Category: Events
A Halloween Tale for CRPS With a Fun Message
Written by Samantha Anderson ‘Twas the day of Halloween, and all through RSDSA, Anticipation was occurring, for another important day. While others prepared costumes of Wonder Woman and Zeus, Samantha was writing a Halloween blog, although for another use. Tonight, she would dress as a unicorn in full, To pass the trick or treaters candy by the bagful. The clock will strike midnight, and a new month will arrive, Just in time for a new campaign to thrive. The first of November means it is the time, To shed some awareness through story and rhyme. A new blog will be posted every day, For members of the RSDSA community to relate to in some way. Tips, tricks, and stories we…continue readingRSDSA: The People and Programs Behind the Website
By Jim Broatch, MSW, Executive Vice President, Director With CRPS/RSD Awareness Month approaching, we wanted to feature a message from our Executive Vice President and Director, Jim Broatch. So many people rely on RSDSA for resources. Here at RSDSA, we want to be able to best help you and best support you. We want to create a hopeful environment. Every day, we look to see what we can do better for our community. Jim Broatch too the time to write up a bit of what we do daily. We will continue to move towards progress. Please join us in shedding more light on CRPS/RSD, not only in the month of November, but every month of the year. I would like…continue readingA New Month, An Almost New Season – What’s Coming in CRPS/RSD
I can’t believe it is September already! Before we know it, the leaves will start falling, pumpkins will start glowing, and it will be sweater weather (at least here in New England). Not only do all of these amazing things happen, but this is when our events really start to kick up. Woohoo! We’re starting September off with a bang. This coming weekend, we will be in East Meadow, New York at Eisenhower Park for the 2nd Annual Long Island CRPS/RSD Awareness Walk. This event is going to be spectacular, as the committee members have worked tirelessly to put together a great day. There will be raffle items, crafts, fake tattoos, a barbeque, and of course an environment of hope…continue readingCRPS Retreats and Gatherings – The Positive Impact of the YA Retreat
Written by Guest Blogger Melissa Lanty RSDSA is focusing on how we can better serve the community, especially with November (CRPS Awareness Month) quickly approaching. One of our young adults contributed this blog shortly after our first young adult weekend, which was a great success. Read what Melissa has to say about how this weekend impacted her! Be sure to keep an eye on our events calendar for all things CRPS coming up! The first time I heard of CRPS/RSD was when my cousin, Ken, was finally given a diagnosis for the intense, burning pain he had been experiencing. By the time the doctors figured out his diagnosis it already spread, jumped, and did all the horrible things this disease…continue readingKnock Out Pain Together – An Inspirational Story of Coming Together
Sarah Phillips-O’Steen is an ally to the CRPS community. Ever since she was 2 years old, she has been witnessing what CRPS/RSD can do to a loved one. Her father, Julian Phillips, has been living in pain since his daughter was toddling around. As Sarah will tell you, he’s always been good at hiding his pain, but she has never known him without it. In January 2015, Julian took a terrible fall that sent him into one of the worst CRPS/RSD flare ups that he had ever experienced. This guided him into full body CRPS. While Julian was spending time in hospitals, fighting the pain, Sarah witnessed some of the grim realities that come with CRPS. Medical staff didn’t know…continue readingMy CRPS Experience at the Young Adult Weekend
Written by Guest Blogger Jess Henry-Cross Jess was a participant in our very first CRPS Young Adult Weekend this past June. She was more than happy to write a brief blog about her experience and how it changed things for her. Why are events like this so important? Read about what Jess experienced to learn more. Around 2:30 in the afternoon on Sunday, June 18th I found myself holding back a few (happy) tears. I was driving home after spending the last 45 hours with a group of women who recharged me in a way I had never even dared to hope for. I didn’t want the weekend to be over. I signed up for the RSDSA Young Adult Weekend with…continue readingRSDSA Finds Great Success At Nashville CRPS Conference
Written by Samantha Barrett, Special Events Coordinator As we regroup after a fabulous weekend in Nashville, Tennessee, we thought it would be nice to do a quick recap of the events that happened this past weekend. An amazing group of people with CRPS, caregivers, and supporters joined us to make this one of our most successful conferences yet! This past weekend, RSDSA staff and board members traveled to Music City to host Treating the Whole Person: Optimizing Wellness at Opryland Resort and Convention Center. This was our first time to Nashville and excitement was abundant. After months of planning, we couldn’t believe how quickly the event came up. Upon arriving at Opryland Resort and Convention Center, our jaws dropped. We…continue readingA Teen In Pain Making a Difference – Keegan’s CRPS Story
By Guest Blogger Keegan. Introduction by Samantha Barrett It's CRPS Awareness Month. RSDSA has several events happening all over the country this month. We will also be sharing some stories of hope and stories to raise awareness for CRPS/RSD. We were recently introduced to Keegan, a teenager who was recently diagnosed with CRPS. She's not just any teenager; she instantly wanted to raise awareness for CRPS/RSD. Read a little bit about her and about her event! She wrote this blog to kick off our awareness month! Hi all! Happy National CRPS and RSD awareness month! My name is Keegan I'm 15 years old, here's a bit of my story. I left my hometown of Poughkeepsie New York in August to…continue readingColor the World Orange™ 2016 – CRPS Awareness
It all starts with an idea. That’s how our friends over at Color the World Orange™ became successful. They had an idea and acted upon it. Now, we are approaching the 3rd Annual Color the World Orange™ Day on November 7, 2016! Color the World Orange™ is a day of worldwide awareness for CRPS. Taking place on the first Monday in November, the day encourages members of the CRPS/RSD community to take action. Whether people are getting their friends and family to wear orange to school or work, or if they are getting proclamations for their city/state, every part of Color the World Orange™ helps make a difference. This year, it is even listed on the National Day Calendar! This…continue reading- 1
- 2