March 2025 Legislative Update: Support the EXPERT Act A Recap of Rare Disease Week 2025 How to Complete an In Memoriam Donation to RSDSA